I had my neuro check up yesterday.

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Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 6/6/2008 7:54 AM (GMT -6)   
Hey everyone,
 
I went to UCLA to see my wonderful doctor.  The appointment went very well.  She did all the usual tests and asked all the usual questions.  She was very pleased to see that I had little to no progression over a year.  I feel great and she could see that.  She is frustrated that I never lost my vertigo or mild balance problems.  She did write a script for vestibular training from a physiotherapist.  I have my doubts (and so does she) that it will imporve things.  She was thinking that I could learn some excercises to do at home to maintain the balance I have.  My balance is probably average for a healthy 45 year old woman, but it is not my balance.  I used to ride my horse bare-back and I could ride a unicycle.  I had really excellent balance and now I just would like to maintain.  She and I both think that is a reasonable goal there.
 
My dear, wonderful, perfect husdand always goes with me on these trips.  He enjoys "tattling" on me if I have been naughty and not been taking care of me.  We drive an hour and a half for these appointments, so we always make a day of it.  He completely spoils me.  We went to lunch in an old Beverly Hills kosher deli.  It was so fun and yummy.  Afterwards, we walked up rodeo and beverly drive checking out all the swanky shops and doing some serious people watching.  You will see lots of pseudo super models and pink dogs and limos with body guards.  I spend the whole time with this huge grin on my face because it cracks me up.
 
I won't bore you with what I bought lol!!!  We ended the day going up to the Griffith observatory way up on the hollywood hills.  It is right by the hollywood sign if you don't know.  It is a great view ( of the city and the smog lol ).  The museum and grounds have all been rebuilt in a huge effort that took over two years.  I had a great day.  My husband always tries to put the emphasis on the fun part and not on the HUGE reminder that I have a chronic illness. 
 
I had a great day and just wanted to share. 


Gretchen       co-moderator MS board       diagnosed with MS July 2006

Post Edited (Gretchen1) : 6/6/2008 7:57:40 AM (GMT-6)


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 6/6/2008 9:23 AM (GMT -6)   
WOW Gretchen!!!

I'm so so so glad u'r appointment went well!!! U do seem to be doing well and i'm thrilled over that! Do tell us about u'r shopping??? ;) Sounds like a great day friend and a super sweet hubby! Thanks for sharing...and get on with that vestibular training!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


momofltlbrat
Regular Member


Date Joined Apr 2007
Total Posts : 164
   Posted 6/6/2008 9:52 AM (GMT -6)   

Gretchen,

I am so glad your appt went well.  I was told about the vestibular training when I went through vertigo, but my cleared up with meds.  It was explained to me that there are tiny fragments in the ear that get out of whack, they teach you exercises that are supposed to move them back.  I really hopes this works for you.  I hated when I had vertigo, I was so nauseaus.  I can deal with walking off balance, but if I'm nauseaus I can't eat my ice cream.  hehe

Your hubby sounds like a wonderful guy.  Going with you and making your appt a fun day so it is actually something to look forward to.  You need to figure out how to clone him.

Becca is fine, even after your attack on Monday.  I think she will talk about that for awhile.  Don't worry I did explain your a big kidder.  You are, right?

Hugs,

Debbie


sunshinesyl
Regular Member


Date Joined Apr 2006
Total Posts : 169
   Posted 6/6/2008 10:44 AM (GMT -6)   
Sounds like you had a splendid day, you have a great husband.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 6/6/2008 3:59 PM (GMT -6)   
This is for Becca,
 
I am very sorry I was mean to you on Monday.  Your mom makes me crazy!!!!  She torments me with horrible football stories!!!  You sound like a very nice young lady.  I will try hard to behave on Monday night chats from now on.  I will even try to be nice to your mom.  You don't live that far from me, maybe someday we can meet and I will make it all up to you.  You and I can secretly plot to play some really funny practical jokes on your unsuspecting mom.  Do you have a whoopee cushion??? Hahahahahaha.
 
Be cool, stay cool!!


Gretchen       co-moderator MS board       diagnosed with MS July 2006

Post Edited (Gretchen1) : 6/6/2008 8:36:10 PM (GMT-6)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 6/6/2008 5:54 PM (GMT -6)   

Debbie,

By the way, the vestibular physiotherapy I am talking about is different from what you mentioned.  This is neuro-vestibular training, so it is unrelated to the inner ear.  It has to do with trying to teach the brain to re-connect or re-wire (in new cognitive pathways ).  I am not sure what it involves but it is supposed to help with my balance.



Gretchen       co-moderator MS board       diagnosed with MS July 2006

Post Edited (Gretchen1) : 6/6/2008 8:35:04 PM (GMT-6)


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 6/6/2008 7:29 PM (GMT -6)   
Wow Gretchen sounds like a perfect day! And even more perfect being able to share it with your hubby like that! The exercises sound interesting too... retraining the brain and neuro signals. I'll look forward to hearing if they do the job for ya.
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 6/6/2008 11:42 PM (GMT -6)   

I’m so glad things went well for you! tongue


tkelly3287
Regular Member


Date Joined Jan 2007
Total Posts : 142
   Posted 6/7/2008 1:28 PM (GMT -6)   
what a great hubby! I am glad to hear you are doing well!! Now I have to tell my hubby what your hubby did for my neuro appointment on Monday!!!LOL!

lexilani
New Member


Date Joined Jun 2008
Total Posts : 3
   Posted 6/7/2008 1:54 PM (GMT -6)   
Gretchen,
I am also very glad you had such a good appointment and then outting with your husband. I had no idea you can do exercises to help with your balance!!! This is such a great board with a wealth of knowledge!

I think if my husband would come along to my appointments I would choose to go the 3 hours to Baltimore and see the docs at Johns Hopkins. You are very lucky to have a husband who chooses to go with you.
And what a great idea to do something really fun AFTER a doctor's visit!

carolynvb
Veteran Member


Date Joined Oct 2006
Total Posts : 540
   Posted 6/7/2008 10:13 PM (GMT -6)   
Wow, super day. Really sounds like you had a great time :) What a great guy your hubby is. I am so glad all went well for you at the Neuro..

God Bless,

Carolyn

Sweetlydia66
Regular Member


Date Joined Mar 2007
Total Posts : 260
   Posted 6/8/2008 3:28 PM (GMT -6)   
Hey Gretchen,
I am so jealous. I love to go on afternoon dates w/ my sweetheart. I am so glad that you had a positive appointment with your neuro. I know how much you love your neurologist. Good for you. Last time i was in PT we were working on exercises for proprioception. Proprioception is like an additional sense sort of, that we have. We learned about it in PT school also. It is sort of your body, knowing where it is "in space". I remember being so lost with this until i experienced it. I bet you this is what they will work on with you. From what i recall, there are exercises with eyes closed, (lol, thats always fun), doing some exercises on different surfaces, (ie. standing on a foam block, etc). Trying to re-teach your body to know where it is. Weird isn't it, but interesting too. i am looking for a link for you, i really couldn't find a good one, but these are ok.
Love
Lynn
 
 
 
Started Tysabri March, 2008
Baclofen/Zanaflex Combo,
Cymbalta and Provigil


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 6/8/2008 4:07 PM (GMT -6)   
Oh man!!!  Eyes shut???  Oh great - I hope there is lots of foam to cushion my fall lol.  Yeah I have since done some research on the whole vestibular training.  It does look hopeful but it looks really icky.  They basically induce the vertigo as much as possible and try to retrain your brain to just deal with it.  And the relearning your place in space is definitely part of that.  I am game.  I will let you know how it goes.

Gretchen       co-moderator MS board       diagnosed with MS July 2006


photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 6/8/2008 8:08 PM (GMT -6)   
Glad your appt went so well Gretchen, and good luck on the retraining!
Diagnosed with MS April 2006
 
Started Tysabri Nov. 2007

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