I am sorry to hear of your symptoms and problems. ON can only be diagnosed by an opthalmologist. An opthalmologist can see if you have it during a routine exam. It is a condition or a syndrome and not just a symptom like vertigo. Vertigo is just that feeling of motion even when you are not moving. Optic Neuritis is inflammation of the optic nerve. It can have a couple of different causes but it is frequently associated with MS.
MS is usually diagnosed with several tests and it can take months or even years to get that diagnosis. Most need to have neurological symptoms that show up in an exam (reflex, strength, balance etc.), lesions on the brain or spine that show up on an MRI, a lumbar puncture that shows oligoclonal bands, evoked potentials, and blood work that rules out all other causes. You don't have to have MS type results in all of those tests. People can vary on what is affected.
I truly hope you do not have MS. Good luck with your quest for answers. Feel free to ask questions and welcome to the board.
I would be more worried about your anxiety about being sick. You seem very worried and that in itself is a reason for concern. General anxiety and hypochondriasis (being anxious about being ill) is also a very real disease that needs treatment for you to feel your best. I know that with MS, there is a wide variety of symptoms. It really depends upon the what part of the brain or spine has been damaged by demyelination. For some, vision problems are extremely drastic with total loss of vision or loss of color vision being very obvious. For others, it may be severe eye pain and double vision. Numbness can be even more varied than that. I would try to relax and just keep a journal of what you are experiencing and bring that to your doctor when you see him next. Hang in there.
"Be yourself. An original is always worth more than a copy."
Dx'd with Ulcerative Colitis (pancolitis) 2004 in remission...no meds!
2008...Multiple Sclerosis...Avonex once weekly
I was reading your questions about ON and I figured I would let you know about my experiences with it. For me, my eyesight got gradually worse over the course of about a week. At first my vision was blurred, then it progressed into almost complete blindness in one eye. Gradually my sight is returning, but the central area of my vision is the last to come back. I also have trouble with reds, at first they were completely voided from my sight, now I see them as orangy, i'm told the last thing to comeback is light sensitivity because as of now I still feel like I am looking through a thick cobweb, and it's been almost two months!
ON is really quite easy to diagnose as it was mentionned before. Initially your optic nerve is inflammed, so any opthomologist can detect it. If it has been awhile since your attack your pupil reaction will still be slower than the eye that wasn't effected, which means that it should still be able to be detected.
The most important thing is to NOT STRESS about what it means, because that will wear you down. Have they done an MRI on you yet? They did on me and found 9 legions, but still have not dignosed me. I find that we almost look for other symptoms when we are told that ON can be a big indicator of MS, but the best thing to do is to stay positive and enjoy your life.
Welcome to the forum. So you have had ON and you have 9 lesions and no diagnosis!!??? What is the hold up? Are you in Canada? I have heard that is much harder to get a diagnosis and treament there. I hope you can get on a progression therapy soon. Thanks for your post and let us know how you are doing?
I am in Canada, and yes it is quite difficult to get treatment here. You have to have at least 6 legions present on your MRI and at least 2 episodes in 2 years, this is my first one. So i'm taking part in a study, so hopefully I am not getting the placebo!
From what I have been told, severe cases of ON can cause quite a few legions on the brain, I haven't got to read the MRI with my neuro yet, but I am keeping my figers crossed that they may have all been caused from this episode, or that they are not active.
I know that this disease effects everyone differently, but I was told that at my age, I have a fairly good chance of having episodic intermittent MS. Which means that over time it may become progressive, but not necessarily. I am a 26 year old female, does anyone know if this is true? Or do you have any stories you can share with me? I'm just learning, and let me tell you, the 9 legions thing really freaked me out. I have also been told that legions can be caused from head injuries, which I have had a lot of as an athelete. Anyone have a take on this?
Hi again Spikes,
Yes it is true that generally the earlier you are diagnosed the greater chance you have that this will progress slowly. It is not always so but it can be and it offers a lot of hope. Does this second flare that you are experiencing mean your second episode? I would keep pushing for a solid treatment and not a possible treatment from a study. Most current researchers feel that the earlier you get on a progression therapy the better your chances are for avoiding disability.
I wish you the very best of luck. Stay as active as you can. Exercise and eat well and take good good care of your body. Again, I am glad you have found us here.
Oh no apology necessary. With my MS brain, it is so easy for me to misunderstand. I was just hoping you could be sure that you are getting the meds you need.
I am glad you are enjoying HW. We also have a live chat every Monday afternoon. Watch for reminders and topic anouncements.