Spasticity question....

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 7/9/2008 11:01 PM (GMT -6)   
Hi all
 
I've read a lot about spasticity, but still am not sure about something.  I usually manage my lower leg pain pretty well with stretching, Clonazepam as needed, and the occasional spray of Sativex (prescription spray that contains THC).
 
However, when I overdo it, like today when I had to walk really fast for a couple blocks as I was late for a doc appt, and it gets worse, it gets me thinking, should I be more careful to not overdo it?  Or, if I walk more everyday, will it get less and less painful with the increased activity?  Usually I'm a real saunterer (if that's a word).  Maybe I should pick up the pace more and increase my endurance?
 
Thanks!
Shar
 
 
 
 
Diagnosed with MS April 2006
 
Started Tysabri Nov. 2007


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3521
   Posted 7/10/2008 3:54 PM (GMT -6)   

Hey Shar!

You have asked some good question here. I don't have the answer!!!  (shocking!! hehe).  Ok here is my take: I know that we are told to avoid over doing anything.  I would not go out and march around as fast as you can until you can't take the pain anymore in the hopes that you can increase your fitness level.  I would maybe try to walk a bit faster than your usual saunter  (I avoided the "saunterer" ;)  I would stretch and stretch as much as you can.  I had some horrible spastic calf muscles and the therapist had me doing a stretch where you stand with just the balls of your feet on a step.  You stretch slowly down, dropping your heals below the level of the step.  Then, you raise up standing on your tip-toes lifting your body above the level of the step.  They had me do this two or three times a day for twenty lifts.  Make sure you stop if you cramp or get sore.  Also you may want to try a magnesium supplement.  If you take calcium without magnesium you can make spasticity worse.  Ok that is all I can think of.

Good luck with that.  The step stretch seemed to help build some muscles for me as well as stretch them and I am pretty sure it helped me.
Gretchen       co-moderator MS board       diagnosed with MS July 2006


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 7/13/2008 7:43 AM (GMT -6)   
I am soooo glad you asked these questions photogirl!  I am suffering with the calf spasticity and I thought it was a crazy thought cos the pain eventually ends up in my lower back and radiating thru my whole right leg... but I finally got to the bottom of it last week when I was able to get enough pain relief and muscle relaxer in me and good nights sleep to wake up cramp and pain free... so that when the spasticity started I pinpointed the culprit and it's my right calf! I thought how  insane is this? ! 
 
My last neuro visit had him wondering if I've got anything else going on with my lower back so we did another MRI and it just showed degenerative disc disease (normal for aging) and the double scoliosis I've had congenitaly (word?) all my life so nothing new.
 
Thankyou for that exercise Gretchen cos I tried that out a bit and that's what makes it feel better. I just didn't know how often to be doing it... now to go get me a 'step' to do it with. :)
 
And to think when my neuro first asked me about spasticity,  I said what? He explained stiffness, cramping... oh yeah, I get that all the time, he said anything severe, anything out of the ordinary? I said no... that was before alot of weird spasms (new symptoms) showed up... boy do I know it now! :)
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


GranmomJB
New Member


Date Joined Jul 2008
Total Posts : 9
   Posted 7/14/2008 11:37 PM (GMT -6)   
Hi all....Spasticity is something I live with day to day...but I wish it was only in my legs...I have spasms in my stomach, my face, my hands, feet, you name it I have probably had it there.  I am on two antisposmatic(spell) medicine and it helps but nothing stops.  I wish there was a way to get rid of them.  i wish you luck...GranmomJB

photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 7/15/2008 1:16 AM (GMT -6)   
Thanks Gretchen, I shall give that exercise a try.  We don't have steps, but I'm sure I can find something to stand on, that hopefully won't collapse. lol.
 
D'awesome it's great to wake up from a painless sleep isn't it?  I tend to "fight the cure" my fiance tells me, and just go with it instead of taking things I know will help.  It's just hard to tell which nights will be painful with spasticity and which ones won't, and I don't like to to take things if I don't have to.
 
Wow that's a lot of areas to have pain in GranmomJB.  I'm glad meds help somewhat at least.  What do spasms in your stomach feel like if you don't mind me asking?  I've had pelvic floor spasms apparently as my colonoscopy was fine.  Now I'm having stomach pain and am getting tested for H. Pylori infection... but maybe it's spasms too?
 
Take care,
Shar
Diagnosed with MS April 2006
 
Started Tysabri Nov. 2007


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 7/15/2008 5:56 AM (GMT -6)   
Yeah, photogirl, it is wonderful to wake up totally refreshed.... but see I usually go thru a couple of days of the pain before I realize the stretches aren't helping, the walking isn't working or nothing's going to ease it off, so then it's like blasting them... and then it's all good.... it's one of the worst feelings that's developed.
 
The weirdest part for me is how fast this has exacerbated since the episode that sent me to the neuro that got everyone's attention. Prior that moment when my right hand quit working for me ( tremors, no fine motor control, semi-paralysis for pretty much 24 hrs or more)... I'd just had the usual periodic cramps, RLS, stiffness, IBS, some blurry vision (very intermitten), the constant migraines, several numb spots... but nothing super definiitve (or so I thought)... but since that one episode it's like I'm on an out of control roller coaster! I never know what's coming next!
 
And now this spasticity drives my legs nuts... so about twice  a week I finally can't stand (literally) and I blast it with the cocktail of pain and muscle relaxants and sleep aids... yes, a precarious little concoction but useful.
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 7/15/2008 8:35 AM (GMT -6)   

Good morning, and I too have a question about spasticity - and I know that this is likely a silly or just a basic routine question - but I guess I just need to hear it from someone else for re-assurance.  I get these severe lower back aches, and I am sure tht it is due to the tighning of these muscles.  When the back aches occur, my stomach begins to act up - to the point of being achy, some cramping, nausea, and well, I go to the bathroom more frequently. 

Will the back ache cause all of this problem with my stomach?

Thanks for your time, and have a nice day....

Gary


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 7/15/2008 4:22 PM (GMT -6)   
Hey Gary, actually I'd kinda like to know what someone else says on this too... because I get the lower back pain too but mine is coming from my legs, it creeps up from the calf to the thigh and then the lower back is out, which with my double scoliosis just exacerbates the situations but I don't notice a change in the stomach and GI issues, even though I regularly go thru those issues whether my back or legs are in pain or not... so I don't think it's silly at all. It's just so confusing trying to figure out what's doing what to where! :)
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3521
   Posted 7/15/2008 7:53 PM (GMT -6)   

Hey Gary and Deb,

I dont' really know but it does makes sense.  It seems to me that all those muscles are very closely associated.  I have heard that when a woman goes into labor, she has terrific back pain.  When you think about it, the uterus contracting which causes back pain doesn't seem that far off from back spasticity and intestinal distress both being caused by spasticity.  I am just guessing though.


Gretchen       co-moderator MS board       diagnosed with MS July 2006


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 7/15/2008 8:21 PM (GMT -6)   
Yeah I'm guessing you're right too, Gretchen, but I haven't been able to specifically connect those dots in my body yet... my GI problems can be ferocious and I won't be having nearly the painful spasticity as I usually have... they both seem to have a mind of their own. :)
 
But your thinking on the interconnectivity of the muscles makes sense to me, I can relate to the back labor from experience and when I connected the calf muscle stress to traveling up the thigh which encompasses the buttock which yanks the lower back and is all on the same side as the double scoliosis (I've got an "extra calcification" over my right hip that fuses the spine and the hip somewhat) issues... then that made sense to me.
 
Kinda like Newton's law about what goes up must come down or for every action there's an equal reaction... we're just full of them! :)
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


Willowmom
Regular Member


Date Joined May 2008
Total Posts : 88
   Posted 7/15/2008 10:17 PM (GMT -6)   

Hi guys- I was thinking about this post for two spastic days and wasn't going to revisit it...but since it's back up there...   Gary- while it's probably not your uterus ;) causing back pain, for sure it could be stomach muscles.   I went through the whole round of scoping and digestive tests two years ago.  Nothing found to be causing it.  After paying even closer attention and realizing that even our colon is a muscle, and dozens of other little muscles I was unaware of, I have realized that my stomach stuff is probably muscle spasms issues.  Like D, my lower back stuff seems to be related to my leg muscle, but lower thigh in my case.  All tugging on each other.  And like someone else that posted, I don't have much medical arsenal other than clonazepam.  D, I'm curious what you take on those days. I'm trying to avoid a new 'daily' med, like baclofen.  But this issue (along with wretched nerve pain) are on the list next time I see the neuro.  Willow


Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 7/16/2008 11:03 AM (GMT -6)   

Well good morning ladies......thanks for the information - the back pain and the muscle cramping seems to have subsided somewhat - maybedue to the fact that I swallowed down some muscle relaxants - and with this, the stomach ache/nausea has gone away in proportion. It makes sense to me too, that all of these muscles are all interconnected, so if the back muscles are acting up, it will hve an influence on other things.....now if it is MS related, or just the fact that I am 54 - I guess one would have to calculate this into the equation - Hmmmmmmm.....

Thanks again, and have a great day...

PS, Gretchen, last night you mentioned a drug for spasticity (no not the botox!!!!!!) - can you pass it on to me again....thanks

Gary


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3521
   Posted 7/16/2008 5:17 PM (GMT -6)   
No botox Gary???!!!! hahahaha ok then.  The med I mentioned is baclofen.  Good luck.  I hope it helps.

Gretchen       co-moderator MS board       diagnosed with MS July 2006


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 7/16/2008 7:45 PM (GMT -6)   
Hey Willowmom, I hear ya on not wanting to start another med... I got put on Bacoflen the last visit and to be truthful it's not affecting me much though I've only done it at night so far... for vacation I may do it in the a.m too and see if it helps but I'm not confident, usually I'll sense relief from something even if I'm halfing it's time.
 
I use a "cocktail" at night to deal with my legs... it's fairly simple but it works for me... 2 Flexeril, 1 Tylenol #3, if the RLS is bad, I'll throw in a Mirapex, and often I add 2 Calms Forte and 2 Hylands Leg Cramps with Quinine (natural).   The combination of these work well with me. The tylenol 3 is the only thing that has ever touched my nerve pain. No Lortab/hydrocodone, oxycontins, percoets, ultracets, Ultrams, or anything else they've suggested have helped (they just make me loopy and being an ex-Detox Tech Supervisor, I'm leary of major opiate addiction). It seems if I can get a really good night s sleep and wake up relieved I usually don't spaz til late the next day... if I get several nights in a row, then I may stave off a major flare. It's a crapshoot though.
 
Gary, I don't buy the "age" thing anymore... we all are aging but many much older than me aren't having these issues so yep, I'd say it's MS....the pain also has a life of its own in our bodies that no one else can really relate to except those of us who get it. So don't discount yourself, I'm 53 but this is the same pains I've been dealing with since around 40 so it  can't be because I'm 50+ cos I wasn't back then. :) Be good to you, hope you get help with the bacoflen... I'm hoping I can give it a fair chance on vacation this next two weeks! 
 
 
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3521
   Posted 7/16/2008 9:07 PM (GMT -6)   

It is amazing how different meds work for different people.  Tylenol does NOTHING for me, flexeril just makes me totally sleepy but doesn't help with symptoms.  I do like baclofen.  It does not mess with my head at all.  It tends to work better for me if I use it consistently.......seems to build up and work better.  Of course, I tend to use it as needed rather than long term. 

I have nerve and spasticity pain pretty much everyday.  It does not seem to be related to my day's activities. Just seems to be part of that wonderful world of nerve confusion.  If I work, if I rest.........it all goes downhill in the afternoon.  Luckily, it is pretty mild.  I can usually just slown down, put my feet up and get through it without meds.  For that I feel really lucky.


Gretchen       co-moderator MS board       diagnosed with MS July 2006


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 7/16/2008 10:40 PM (GMT -6)   
I hear ya Gretchen, it seems the pain is a daily part of life, some days are more intense than others... try as I might though, I had a couple of really wonderful days of NO pain during the day after great nights sleep... and not for this evening though, the spasticity in my right leg is as bad as it's ever been if I'm up and moving around. Now if I just sit, I'm fine... Oh crud! Can't do that though, 10 glorious days of vacation start tomorrow as me, hubby and son head for Kasilof, Alaska! Friends of ours have a Bed and Breakfast up there (only way we could afford to do it!) :) so we're finally getting there... looking forward to it.
 
I'm gonna really give the Bacoflen a good solid try, maybe it needs to build up in my system to work right and not having to drive for the next 10 days will be a good time to try it out. :)
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 7/17/2008 11:54 AM (GMT -6)   

Hi there - D'Awesome - you mentioned Quinine? Ithought that was for malaria??? Aslo interesting as it may be, Flexeril has been banned in Canada. But not sure why.

I have been looking into some natural remedies, and my neurologist referred me to a book to buy, that describes alternative drugs that are either good or bad for those who have MS.  Sorry , do not have the name of the book at hand. He did warm me to be cautious, and read and undertand labels, and you do not want to take medication that is going to boost your immune system...ie cold fx, etc.....

Gary


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3521
   Posted 7/17/2008 12:57 PM (GMT -6)   
Try googling things like "anti-inflammatory foods" and even "anti-spasmodic foods".  You get a lot of interesting information. 

Gretchen       co-moderator MS board       diagnosed with MS July 2006


Hummingbird Lover
Regular Member


Date Joined Dec 2007
Total Posts : 24
   Posted 7/24/2008 4:39 PM (GMT -6)   
WOW! I am posting on a couple of sites today! As I was reading the posts here I said, (to myself, of course lol) that's just what is going on with me! I had talked to my MS doc and you'll never guess what he told me, ok so maybe some of you will. He has suggested Botox!! I said, "How will making the wrinkles go away make my legs feel better?" I'm so glad I have a Dr. with a sense of humor! Anyway, he told me that Botox is being used for those with the "shock" problems and those with Spasticity in their legs. He gave me the info and I read it. I have decided to give it a try. He said that he has seen very good success with it. Botox lasts for about 3 month
and it relieves those spasms. Take care everyone and let's get beautiful "Marilyn Monroe" legs yeah
"All things work together for good to those who are called according to His Purpose." Rms 8:28
Rev. Adelle


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 7/25/2008 3:04 AM (GMT -6)   
Gary, why in the world would Canada ban Flexeril?  That's downright silly to me as it's non-addictive, simply a muscle relaxant... Soma is addictive... but can you get Zanaflex? Supposed to be sorta the same family, maybe stronger though in relaxing properties... I've tried it once, not been too impressed yet with it, but then didn't have much of a chance with it. Neuro has suggested we might switch becos my tolerance is getting too high to the Flexeril.
 
Yes, Quinine is good for malaria too, but it's also awesome for the restless legs. Neuro commented how the OLD legatrin actually used to have regulated Quinine in it, whereas now when you look at the Legatrin ingredients, it doesnot, and it's actually simply Tylenol PM... at nearly twice the price! So I just use the Ty Pm now. Legatrin is nothing more than that.
 
HBird, it's odd but Botox actually makes sense but I'm also afraid it makes sense that if Botox freezes out the wrinkles so that the muscles don't make wrinkles per se, then it might also make the muscles that twitch/spasm freeze into uselessness too... I'd be a bit wary on this idea. I guess it'd be interesting to try, but what if you did it, and it acted like a paralysis instead? Kind of a weird thought to me, I'm just thinking out loud here. :) Alot to ponder.
 
Spasticity has become my number one nemesis now in my right leg...  it triggers enormous pain on a regular basis so that a good day is if I get thru half of it without limping or spasms of pain at some point.
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


Hummingbird Lover
Regular Member


Date Joined Dec 2007
Total Posts : 24
   Posted 7/25/2008 6:18 PM (GMT -6)   

Thank you D'Awesome! That is something to think about! I had not looked at the fact of Botox "freezing muscles" I will talk to my Neuro. about it before I start. I hope you have more days NOT limping or in painful spasms than you do with! Thanks again!


"All things work together for good to those who are called according to His Purpose." Rms 8:28
Rev. Adelle


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3521
   Posted 7/25/2008 10:45 PM (GMT -6)   
Botox was a Godsend for me after my flare.  I would do it again in a heartbeat.

Gretchen       co-moderator MS board       diagnosed with MS July 2006

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, August 19, 2017 7:08 AM (GMT -6)
There are a total of 2,857,412 posts in 313,505 threads.
View Active Threads


Who's Online
This forum has 155117 registered members. Please welcome our newest member, Bubbles11.
363 Guest(s), 7 Registered Member(s) are currently online.  Details
dmonica, skeener, kentina, BillyBob@388, NiceCupOfTea, Octobrsky13, Uncle Harley


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer