my best friend and her daughter have ms

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loudog
New Member


Date Joined May 2008
Total Posts : 6
   Posted 5/28/2008 7:10 PM (GMT -6)   
 hello there, my best friend has r&r ms for19 years , now her 22 year old daughter may have progressive , she already has a port a cath , im here because she is my best friend and we need real people to talk to, her daughter dr wants to start her own tysabri asap , thanks

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 5/28/2008 7:18 PM (GMT -6)   
Hey Loudog

Welcome to the board. Thanks so much for advocating on behalf of ur friend and her daughter. What a great friend u seem to be! Please do extend our invitation to them to join and post with us as well. Somehow just sharing experiences and finding that u'r not alone in these weird symptoms and sensations helps u cope.

I'm so sorry for u'r friend and her daughter! 22 is quite a young age, but unfortunately not very uncommon. Please take comfort in knowing the people here are wonderful and will be more than willing to share and support u and u'r friends.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Sweetlydia66
Regular Member


Date Joined Mar 2007
Total Posts : 260
   Posted 5/28/2008 7:38 PM (GMT -6)   
Hi Loudog,
I am so sorry to hear of your friend and her daughter. Geesh, how heartbreaking. I have a 10 year old and continuously think about about this. I read that the statistic of a mother passing it to her daughter is 1 in 50 which is so scarry. I wish i could remember where i read it, so i could post a link. I am on Tysabri, so if you have any questions for me please feel free. I only had 3 infusions, but i will try.You found a great place here for support and good info. What would make them think she has progressive may i ask?
Take care

Lynn


Dx MS Dec 06, Started Tysabri March 2008, Baclofen, Cymbalta


loudog
New Member


Date Joined May 2008
Total Posts : 6
   Posted 5/28/2008 7:46 PM (GMT -6)   
they think she has progressive her symptoms came own really fast, and havent gone away, and in 2 months time she has got alot of lesions, and her dad has ms too, the dr thought she wasnt gonna walk again , he said a higher power got her out of icu.

Tapestryloom
Regular Member


Date Joined May 2008
Total Posts : 169
   Posted 5/28/2008 8:32 PM (GMT -6)   
Loudog, Please tell your friend(s) to join if they want to. I am here and still waiting to find out if I actually have MS. It's so scary. The folks here are wonderful and supportive. I am very greatful to have a place like this to go to while I stand in "limbo'
Carolyn
I am a mother to 4 children; James 7 mo.'s, Davey 2 yrs, Dana 4 yrs, and Anne 9 yrs.  I am currently studying to become a natural childbirth educator.... and just trying to figure out where my priorities are right now.


loudog
New Member


Date Joined May 2008
Total Posts : 6
   Posted 5/28/2008 8:40 PM (GMT -6)   
my best friend has alot of problems with her hands they dont work , her eyes have always gave her trouble , but im gonna see if her and i can get together and i communicate for her, but she is so modest and private,

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 5/29/2008 4:24 AM (GMT -6)   
I'm so sorry to learn of your friend and her daughter! It must be very scary for the entire family.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


pokey79
Regular Member


Date Joined Aug 2007
Total Posts : 144
   Posted 5/29/2008 9:12 AM (GMT -6)   
Loudog I had a friend whose husband had ms(he passed away from something else) their daughter has progressive ms she has been in a nursing home for awhile now she is 44. The dad also had a neice who had ms progressive..I know of alot of other ppl who have ms and they didnt pass it along to their children.Must be a defective gene that passed it on.In fact everybody I know with ms are the only ones in their family who have ms including me..I hope all goes well for that family and that maybe something could help them like tysabri..pokey
diaganosed 1983
avonex once weekly
steroid infusion every three months for three days
mycoline three times a day
fosamax once a week
bladder meds. daily
calcium/multivitiams
synthyroid
 
 

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