Rebif shot~~~~next day

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20yearsandcounting
Regular Member


Date Joined Jun 2008
Total Posts : 100
   Posted 7/1/2008 7:03 PM (GMT -6)   
I take my Rebif 3 x's weekly.  Alot of time the next day (say 12 to 18 hours) later I feel crappy.  I sometimes think is this worth it? nono   I know it is worth it but, I feel nasty (healthwise, that is) sometimes. skull

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 7/1/2008 7:23 PM (GMT -6)   
Hey 20 Years
 
Well i'm not sure of the side effects related to rebif, but do know that other meds, avonex for example, do give u the same sort of issues. Try to pre-med with maybe tylenol and then maybe continue to be on that thru the period of time u expect to feel bad. I'm so sorry u must deal with this, but u'r so right...it's well worth it. Check out this link for the side effects u may experience.
 
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
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*I wonder how much deeper the ocean would be without sponges.*
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Willowmom
Regular Member


Date Joined May 2008
Total Posts : 88
   Posted 7/1/2008 9:46 PM (GMT -6)   
It is a balance though- quality of life now and preventing as much future disability and progression as we can. I think both are important. How long have you been on the Rebif? I switched from Betaseron (after 4 years) to Avonex. The prefilled Avonex syringe killed the next day for me, but now I'm on the kind you reconstitute and so far not too bad. Just a little tired and sore the next day. But it's just once a week instead of every other day. So maybe if it's really becoming an issue you could try switching to Avonex or Copaxone if you haven't already. Just a thought. Talk with your doc. I got an anti-inflammatory called Diclofenac to take with my injection. Can't take regular NSAIDS because they upset my stomach. This one works well. Willow

20yearsandcounting
Regular Member


Date Joined Jun 2008
Total Posts : 100
   Posted 7/2/2008 12:24 PM (GMT -6)   
Thanx so much you two. I really appreciate the help. I just love this place because now I'm NOT the only one feeling this way. I have been on Rebif 5 years. It is excellent to talk to all of you MS ppl because there just isn't a whole lot of people to talk to about this and I would have to travel so far to an MS group. Thanx gang with much love.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 7/2/2008 12:51 PM (GMT -6)   

I am so glad you are finding support here, Peg!  This is a great place for just that reason.  It was really nice chatting with you on Monday.  Keep posting??? 

 


Gretchen       co-moderator MS board       diagnosed with MS July 2006

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