Hello all, I'm Monique, 38 and from the UK. First of all, I feel a bit of a fraud posting in this section as I don't have a definitive diagnosis but the questions are probably better posted here.
For years (at least 21) I have had a major problem with fatigue, but certainly over the last 3 years other symptoms have started showing, widespread pain, ibs, constantly needing the loo, dizziness, one end of the bowel movement spectrum to the other and various other complaints.
After repeated visits to the Doctor, I was diagnosed with Fibromyalgia in August of last year (literally a day after I first heard of it!) the symptoms fit, but I remember talking with a woman I used to work with who had been diagnosed with MS, but I thought even though some of the symptoms matched what I suffered with, that MS was not a illness I suffered from. Until now.
Last week, my left eye went a bit blurry on the Wednesday and by Saturday I could only see light, no vision whatsoever. After several appointments at the hospital (A&E, opthamology and Rheumatology) I was finally diagnosed with Optical Neuritis. My opthamologist asked if I had been tested for MS and I explained that even my diagnosis of Fibro was perfunctory (basically, the doc poked me in a few places and prescribed me Amitriptyline). He immediately arranged for a blood test and an MRI. It was only today, after a week and a half, that I was diagnosed and was told I would need to have IV steriods and that my initial MRI of just my eyes was now going to be my eyes and brain.
That's not until Saturday. I have another 4 days of worrying myself stupid about my job (sack me, please) my house and what happens next. The thing I am most worried about is the steroid IV and what to expect.
Sorry, I can wibble for Britain at the best of times, but I needed to get this off my chest. Any advice would be most greatfully received! (hugs)