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colee1979
Veteran Member


Date Joined Jul 2003
Total Posts : 667
   Posted 6/3/2008 12:36 PM (GMT -6)   
I saw a new Neurologist yesterday. I really liked him,alot. He was the first that has really explained alot of things to me,I mean sat down and drew me pictures and explained. Because I am always sooooooo tired and run down,he gave me samples to try of provigil. They are 200mg and I am to take 1/2 of the pill. Just wondering if anyone here has had any luck taking this?
 
~Nichole~
 
Dx with Ulcerative Colitis September 2002
Dx with Multiple Sclerosis August 2006
 
 
 


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 6/3/2008 12:43 PM (GMT -6)   
Sorry, I haven't taken the provigil so can't help with that..

but I did want to say that I'm glad you 've found a neuro you like, and who seems to be willing to spend time with you. I've long been convinced that finding a doctor I like and have confidence in, makes a huge difference in how I perceive the quality of my health care. Sounds like you found a good neuro and a good eye doctor too! I'm really glad for you.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 6/3/2008 1:15 PM (GMT -6)   
Hey Nichole

Yes, i've used Provigil and it was great for me! I did notice that the effects seemed to lessen a bit after a few weeks, but still quite a boost. There are other members here who are using it or have used. They will prob be along later to give u thier experiences. Be sure to report any ill effects to u'r doc immediately. In some cases the dosage may need to be adjusted either up or down. My dosage was like u'rs...take half the pill, but then we upped it later on.

I am so glad u've found a great doc! They are priceless when u get one u communicate with. Take good care friend and let us know how that Provigil works for u.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


carolynvb
Veteran Member


Date Joined Oct 2006
Total Posts : 540
   Posted 6/3/2008 4:35 PM (GMT -6)   
I take 400 mg daily. I started off with 200 and needed to take more. At this point I think only a rocket up my bum will help! My dr said I can go to 600 I don't want to so will deal with this...has helped me a lot in the past though :)

D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 6/3/2008 5:26 PM (GMT -6)   
Hey Nichole, I can tell ya I'll sing it's praises forever! I just gotta REMEMBER to take it! :) knocked me flat this past sunday when I totally forgot my meds after living on it the past several weeks! It's a lifesaver but yes, it does taper a little though still my best friend.
 
Carolyn thank you for the smile... I so wish for you it was still working good and dread the day it isn't anymore for me!
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


colee1979
Veteran Member


Date Joined Jul 2003
Total Posts : 667
   Posted 6/3/2008 8:33 PM (GMT -6)   
Thanks everyone:-) I took it today...I dont know,it was a crazy day(like every other). I'm always sooooo tired,just dragging! I was able to stay at playland for over two hours with my son(from breakfast until lunch)! Before I completly pooped out! We'll see how the days go...
 
~Nichole~
 
Dx with Ulcerative Colitis September 2002
Dx with Multiple Sclerosis August 2006
 
 
 


Willowmom
Regular Member


Date Joined May 2008
Total Posts : 88
   Posted 6/3/2008 9:52 PM (GMT -6)   
Provigil did not work out for me because I like to catch a 30 minute rest- either in my car on lunch break or 30-60 minutes after work and it prevented me resting if the opportunity was there. Also- I was awake but did not have better clarity or energy. However- it seems lots of people have good luck with it so I wish you well!

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 6/4/2008 6:49 AM (GMT -6)   

Willowmom,

Thanks for this input.  I had always wondered about the drugged wakefullness versus a good nap.  You have addressed that nicely.  I do use medication for the sleepy brain thing.  That is what I had a problem with, clarity.  I take a relatively low dose of adderall just to wake me up in the morning hours.  The hardest part of my day (the part where I need the most clarity) is that 8 to noon time slot.  My adderall works just about that long.  Right around 2 ish I have a definite low but by then my hard work is done and I can slow down.  I am home by 3:30 and I can rest or not as I see fit.  I don't really nap in the afternoon but I am definitely not at my most wide awake. 

The adderall is short acting - about four hours if you don't takt the xr formula.  The xr formula works about 8 hours.


Gretchen       co-moderator MS board       diagnosed with MS July 2006


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 6/4/2008 4:48 PM (GMT -6)   
Willowmom, that's exactly why Provigil works for me, becos it doesn't allow me to nap ('course you're probably much wiser getting the actual rest!  :-) )... I don't have that time to do that, and when I get that "crashing" feeling, I can't afford it. I know the day is coming very soon when I'm going to need to build that in, but for now, I can't. And fortunately for me, being awake provides me clarity. My brain fog is a lot less when I have energy.
 
Of course, this is also doubled up with a heavy supplement program of Q10, the B vitamins, a sublingual B12, and some minerals for additional support. It seems to be working together pretty good right now.
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 6/5/2008 5:52 PM (GMT -6)   
Thursday  p.m.
 
Very good evening
 
I take 1 & 1/2 Provigil whern I awake, 1  at noon, and a half at 2p.m.
 
Could not make it through the day without it.
 
John
 
my wife has great job with Detroit area hospital with amazng benefits.
 
Co-pay for script is $20.00
 
Price without St. John Hospital coverage for 1 month script?  $1250.00.  ouch.
 
 
DX'ed June 21st, 1987
 


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 6/5/2008 8:19 PM (GMT -6)   
OMG, John, I had no idea it was that expensive! No wonder my insurance is balking! I think I'm gonna beg samples big time tomorrow with my PCP! OMG I'm in shock! The neuro mentioned we could try Ritalin but I'm just not fond of trying out the ADD meds for the same thing I already know the Provigil did wonders for!
 
Hoping the Insurance finally says yes to it, it'll still be $50 copay for me but heck much better than that cost. wow. Thanks for the info... but I'm with you, it's been my lifesaver now.
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


rosieangel
New Member


Date Joined Jun 2008
Total Posts : 2
   Posted 6/23/2008 10:25 AM (GMT -6)   
I didn't realize Provigil was so readily prescribed.  I'm glad that it is working for many of you.  I'm hoping that it helps my son. 

D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 6/24/2008 6:00 AM (GMT -6)   
Personally, I'm very grateful it is for our sake with this fatigue, but my dilemma is that because I'm not specifically diagnosed with narcolepsy, my insurance is denying the prescription. Fortunately on my last visit with the PCP, she said just see me for the samples until we get them convinced... in the meantime, my neuro's office is jumping thru the hoops... or he says we can always try Adderall or Ritalin... I don't think it'll work the same. It's not major brain fog for me though that comes with the sudden sleep, it's sleepiness due to the fatigue.
 
However I did learn for me here in Florida it would cost $352 a month for my prescription, that was a little better but still horribly expensive to think on considering everything else.
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 6/24/2008 8:54 AM (GMT -6)   
I don't understand your insurance Deb!  This med is used all the time for MS.  You have that diagnosis.  Why do they need a narcolepsi diagnosis?  Weird. 

Gretchen       co-moderator MS board       diagnosed with MS July 2006


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 6/24/2008 5:36 PM (GMT -6)   
Yeah that's what ticked off the neuro... when I told him they were questioning it, he got downright indignant... replied, because I said so, you need it, I ordered it! He's not an egomaniac so it aggravates the daylights out of him to be challenged by an insurance company (United Health Care), and the weirder part is that usually they are so good about everything that this is a first! I plan to holler at them tomorrow and find out what they really need to do this... both drs are aggravated.. the PCP says, "if they want narcolepsy, then narcolepsy it'll be!" (She's a get it done gal). But the neuro realizes mis-dx's can plague you later so he's more cautious.
 
I'll let ya know what the insurance folks tell me when I hear back! :)
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 6/24/2008 10:28 PM (GMT -6)   
I just looked at the cost of provigil.  It is over a thousand dollars a month.  Maybe that is why insurance is questioning it.  Yikes!!! 

Gretchen       co-moderator MS board       diagnosed with MS July 2006


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 6/24/2008 11:39 PM (GMT -6)   
That's what I understood it to be also, Gretchen, originally... so then maybe what the insurance is saying is that they'll pay a percentage, so that my portion would be $352 instead of my prescription coverage which should be $50 for the specialty scripts... kinda cheating their way out of my coverage in my opinion. I'll get to the bottom of it this week for sure (no luck today, left messages, waiting on hold...  confused   )
 
But geepers, what if I was in a life threatening circumstance like cancer etc... man, those drugs get horrible expensive...what the heck do we pay for insurance all our lives for anyhow? Yep, go figure.
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 6/25/2008 12:20 AM (GMT -6)   

It’s my understanding that provigil is used to treat obstructive sleep apnea, narcolepsy, and shift work sleep disorder…  it is used off-label for MS fatigue, and many insurance companies won’t cover off-label prescriptions (esp non-generic expensive ones). My insurance company required an additional authorization from my neuro  (not just his rx) before they would approve it for me. However, I’ve read about people with MS who are unable to get this med covered at all. I hope you’re able to sort this out and get your med.

 


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 6/25/2008 7:12 AM (GMT -6)   

Ahhhhhhhh that is interesting.  Good information there Sunny!  I had no idea it was used off-label.  And due to the fact that it is not a life saving drug and it simply treats symptoms seems to give insurance companies a bit of leverage there. 

My neuro offered to me so I figured it was pretty standard.  I like my adderall though and turned it down.


Gretchen       co-moderator MS board       diagnosed with MS July 2006


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 6/25/2008 9:45 PM (GMT -6)   
Yippee skipppeee! my Neuro won!  He got the insurance to approve it, no more denial... and it's my deductible rate of $60 bucks.... whoopee!  He's so pleased with himself for this one... no juggling meds and pulling samples now!
 
I do undersand them balking... I have a nurse friend who oft used it for her shift differential work when she did swing shifts... I would guess they'd consider that an abuse of the drugs abiliities... whereas I'm nonfunctional without it... Oh thank Lord, he got it through!
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~

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