Pain - MS and chiropractics

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Willowmom
Regular Member


Date Joined May 2008
Total Posts : 88
   Posted 6/11/2008 8:33 PM (GMT -6)   

Not feeling my usual long-winded self.  I hurt.  Have had this pain before, but not so bad for a long time.  years.  Nerve pain I suppose.  Severe pain in my spine, lower cervical and upper back between shoulder blades.  And the balance issue has been chronic for 6 days instead of coming and going.  So- I started a new chiropractor last month.  Had an adjust ment Thursday that made me dizzy and queasy- Has anyone found chiropractic to cause a flare or worsening of symptoms.  Unfortunately that night I re-started Avonex (6 mo.s off).  But only .2 of a dose.  No flu side effects- Has anyone found starting interferons to cause flare?

Maybe coincidence, but ow!  makes me nauseous from pain.  It wasn't three years ago I heard a professional say MS does not cause pain.  ha.  Thanks for opp to vent.  Maybe time to ask about neurontin.  Haven't tried it.

Post Edited By Moderator (Gretchen1) : 6/12/2008 7:12:24 AM (GMT-6)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3518
   Posted 6/11/2008 10:12 PM (GMT -6)   

I am much too afraid of chiropractors.  I have spinal lesions.  If you cause any pressure or stress on those, it can cause a flare.  No chiroprators for me.  I can't answer your other questions.  I don't have any experience with interferons.  I have heard that stopping progression therapy can make things rebound and get worse.  At six months, you are probably just at the point where the interferon is totally out of your system and that would certainly allow MS to have free reign to progress. 

I would definitely talk to your doctor.  You have some bad stuff going on.  I hope you get some relief soon.  I am glad to hear that you are back on progression therapy again.  Good luck and I hope you are feeling well real soon. 



Gretchen       co-moderator MS board       diagnosed with MS July 2006

Post Edited (Gretchen1) : 6/11/2008 10:28:28 PM (GMT-6)


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 6/11/2008 10:18 PM (GMT -6)   
Hey Willowmom

Well first thing is u should be being REALLY careful with seeing a chiropractor. I can't remember where u'r lesions are, but a dear friend of mine who has ms explained it like this. If u are manipulating around a lesion...perhaps a spinal lesion...then u could affect that lesion and cause more harm than any sort of good ever expected. U can actually increase the known symptoms that that lesions is causing by putting pressure on it. Be really careful and talk with u'r neuro about seeing a chiropractor before go back. I know u have prob been to this chiro. in the past and felt fine from it, but ms is an ever changing disease and it's ever changing the challenges u'r body must endure and adapt to. Be careful and please see u'r neuro about this and the pain or at the very least, give them a call as soon as u can.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 6/11/2008 11:43 PM (GMT -6)   
I can relate to that kind of pain and yes, from chiropractic. I couldn't figure out why I didn't feel better til after I quit going after I started seeing the neuro. He said no chiro. Bad news, not a good idea. Usually triggers lotsa problems that can't be pinpointed and with "all my numb spots" as he puts it, it could be more painful than relieving. He was right. Spots that kept hurting quit hurting. One spot she seemed to think she had to "work on" was horribly sensitive and tight, is so much better now that I don't have her working on it.
 
So, I personally would agree no chiro.  Now that I quit doing that, I'm a lot better off. I tried accupunture too but it was only good as long as the needles stayed in. :) That wasn't happening so that didn't last. (Neuro got a laugh out of that one.)
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


Willowmom
Regular Member


Date Joined May 2008
Total Posts : 88
   Posted 6/12/2008 12:35 AM (GMT -6)   
Thank you for your replies- I think you may all be right and I've just been fortunate in the past with chiropractic. The adjustment that caused initial dizziness was in my top cervical vertebrae, which my brain stem goes down in to (figured that out later). I did a brain stem lesion that they related to my balance and speech problems. Generally those are much better since initial exacerbation. But as Gretchen pointed out, perhaps the timing of also having interferons out of my system was bad.
Too bad. I like the idea behind chiropractic. I'll not go back for now and see if it improves and talk to my neuro. I did email and he said he wants to see me next week if no improvement. Gretchen- maybe we can change the title of this thread to "chiropractic with MS". Can I do that somehow or do you?
Thanks for the laugh D- no, you can't really be a walking pin cushion I suppose. Accupuncture also made me dizzy. Prior to MS diagnosis I went for pain. I think it's the lesion in the brain stem that is so sensitive to everything! Bad spot for one- I try not to think about it.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3518
   Posted 6/12/2008 7:17 AM (GMT -6)   
Willowmom,
 
The brainstem is indeed a bad place for a lesion.  There are so many critical things going on there.  I have one a bit further up on the cerebellum and it also causes the dizziness and vertigo problems.  Thanks for letting me rename the post.  I think your choice will be very helpful for others. 
 
I know that for some, chiropractics can be quite helpful, but for me it is a definite no-no.  I would love to have a therapuetic massage now and again.  Even that, I have to tell anyone who works on me to avoid any pressure directly on the spine.  Somehow going into a bunch of detail about my condition can take the fun out of the massage.
Gretchen       co-moderator MS board       diagnosed with MS July 2006


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 6/12/2008 6:52 PM (GMT -6)   
I thought that might bring a smile there Willow... my neuro laughed too... I've always been kinda weird on that stuff... I can fall asleep in traction (the blood flows!), enjoy rolfing massages (prior to most recently, now I think I'd cry pretty bad)... and the accupunture worked as long as the needle stayed put... course chiro was good til I stepped off the curb too. C'est la vie. They loved the repeat business though. ;)
 
I can still do the massage with the warning to stay firm but gentle... with so much desensitization, some firmness gets it thru... and the muscles cooperate... ahhhhh! :) I do so wish my lesions would show themselves... since that really great chart rhonda posted a while back, I've got a seriously good idea where they are but they sure don't show up... I imagine them as a bunch of short circuits at this point... thus the mass of miscellaneous symptoms but nothing majorly debilitating.
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~

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