MS seminar part two - heat

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Gretchen1
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Date Joined Jan 2007
Total Posts : 3518
   Posted 7/5/2008 11:31 PM (GMT -6)   
Ok here is the scoop on heat.
 
Many people with MS have a problem with heat.  This stems for the inability to well regulate body temperature.  Heat in an MSer translates to abnormal nerve transmission.  This is not perception, you will have a temporary exacerbation of symptoms.  It takes an increase of only half a degree for the abnormal nerve transmission to occur.  This can happen from fever/illness, or external heat exposure. 
 
Avoid outside heat and sun, hot baths and showers and saunas or jacuzzis. 
 
Cooling your core body temperature will return your symptoms back to baseline. 
 
Exercise and fitness level can help in core body temperature regulation.  It can also make you more tolerant of the heat. 
 
Ok, here is the most important part - STRATEGIES:
     * Keep hydrated - drink water or water based beverages, avoid alcohol and caffeine which will dehydrate
     * Modify activities to coolest part of the day, or break up activities with cooling breaks
     * cooling vests and scarves do work
     * exercise in a cool pool (< 82 deg. F)
     * pre - cool before exposing yourself to heat (cool shower, drink cold liquids, place cool packs or ice on neck)
     * plan ahead - be aware of where you can get cool should you over heat
 
I had never thought of pre-cooling.  If you can lower your body temp. that half degree, then you are buying yourself a bit of time out in the garden or at the beach or even in the shower.  I was also interested in hearing that being more fit will decrease all heat related problems.  Also, even though most cooling devices are vest types, the scarves may work better as there are more shallow blood vessels in the neck area.  The speaker recommended pre-cooling with a scarf device (or some other cool pack on your neck) then maintaining that coolness with the vest.
 
Ok!  Good luck!  Sunny and I in California are looking at a major heat wave next week!!  In my area we are looking at temps. to reach more than 105 degrees!!! I am not looking forward to that. 
Gretchen       co-moderator MS board       diagnosed with MS July 2006


casinokid80
Regular Member


Date Joined Mar 2007
Total Posts : 46
   Posted 7/6/2008 1:15 AM (GMT -6)   
thanks for the info g. yikes 105!!! hope you have an ac ;=)

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 7/6/2008 2:25 AM (GMT -6)   
Hey Soul Sister

Great job here!!! Thanks for this...sharing what u've learned with us all. U've done so much hard work in getting this all taken down in notes and then in relaying it here. U'r the best sweet friend! Great Job!!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


mystery reader
Regular Member


Date Joined Jun 2007
Total Posts : 257
   Posted 7/6/2008 10:12 AM (GMT -6)   
Thanks G! Hope you can stay cool. 105 degrees! Yikes!
Barb/mystery reader
Diagnosed April 2007
Started betaseron --  May 2007 -- experienced allergic reactions after 2 weeks
Started copaxone -- June 2007 -- stopped after 4 1/2 months;experienced  severe 5 IPIR's
Started tysabri -- December 2007
Stopped tysabri -- April 2008 (developed antibodies/severe reactions)


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 7/6/2008 12:39 PM (GMT -6)   
Again Gretchen, this information is wonderful and great tips...
 
This morning early (9am...) hubby headed out ot the beach to watch the Suncoast offshore Grand Prix and wanted me to come along, said I could cool off in the water... I shook my head sadly and said no, I know I'd be horribly miserable afterwardsbut I felt bad... he says, you used to sunbathe, etc... and I just had to say, no I know I shouldn't... well, it's 5 hrs later and he's ocming home now... and I keep thinking I could have pushed thru it and then you post this and I'm reminded again.... I would have been very very sorry.
 
why is it so hard to accept limits? I feel so wimpy having to take all this into consideration...
 
Thanks again though for getting this to us!
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


momofltlbrat
Regular Member


Date Joined Apr 2007
Total Posts : 164
   Posted 7/6/2008 12:39 PM (GMT -6)   
Thanks G, great info.  I never thought of cooling before venturing into the heat.  Wonderful of you to share all you learned.
 
Keep cool
Debbie

sandune
Regular Member


Date Joined Jun 2008
Total Posts : 83
   Posted 7/6/2008 1:13 PM (GMT -6)   
Thank You It was very informative.

photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 7/6/2008 4:00 PM (GMT -6)   
Thanks Gretchen for this and your last post, very good info!
 
I've said it before, and I'll say it again.  The cooling scarf is the only way this Canadian girl managed to survive the heat of Florida on our trip to Disneyworld!    It was THE BEST!!  I highly recommend having one on hand.  I received one from my local MS society and thought what the heck, this is so skinny!  But placing it in cold water plumped it right up, and rewetting it ocassionally through the day kept it cool.
 
 
Diagnosed with MS April 2006
 
Started Tysabri Nov. 2007


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3518
   Posted 7/6/2008 5:06 PM (GMT -6)   

Shar,

They also make these ones that have inserts that you put in the freezer and then wear.  The whole thing goes around your neck and part way down your chest just like an actual scarf.  It does not need to be wet nor does it get you wet.  It is really good for humid climates where the whole evaporation thing isn't working.  The inserts last for 3 or 4 hours.


Gretchen       co-moderator MS board       diagnosed with MS July 2006


Willowmom
Regular Member


Date Joined May 2008
Total Posts : 88
   Posted 7/6/2008 5:23 PM (GMT -6)   
Thanks Gretchen- great stuff! I have a vest, but I think I'll try a scarf. The vest actually weighs a lot and of course makes a big blue statement. A scarf could be more discreet and I like the idea of pre-cooling, I had never heard of that either. Makes good sense.
Photogirl- I did try some packs made with that stuff that plumps up in cool water. They were bra inserts- something to consider ladies ;) But I found that I had to toss them after a month as they got little dark spots (mold?) and you can't really throw them in the wash. How do you keep that scarf clean or are they just going to last for so long?
Someone in my support group showed how to make those with the crystals you buy at a gardening store (fertilizer free of course!) but I don't sew. Maybe i could manage to replace the crystals through a small cut and wash the scarf every so often- I can sew a few stitches if I must. Well, my brain is moving anyway. Willow

20yearsandcounting
Regular Member


Date Joined Jun 2008
Total Posts : 100
   Posted 7/6/2008 5:41 PM (GMT -6)   
LoL,,, Willow. Whe worries about her vest looking like a life jacket....Hey,,,if it helps with the heat...it is therefore, a life jacker for real..When she told me about the vests . Ty for all the good ideas Gretch... Cool off with the neck thing before I even leave the house....What an idea! My husband understands my intolerence with the heat but, I just don't know if he really gets how miserable it really is.

photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 7/6/2008 8:36 PM (GMT -6)   
Oh that sounds like a good idea Gretchen... any idea where I could find one with inserts?

Willow, your post reminded me why I haven't used that particular scarf since Florida, it has dark/mold? spots on it too.... lol
Diagnosed with MS April 2006
 
Started Tysabri Nov. 2007


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3518
   Posted 7/6/2008 10:51 PM (GMT -6)   
The moldy scarfs that you soak in water can be replace pretty easy.  I can get them at Walmart.  Check walmart, k-mart and target.  They are pretty mainstream now.  The scarf with the inserts can be purchased online at the same type sites as the vests.  If you google "cooling vests MS" you should get some good sites.

Gretchen       co-moderator MS board       diagnosed with MS July 2006


Willowmom
Regular Member


Date Joined May 2008
Total Posts : 88
   Posted 7/7/2008 8:18 PM (GMT -6)   
Thanks Gretchen- good to know they are more mainstream and I don't suddenly have to become handy with a sewing needle. I think I'll get a few for summer. And yes, the vest is a 'life jacket', hee hee, especially on a hot airplane! You guys are great- Willow
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