ms specialist appt.

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domanique
Regular Member


Date Joined May 2008
Total Posts : 156
   Posted 6/11/2008 10:02 PM (GMT -6)   
i felt like i was getting nowhere with my neuro and left his office in tears each time i saw him.  so, i decided to write to an ms specialist and send him my list of sx and history. 
 
i got a call from his nurse setting me up for an appt.  its tommorrow at 10 am.  and i am scared to death.
 
i've had really bad luck with drs. over the yrs.  usually they take one look at me and see that i'm overweight and run thier usual bloodwork which always comes back fine and then say its your weight or depression. 
 
i feel as though i get prejudged as soon as i walk in the room.  i just gave up trying to find the answers and tryed to live with it until about 6 mths ago when things started changing for me.  then i started seeing this neuro.  i pretty much got the same stuff from him.  i felt like i was getting nowhere again.
 
now i have this appt with this dr.  i want him to listen to me not prejudge.  i want him to take me seriously.  i know you all don't know me but any prayers or advice would be appreciated.  also, if any of you have gone to aneuro and then to an ms specialist, is there any difference in the actual first appt, and do you feel you were treated any differently?  did the ms specialist do more for you then the neuro?

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3532
   Posted 6/11/2008 10:19 PM (GMT -6)   

Hey Domanique,

You have my prayers.  In my case I was treated pretty much the same.  I had a regular neuro come up with the initial diagnosis then he referred me to an MS specialist and she confirmed the diagnosis.  It was real straight forward for me.

Tell your neuro tomorrow what you have told us.  Go in there and say, "Please don't disreguard my symptoms because of my weight.  I am not feeling well and it goes beyond being overweight."  Then tell him your symptoms as clearly and as simply as possible.  Tell him how you are feeling.  Don't say "MS".  Just say what you feel and how long you have been feeling it and see what he says.

Good luck!  Let us know what this new doc says.


Gretchen       co-moderator MS board       diagnosed with MS July 2006


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 6/11/2008 10:24 PM (GMT -6)   
Hey Domanique

Well Gretchen covered things very well for u, but i wanted to echo her statement....don't go in and tell the docs u think it could be ms. Don't give them any leads for u'r diagnosis...just give them the facts as they are and answer any questions as clearly and quickly as u can. Remember, if u bog down in too many details...'it feels like how it felt when i had my blah blah surg and i just couldn't get any relief and i took blah blah'....because when u get bogged down so does the doc and he will lose interest in u'r story much sooner than u do. Hang in there friend and get this doc to listen to u. U'r absolutely right...if this feels like more than a weight prob then it likely is...and they need to give it full creedence. Best wishes and please do come let us know how it goes.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


carolynvb
Veteran Member


Date Joined Oct 2006
Total Posts : 540
   Posted 6/12/2008 12:03 PM (GMT -6)   
Hi Domanique,

I am so sorry you have been treated so awfully. I think at one time or another we have all experienced similar to what you describe. It has been a long road for me and I have experienced so many DR's and Rhonda is right. See where they go with your diagnosis before telling them what you think. I really do think the nature of many in the medical field is to become defensive when faced by a patient that claims to know what they have. A good Dr once told me research...you have the same spagetti in your head as I do! He is one of the exceptions though.
If you do not get the help you need maybe then it is time to address the posibilities in a very diplomatic way........... I am a researcher by nature. It is not enough to see black and white I want to understand all the shades of gray in between. I think this arose from not having a diagnosis for so long and having to work so hard to figure things out at the same time being so ill.
It was a bad mistake when I went in to my first appointment with my little notebook! It was even mentioned on the medical transcript!!!!!! she walked im with a note pad and mentioned she has researched on the internet!!!!!!!!! Hmmmmm toe rag that Dr was.
We should all be informed and empowered patients but we have to make it work in a way that is beneficial to us......
That is my 2 cents worth!!!!!

Hugs to you my friend and hang in there.

Carolyn
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