Neck (front) muscle spasms?

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D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 5/29/2008 6:05 AM (GMT -6)   
Ok, this is going to sound a little silly (though I think I'm learning there's really no silly sounding symptoms with this stuff!) but does anyone else experience tightness or spasmodic muscles in the neck up either side under the ears leading down into your chest? I told the neuro about it on Friday that the left side had been this way for a while... well over a week, on the left side, that it just was uncomfortably tight, and when I massaged that side of my neck I noticed the muscle unusually tight and strained... he just took notes (we were talking about my spasticity in my calves & legs, too) but now it's on the right side too and sometimes really painful to the touch.
 
It's not up the back to my skull like a tension headache, it doesn't even produce a headache, just a tingling tension on either side under my ears down...
 
I haven't been using my Flexeril for a while now, hadn't really felt the need for it and my tolerance had grown to double so I've been hoping to drop the tolerance back a little so its more effective when I do use again... either that or maybe its time to move up to Xanaflex... I don't know... I'll talk to him when I do the LP this weekend but just wondered if anyone's got any ideas or thoughts on this.
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


Willowmom
Regular Member


Date Joined May 2008
Total Posts : 88
   Posted 5/29/2008 10:56 AM (GMT -6)   
Hey D- That's exactly where I get my tightness and spasticity. It also affects my right arm as well. My first MS attack was this and so it was not recognized until a couple years later when I had new exacerbation that affected speech and vision. The first time, for my neck and chest tightness they sent me to physical therapy, neck surgeon, took X-rays and MRI of shoulder and wrist (never the cervical spine unfortunately), steroid injections repeatedly in the shoulder, etc- nothing helped of course!
So, now that i know what it is- stretch, stretch, stretch! Tilt your head to the side, slightly back and jut out your chin (unless it hurts!) You can put a rolled towel under your spine and lay with your arms out to the side palms up, sometimes i have someone gently pull my arms back- all things I learned from PT. So I suggest asking for a PT referral but also some medication if it gets bad. I just use my clonazepam when it flares up. I take .5 or 1mg depending. I've been using it for 4 years and haven't had to increase, so not using it often enough to develop tolerance yet. Flexeril worked well but made me very sleepy if I recall. Good luck! Willow

D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 5/29/2008 8:33 PM (GMT -6)   
Thank you Willow!  I appreciate the stretch exercises, I'll be doing them right away! I've been studying different stretching techniques in order to release the various tight spots. I'm so relieved though to hear it's not a weird NON spot for MS... tonight I'll be double dosing the Flexeril and taking a Tylenol 3 with it for a really sound nights sleep... that's the only time I can use it too, never during the day as it does make me sleepy too. 
 
I am going to discuss PT with the neuro when I get my LP this week... hoping to hear soon when... thanks so much!
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


Willowmom
Regular Member


Date Joined May 2008
Total Posts : 88
   Posted 5/29/2008 11:26 PM (GMT -6)   
No problem and actually I felt comforted to know someone else gets problems in the same location. Although I'm sorry, it can be so uncomfortable. Also finding a good massage therapist to keep that area loose helps, but I can't afford to go regular and insurance doesn't cover it. If you ever try it, find one recommended by a PT. I have found with MS that a standard massage is not always good, need someone familiar with nerve damage.
Good luck with the LP. I saw you got some advice earlier. The procedure really wasn't bad, I did my childbirth breathing to relax ;) Mine was negative, but two seperate MRI's w/ different lesions plus the symptoms got mydiagnosis. Lay flat like they say! Completely! I did everything right, but still had to go in and get it patched, it just wasn't healing up. That's rare to have that problem I think and the headache was so excruciating that I didn't mind whatever they were doing for the patch. Take care- Willow

Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 6/4/2008 1:31 PM (GMT -6)   
Hi there...I have not been on for a few weeks, daughter got married, and stuff like that.....neck issues....oh yes, infact, this is the area where I am affected the most. very tight neck muscles, joint problems in the back of the neck, a burning sensations often until I massage my neck my self, or go to a physio therapist. It extends now to my shoulders and into my shoulder blades.
During the later part of March, the muscles on the front side of my neck became a real problem.  The muscle on the bottom front of my neck just above the collar bone began to swell, to the point it was at times very hard to swollow, as it had swollen so much that it was pushing against the wind pipe. It was very painful as well.  I ended up taking otc muscle relaxants, and recieved almost immediate relief.  I took them for about 4 days, and noted that the swelling went down, the pain subsided, and things went back to normal.
 
I find that when my neck muscles at the back of my neck get really bad, it causes me to fee light headed, etc, my neck joints crack when I turn my head, and I get bad headaches, along with that burning feeling in the back of my neck.
 
Yes I do get the tingly fingers, and my vision from time to time goes a bit wanky, but my biggest complaint is my neck, and fatigue.....
 
I take ativan, part of the benz family of drugs that helps alot with the spasticity imn my neck, and also calms me down too!  I never did have uptight, anxious feeling before all of this, I wonder if I do infact have problems controlling some of my emotions due to the location of a lesion????
 
So yes, it does sound like a symptom to me....
 
Gary

D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 6/4/2008 4:39 PM (GMT -6)   

Hey Beau! Congrats on the daughters wedding!  :)

Everything you're talking about is what I go thru with mine... and I just thought it was stress and me being so "type A" as I've been accused of... it's such an odd feeling when I realize my neck muscles are tense... the stretching exercises are helping alot, though they still tense. It's like my calves, they seem to keep the memory of being tense. I haven't accepted the benzo's in my med regimen yet... I'm hoping the stretches and muscle relaxants will keep it under control.


Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~

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