Impromtu Neuro Visit... Bacoflen...

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D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 6/24/2008 6:10 AM (GMT -6)   
Finally caved in and emailed  my neuro's office with my current symptoms of my legs in severe pain by the end of the day, the current (5th major UTI in as many months) , the right side numbness etc...
 
His scheduler called yesterday with a cancellation appt and asked if I could be there in an hour... of course! Wow, what a shock considering regular appts take 2-3 mos.  And when I saw him he did the whole exam, listened etc... and said it's sounding like an exacerbation of spasticity... I feel short shanked in the calves like I'm in high heels all the time, my right leg from waist down is radiating pain to the ankle and "drawing up" so that it only feels ok if it's crossed over my left leg and practically pulled up to my chest... and it's always good in the morning after the nightly cocktail of Tylenol 3, Mirapex and Flexeril but I can't do those during the day and function or drive. So by days in I'm in agony again and the cycle starts all over.
 
So we talked about flares, told him I can't tell what's what... He said this is one... new symptoms, 24 hrs or more... sometimes they're uncomfortably intense sometimes not... asked if I needed to visit the ER (like with my arm...he said no, but beware if it combines with more heart attack symptoms, don't take a chance, being a woman though, we're different, so he agreed, make someone aware around you and then use your judgement, you'll know when it's really bad wrong.)
 
And now he's got me on Bacoflen 2x daily... what can anyone tell me about this one? I've never had any dealings with it, how does it differ from Flexeril? It warns against drowsiness so I'm a little hesitant to take it during the day... yet.
 
Thanks for listening...

Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3530
   Posted 6/24/2008 8:59 AM (GMT -6)   
Baclofen works great for me.  I love it.  It can make you drowsy but for me, flexeril is worse.   I did not have a problem and you shouldn't either with the provigil.  You might need a cup of coffee or tea.  Good luck.  It really helped me with the pain associated with spasticity. 

Gretchen       co-moderator MS board       diagnosed with MS July 2006


mystery reader
Regular Member


Date Joined Jun 2007
Total Posts : 257
   Posted 6/24/2008 5:23 PM (GMT -6)   
I am taking 20 mg of baclofen; 10 in the morning and another 10 at dinner time. I have only been on 20 mg for about 2 weeks. For the past two days I have skipped the morning dose and it was not a good idea. I do not notice it making me more sleepy and I am not taking anything for energy. It may be helping me with pain, but I am not sure it is helping with the actual spasticity.
Barb/mystery reader
Diagnosed April 2007
Started betaseron --  May 2007 -- experienced allergic reactions after 2 weeks
Started copaxone -- June 2007 -- stopped after 4 1/2 months;experienced  severe 5 IPIR's
Started tysabri -- December 2007
Stopped tysabri -- April 2008 (developed antibodies/severe reactions)


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 6/24/2008 5:32 PM (GMT -6)   
Well this morning I felt wonderful, the legs were alot less "short shanked" and the pain was less... and I skipped this morning because I wasn't sure of it's effects... I'm gonna have to wait til the weekend to check that part out... I drive too much to risk a drowsy issue again. But tonight the pain has returned so I'm looking forward to working with this one. It's also an affordable drug which is such a nice switch!
 
The flexeril has built up tolerance with me so that it takes 20mg at once to be half way effective. It'll be good to drop that for a bit and let this take over. Thanks for the input!
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


princesspierce
New Member


Date Joined Feb 2009
Total Posts : 3
   Posted 2/10/2009 1:30 AM (GMT -6)   
Say, have you read up on the side effects, such as hallucineations, siezures confusion, etc... This drug is used specifically for spinal injuries and multiple sclorosis. I'm 44. I broke C-2 when I was 22.  I've been working out a lot, 100 to 300 situps at the gym along with the rest of my weight training, 1-3 times a week. I work two jobs and go to school full time.  I really strained my neck a couple of weelks ago, when I shoveled for all the folks I love who are older than myself, about 4 households.  Tramadol nor flexorol helped my pain.  Vicoden and percoset made me way too nauscious(spellcheck).  I only take 2 per day, thus far. It's been three days now.  I am worried.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3530
   Posted 2/10/2009 8:28 AM (GMT -6)   

You DO realize you are posting on a Multiple Sclerosis board.  Most of us here have Multiple Sclerosis.  I am confused by your question.  Are you questioning the use of Baclofen for you??.....for us???  I have used it for a long time without any problems.  There are many on here that take it daily and long term. 

I understand that you are hurting and worried.  Have you talked to your doctor?  Good luck and I hope you are feeling better soon.


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


princesspierce
New Member


Date Joined Feb 2009
Total Posts : 3
   Posted 2/10/2009 9:36 PM (GMT -6)   
My doctor prescribed this for my chronic neck pain. I don't believe that I have MS, YET? I am very active, I waitress, work out, I'm very hyper, I go college full time, etc...I was concerned with possible side effects from percoset, vicadon(HOWEVER YOU SPELL THESE DRUGS),tramadol, and flexeril.  Now, I notice from websites that weight gain and halucinations are possible, GREAT.  I'm always dizzy and  nauceaus, but the other two side effects may throw me for a loop. Just now, I noticed that my pupils are HUGE. It looks like I partied all night(like I may have twenty years ago). Pretty freaky.  I feel like calling up my Dad, but no need to freak out my parents.  Does everyone get fat?? Hallucenigenic? and disillusioned??

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3530
   Posted 2/10/2009 10:53 PM (GMT -6)   

I am still confused as to your question?  If you are just venting, well that is fine.  I am just unsure how to respond. 

I have never had any hallucinations.  I am not disillusioned.  I lost 40 pounds the year after my diagnosis and I have kept it off.  (now for the next 40 pounds :) 

Do you or your doctor suspect you have MS?  Is that why you are posting here?  Do you need information on the diagnostic process for MS? 

Again, good luck with that sore neck. 


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


princesspierce
New Member


Date Joined Feb 2009
Total Posts : 3
   Posted 2/11/2009 12:58 AM (GMT -6)   
Tell you what, I really didn't come to your site to vent.  I was looking for input from someone who takes bacoflen.  I did find it quite odd that my doctor did prescribe it, although it is for spinal injury(mine's 20yrs old, though). I'm supposed to take more than 2 a sY.  I was having chest pains a little while ago, that could be from the aderoL(spelled wrong) not liking the bacoflen. I'm sure my doctor has her diploma, and all.  Drugs are a mystery and doctors really can only be sure ir'a a good one until it's the wrong one for their patient. So goo lick with that MS of yours. Perhaps someone else could tell me how bacoflen affects them. By the way, if I lose 40 pounds, I'd weigh almost 70 pounds.

theshultzgang
Regular Member


Date Joined Jan 2009
Total Posts : 38
   Posted 2/11/2009 9:27 PM (GMT -6)   
OK, time to jump in...that 40 pound side comment was just weird. We're supportive and kind here!
Stay at home Mom
wheat / dairy free & organic since 2007 -- amazing difference!
Diagnosed with RR MS 11/2001
Copaxone and starting LDN
Andrea :)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3530
   Posted 2/11/2009 9:52 PM (GMT -6)   
Thank you, Andrea.  You are very supportive and such a welcome new member.  I appreciate your posts.  You are informed and giving and I am sure others are benefitting from your willingness to share.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 2/11/2009 10:55 PM (GMT -6)   
Wow....i agree with Gretchen here. Thanks Andrea for jumping in here. Support is such an important part of this site and u've shown that here in u'r post! Thanks for stepping up on this.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


odettesmom
Regular Member


Date Joined Aug 2004
Total Posts : 274
   Posted 2/13/2009 8:13 AM (GMT -6)   
there is a website that i have found useful when it comes to meds:

www.askapatient.com

gives actual patients a voice on side effects and outcome of using meds.

linda
 
(mod note: just activated u'r link.)

Post Edited By Moderator (rhondab) : 2/13/2009 1:40:09 PM (GMT-7)


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 2/13/2009 2:41 PM (GMT -6)   
O nice site linda! Thanks!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*

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