Visit with MS clinic Dr.

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Tapestryloom
Regular Member


Date Joined May 2008
Total Posts : 169
   Posted 6/12/2008 7:45 PM (GMT -6)   
Hi,
Yesterday I saw a new Neurologist to get a 2nd opinion. The Dr. was so nice. He had a very dry sense of humor and joked quite a lot. Sometimes I didn't know whether he was serious or not. He tested me differently than the 1st neuro.. He had me jump on one foot.. repeat sentences. I did fine on the 1st but messed up the 2nd one. He saw my films and said that they weren't "impressive" but that it was a good idea to do the evoked, BAER and EEG tests just in case. He said he would have prescribed medicine but I was nursing. He asked me why I wasn't following thru with the other Neuro and I just plainly said "We have a personality conflict". He told me that he has heard complaints from other patients so he "understood". I really admired his professionalism because he "shushed me" before I could say anything about the other neuro.. I forgot to tell him a few things about my history but I had carefully written down a summary of my symptoms on a piece of paper and he took it to copy. "This is crucial" he said (again, I didn't know if he was serious or joking)
So basically I had a one week break from the brain fog and now it has returned today. I got 10 hours of sleep last nite because my baby sleep till 6:00am. I have felt tired all day. I did go for a hike and again I didn't get that endorphin like "high" afterwards. sad
I have also experienced this sharp, intense pain (sorta like that electric shock pp describe) across the top of my left hand above my index and 2nd finger. I also have had a strange sharp pain on my left shin that comes and goes and a real muscle weakness kinda feeling. I'll keep track of this stuff in my log book. It may come in handy later.
Have a great nite all
Carolyn
I am a mother to 4 children; James 7 mo.'s, Davey 2 yrs, Dana 4 yrs, and Anne 9 yrs.  I am currently studying to become a natural childbirth educator.... and just trying to figure out where my priorities are right now.


carolynvb
Veteran Member


Date Joined Oct 2006
Total Posts : 540
   Posted 6/12/2008 7:58 PM (GMT -6)   
I am glad you liked the neurologist:) Makes a huge difference. I wish I could go out and hike. where do you live? I like to walk out in the countryside and enjoy the nature.
How are your family doing? Do you have a lot of help at home? How long do you plan to nurse? Reason I ask is might be really helpful to take some meds that the Neuro prescribes. Well Summer holidays start after tomorrow! means that I can sleep in a little if the little man lets me...Let us know how the test goes.
Nighty Night,

Carolyn

Tapestryloom
Regular Member


Date Joined May 2008
Total Posts : 169
   Posted 6/12/2008 8:05 PM (GMT -6)   
Carolyn,
I hike about 3 miles from my house. I live in CT.
My baby was very sick from Thursday to Tuesday. He had a fever of 104.7, dry heaves, runny nose, etc. I quickly put him in a tepid bath and called the Dr. I ended up taking him to the ER and got home at 2am
I plan on weaning him when he is a year old in October.

I forgot to mention that I'm goin on a mini vacation to Cape Cod. I will be bringing the baby and my oldest dd who is 9. I hired a sitter for the middle kids. Then my 2nd dd is going to Boston for an eye checkup. I'm going to meet my dh at the Dr.'s on Wednesday. He's taking the day off for the appt. We'll convoy back home with the 2 cars afterwards.

That's a whole other story..
Carolyn


I am a mother to 4 children; James 7 mo.'s, Davey 2 yrs, Dana 4 yrs, and Anne 9 yrs.  I am currently studying to become a natural childbirth educator.... and just trying to figure out where my priorities are right now.


carolynvb
Veteran Member


Date Joined Oct 2006
Total Posts : 540
   Posted 6/12/2008 8:11 PM (GMT -6)   
Wow lots going on with you.... I hope you have a fun time in cape cod always wanted to visit there. CT hot area for ticks be careful when you hike :) I am sorry dd is having to go to Boston for eye check. Why was the baby sick? Bug? 104.7 that is nuts poot little guy. Is he doing better?
OK hope you have a good evening tonight and get lots of sleep :)

Tapestryloom
Regular Member


Date Joined May 2008
Total Posts : 169
   Posted 6/12/2008 8:32 PM (GMT -6)   
okay I was going to go to bed but I'll fill you in just a little bit

My 2nd dd was born with congenital glaucoma. Her eye pressure should have been 12 and they were 40. That hi eye pressure causes damage to the optic nerves and if not controlled.. blindness
She currently has 20/200 vision in her left eye and 20/80 in her right with glasses.

Carolyn... My dh and I have made 115 trips to Boston which is a 2 hr drive in 4 years.. she has had 14 eye surgeries starting at 9 days old... I have been worried for her to the point where I'm afraid it's made me sick! She is a good little girl and very intelligent. I am trying everything in my power to save her vision..
Good nite


I am a mother to 4 children; James 7 mo.'s, Davey 2 yrs, Dana 4 yrs, and Anne 9 yrs.  I am currently studying to become a natural childbirth educator.... and just trying to figure out where my priorities are right now.


carolynvb
Veteran Member


Date Joined Oct 2006
Total Posts : 540
   Posted 6/12/2008 8:35 PM (GMT -6)   
I am so sorry. That is so hard for you both. I am going to keep you in my prayers :) going to bed too ....

Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 6/13/2008 6:25 PM (GMT -6)   
Friday p.m.
 
I am so glad you came across a neuro you are comfortable with.
 
Back in 1987, I was dx'ed by a local neuro.  He had a strong Greek accent.  I come from a family of accents, (middle eastern), and I could barely understand him.
 
So.....I went for a second opinion from  a neurosurgeon friend of  my father's, who scheduled a MRI, and reffered me to new neuro in same complex who he said "..was the man..." when it came to MS.
 
I went to see him, have NOTHING but the utmost confidence in him.
 
Lucky MS patient, John
DX'ed June 21st, 1987
 


Tapestryloom
Regular Member


Date Joined May 2008
Total Posts : 169
   Posted 6/14/2008 7:11 AM (GMT -6)   
Thanks John and Carolyn,
I know this disease is figured out by exclusion so I made an appt. with my Rheumatologist and they got me right in for this Thursday. I am having him check me out for Fibromyalgia. And I also wonder why my PCP isn't doing a lot of blood work??
I went for a hike this am and felt okay but still no endorphine high. My hips ache and my back ache when I get up in the morning.
I can't wait to go relax on the Cape with my 2 kids. I love all my children but sometimes its nice to get away for some "me" time.
Carolyn
I am a mother to 4 children; James 7 mo.'s, Davey 2 yrs, Dana 4 yrs, and Anne 9 yrs.  I am currently studying to become a natural childbirth educator.... and just trying to figure out where my priorities are right now.

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