New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Denjski
Regular Member


Date Joined Aug 2008
Total Posts : 105
   Posted 8/3/2008 6:44 PM (GMT -6)   
Hello everyone...My name is Dennis and I live in central upstate NY....As you can tell by my name I'm male and have two illnesses that are more commonly found in women..sometimes I think I'm paying off some karma debt.
 
I'm really wondering how common is it to be afflected by both MS and IBS...A lot of the symptoms are very similar...MS can cause bowl problems, depression, anxiety, lethargy and so can IBS.....If anyone wishes to share, please do so!

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 8/3/2008 7:22 PM (GMT -6)   

Hey Dennis!!

Welcome to the board.  I am glad you posted.  I don't know of anyone here with MS and IBS.  Our other moderator has IBS but no MS diagnosis.  She is in limbo on some neurological stuff.  I just have MS but I have the bowel junk that goes with MS as you read in the other post. 

I look forward to hearing more about you.  Tell us as much (or as little ) as you would like.  How long have you had MS?  Are you on a progression therapy?  What are the symptoms you deal with? 

Again, welcome to the board and I hope you find support here.


Gretchen       co-moderator MS board       diagnosed with MS July 2006


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 8/4/2008 11:08 PM (GMT -6)   
Welcome Dennis you've found a great place for info and support.

I do have IBS and MS. I was dx'd with the IBS back in '96 just about the time the MS symptoms cropped up however it's really hard to tell if it's just not part of the mix except sometimes nothing else except that is going on. For me, it's like a cycle every month (which since age 34 I haven't had the other cycle due to being precancerous). So now it's the IBS and like clockwork, I go thru the gamut from top to bottom, pain and all.

The only thing I've found that does seem to ease some of it so it's not as severe, and it doesn't last as long as it used to, is a supplement regimen that benefits MS that I found in the book: MS A Self Help Guide to Its Management by Judy Graham It's on Amazon, cheap used. But the Evening Primrose, Fish Oil/Borage Oil/Lecithin combinations help alot with the bowel health and spasms for me. The rest is more bearable now.

However in the midst of a flare, there's just no mercy. It's all MS then. At least this is my experience so far.
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


Denjski
Regular Member


Date Joined Aug 2008
Total Posts : 105
   Posted 8/5/2008 2:33 AM (GMT -6)   
hello to everyone agin....to D'awesome, I know what you mean about the flaring up, just went thru one., it just came out of nowhere the thing about MS and IBS is that the MS will cause anxiety and stress influencing the IBS, even when there is no real cause for the stress to occur...I become really, really constipated to the point of where it affects my thinking and then there is the pain invovled, not real bad but there for a whilke.....I have to take laxitives, and when they work quickly I feel so much better, but sometimes they take a while, and when they do it is a true adventure on the seat...but when its over, I feel close to normal,,or at as least normal as I can be..and..there are weeks that I am so normal its scary....no laxitives, just a thought, "oh, I have to go to the bathroom"....no strain at all, and then its back.......I have always thought if an angel of God appeared before me and said that God would heal only one of my diseases....I would say heal the IBS, I'll deal with the MS
It seemed like a good idea at the time


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 8/5/2008 11:20 PM (GMT -6)   
Like I said I'd stll suggest the supplements, it's alleviated the severity of the constipation for me, the other half of the pendulum is probably compounded by the stressors of MS so I just deal with that. I don't do laxatives ever so far.
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 8/6/2008 11:17 AM (GMT -6)   

Dennis,

I want you to think about something here.  We have had people here that were first diagnosed with IBS that were later diagnosed with MS.  Please remember that I am trying to be helpful here and I am not in any way trying to minimalize what you are experiencing.  First, IBS is not a disease, it is a syndrome or a series of symptoms that indicate a functional problem with the colon that either manifest as chronic diahrea or constipation or both.  It could be that MS is causing your IBS.  If you have a lesion on your spine or low on your brain stem, this could be effecting the nerves that are in charge of the smooth muscle contractions of your colon and large intestine.  If the stool takes too long to pass through the colon, then too much water is absorbed creating dry, hard to pass stool. 

I would really talk to your doctor, preferably your neuro, about your bowel problems.  There are a whole host of quite serious problems that can occur with untreated bowel problems.  This is typically called slow transit or colonic inertia.  It is one of those MS situations that needs to be constantly monitored to insure your over-all health.  Certainly, occasional laxatives will not hurt you and can prevent an impaction.  You should probably consider using a fiber supplement on a regular basis.  Fiber, like metamucil carries moisture down in the colon that is not re-absorbed so that the stool does not get so dry.  It can truly keep you regular so you are not getting so constipated.  Also, Mira-lax or polyethylene glycol can be used long term.  It is an over the counter med.  and for most is used short term but folks with MS can use it long term with good success.  You need to make sure you are drinking lots and lots of water.  Even slight dehydration can cause some horrible constipation.  Also, any excercise you can manage is always helpful.  Walking really stimulates colonic movement.  Try short walks once to three times a day. 

I am telling you all this so you can make sure you get this consistently managed. We have MS folks here that needed hospitilazation with serious impaction.  Occasionally removal of part of the colon surgically is a treatment as well.  It can be a very difficult to manage situation due to the fact the the colon is just not functioning as it should due to nerve problems from MS damage.

Sorry this was so long.  I hope you find this helpful.  Again, consider the fact that MS could be causing your IBS and that IBS is not a disease initself but a series of symptoms very possibley caused by your MS.  I wish you the best of luck in managing all this. 


Gretchen       co-moderator MS board       diagnosed with MS July 2006


Denjski
Regular Member


Date Joined Aug 2008
Total Posts : 105
   Posted 8/6/2008 10:39 PM (GMT -6)   
Yes, the slow colon...I forgot about that issue with MS...my brother has been dealing with colon cancer for almost 5 years...still alive and kicking

Those darn colons!!! I have enought problems!
It seemed like a good idea at the time


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 8/8/2008 8:47 PM (GMT -6)   
Excellent post Gretchen, you just explained one of my most embarassing symptoms in the most dignified way! and yes, too, I was as you can dx'd before the MS, but then everyone was ignoring that part as nothing definitive had occured. Now I think it's just part of the MS. :-)
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


Denjski
Regular Member


Date Joined Aug 2008
Total Posts : 105
   Posted 8/8/2008 10:57 PM (GMT -6)   
I just wanted to say that I'm very careful what I eat, plenty fiber, raw veggies, bread that can also be used as roofing shingles, ice tea, watermelon, fruits...as for excercise on a good day I can 10 miles on my mountain bike on the Erie Canal, I used to be able to do 20 5 years ago...you know on good days everything works........its like I'm completly normal, then everything comes back and I don't even know why
It seemed like a good idea at the time


tkelly3287
Regular Member


Date Joined Jan 2007
Total Posts : 142
   Posted 8/9/2008 8:57 PM (GMT -6)   
yeah I have had some IB issues and I have recently read an article connecting MS and IBD. Basically to summarize it said that if you have IBS or IBD you are a little more likely to have MS. Weird..... The gut has a lot to do with the body as a whole. very interesting stuff. Weirder still is I never connected my Bowel issues to my MS and now I have a WHOLE NEW can of worms to open with my neuro next visit.

Denjski
Regular Member


Date Joined Aug 2008
Total Posts : 105
   Posted 8/14/2008 10:39 PM (GMT -6)   
to tkelly....  and I think it has to do more with the brain, as  if, how can I put this...think of the actual gray matter as hardware, with those lovely axons wearing apart, and with IBS-D its the messages being sent from the brain...,
 
 as for our brain .is there something wrong with our DNA blueprint for ours so they weren't assembled correctly?And  MS doesn't start until later in life, with IBS its there as a child
It seemed like a good idea at the time


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 8/15/2008 6:10 PM (GMT -6)   
Hey Dennis!

I LOVE Gretchen's post! She so perfectly explained this whole issue. I have IBS and no ms but had some funky ms-ish symptoms...still in limbo but no ms!!! I can tell u the way this IBS was explained to me was that there is a brain/gut dysfunction. Somewhere along the way the nerves aren't getting the full message to the bowels. As Gretchen explained, this can be from ms or can be an issue on it's own...but remember that on it's own it is just a dysfunction. It is important to discuss this with u'r neuro and try to decide together whether this is ms or stand alone IBS so u may properly follow it. I take Fibercon each day and when i'm finished with my bottle of that i'm supposed to switch to Bene-Fiber. I'm not sure why, but apparantely that's what my doc feels is better. I don't drink a lot of water...er...none...and i DO have probs even with the fibercon. Gretchen is superb in caring for herself in even the most minute ways...she is giving u great advice! Try some of her suggestions and see how they work for u. I see that u'r already getting veggies and exercise...BRAVO U!!! Keep at it friend. Bring this up to u'r neuro if u haven't and see what path he/she may want to persue. Take care friend!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


tory2457
Regular Member


Date Joined Jan 2007
Total Posts : 380
   Posted 8/20/2008 7:46 PM (GMT -6)   
a helpful thread for sure. I remember when I questioned having a bladder problem. My neuro said he doubted it because my MRI's didn't show any lesions that would suggest that. Which made sense.

Since I take lots of antibiotics I also take a good probiotic called Theralac. My neighbor has IBS and Chronic Fatigue and takes Theralac now (in lyme treatment s) and said Theralac seems to help.
Maybe it can help others here?
theralac.com
best tory
 
 
 
I activated your link.

Post Edited By Moderator (Gretchen1) : 8/20/2008 9:18:52 PM (GMT-6)


fernunplugged
New Member


Date Joined Sep 2008
Total Posts : 1
   Posted 9/18/2008 12:31 AM (GMT -6)   
Hi Dennis and all,
I have MS and IBS. What I have been told with IBS is that it is aggravated by alcohol, caffeine, chocolate, and dairy. Further, stress aggravates it while exercise helps. For me, I have the worst days when I had too much of those four. I treat it as if I have a maximum allowance a day of those four, and if I stay within my allowance I'm pretty much ok. It's when I go outside that allowance that I pay-- such as the day after eating pizza and another meal w/ dairy or.... a day after drinking with friends.

I'm in my 20s so those are basically all I'd like to eat if I could :) But seriously, I stopped taking any laxatives or anti-diarrhea medicine. My doctor explained it like this-- those medicines actually make things worse by swinging your system to one extreme or the other. I don't think I've taken one of those in nearly 2 years. The main thing I do is I always have water with me; I only drink coffee in the morning which seems to actually make things pretty regular in the morning w/ the bowels; and I take 3 fiber supplement pills 0.52mg/pill (x 3 pills) of psyllium fiber-- I can't remember if it's Fibercon or what. I tried a bunch of others but this works and it's the most cost effective method. I try to always take it at lunch or I do seem to notice if I take it too late.

Now that you are talking, I think it's likely the MS is related to the IBS though I honestly have no clue anymore. Anytime I have any issue, I think it's the MS lately. I don't read MS books by the way if I can help it so that I don't exacerbate the thinking everything is related.

Anyway- let me know if anybody finds a decent article linking the two together or gets good information from their doctor. Thanks everybody! I know I'm not alone.

Denjski
Regular Member


Date Joined Aug 2008
Total Posts : 105
   Posted 9/18/2008 6:56 PM (GMT -6)   
Hello Fernunplugged.....I hate to think what was unplugged! I'm in my 50's and I need to be careful also with dairy and the rest....My serious beer drinking days are long past...but I still enjoy several single malt scotches OR cognac once a week...pizza can be ok depending on the grease factor of the cheese and sausage...I would rather have a garlic pizzza with spinch and roasted red peppers witha nice sprinkling of parmesan cheese...it all comes down to everything in moderation, and I be fine...I still also go out on my mountain bike, no more hills or actual mountains anymore, and the excercise can help a lot

It is stress that can really cause my IBS-D to really be a problem....and the stress also affects my MS and then the MS starts to afffect the IBS and the IBS then affects the MS...pretty nasty, uh?...I try to live as stress free as possible, and of course you know how easy that is...

There are times I need to use a suppository to give things a push...those suppositories have made my life much better...I eat high fiber foods, the supplements make me feel like I have to be on the toilet all the time!
It seemed like a good idea at the time


healing spirit
Regular Member


Date Joined Mar 2008
Total Posts : 177
   Posted 9/19/2008 11:23 AM (GMT -6)   

I have IBS and MS.  I was diagnosed with the IBS (constipation part) 5 years ago and was just diagnosed with MS this week.  The last time I went to my GI Doctor and told him they were checking me for MS, they backed off the "you need a colonoscopy again" statement.  I had been refusing for a year to have one.  I take 250mg of magnesium and that resolves my problem.  I found this out on my own by trying magnesium for my fibromyalgia.  It keeps things moving. 

Cindy


Denjski
Regular Member


Date Joined Aug 2008
Total Posts : 105
   Posted 9/19/2008 12:47 PM (GMT -6)   
Hi Cindy..I take 800mg of Magnesium a day...400 in the morning and night...and it does help depending what state of health my body is in at the moment...have you had to deal with muscle spasams? both calcium and the magnesium will help with that also...BTW, I know what a pain in the butt those colon probes are  {sorry could not resist the pun}, but they are yeah   helpful...my brother has beeen dealing with colon cancer for about 6 years, once my Dr. heard that its been to the probe every two years!!
 
Do be careful, the MS and the IBS have a way of feeding off each other

(Mod Note: Deniiiiis!!! Family forum...keep it clean friend.)

Post Edited By Moderator (rhondab) : 9/19/2008 2:47:01 PM (GMT-6)


mystery reader
Regular Member


Date Joined Jun 2007
Total Posts : 257
   Posted 9/19/2008 8:42 PM (GMT -6)   
Hi! may I join the club? I have both. I was dx with IBS about 12 years ago and just had my third coloscopy recently, and I was dx with ms on Mrch 29, 2007. I will try the mangesium. It is just sitting in my cupboard.


Barb/mystery reader
Diagnosed April 2007
Started betaseron --  May 2007 -- experienced allergic reactions after 2 weeks
Started copaxone -- June 2007 -- stopped after 4 1/2 months;experienced  severe 5 IPIR's
Started tysabri -- December 2007
Stopped tysabri -- April 2008 (developed antibodies/severe reactions)


nursekatb
Regular Member


Date Joined Apr 2008
Total Posts : 43
   Posted 9/19/2008 9:00 PM (GMT -6)   
Seems like there are alot of us out there with both. I was dx with IBS 10 years ago and with MS earlier this year. I was supposed to have a colonoscopy 10 years ago when I saw the gi doc, but I wimped out and didn't do it. But it sounds like I won't have too much longer before I will need to get one because my mom was just dx with colon cancer this year too. I notice that my IBS kicks in when my MS symptoms start to act up (at least that is how I see it happening). Which comes first I have no idea!
Diagnosed with MS March 2008
Avonex         


Denjski
Regular Member


Date Joined Aug 2008
Total Posts : 105
   Posted 9/20/2008 12:12 PM (GMT -6)   
Somebody mentioned they had read an article linking IBS-D to MS.....you are born with the syndrome, but the MS can developed much later...as for which one comes first, is it the chicken or the egg? does the anxiety caused by your MS trigger your IBS symptoms or does the stress caused by the IBS syndrome trigger an excaberation of the MS?
It seemed like a good idea at the time


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 9/20/2008 1:57 PM (GMT -6)   
Hehehe Dennis, you are making my head spin. 

Gretchen       co-moderator MS board       diagnosed with MS July 2006


leresch
New Member


Date Joined Feb 2010
Total Posts : 7
   Posted 6/27/2010 7:03 PM (GMT -6)   
Hi Dennis,
 
    I was dxd with MS in 1998. I was 26. I had the worst exacerbation I ever had in 07' which landed me in the hospital for a month. At that time I was dxd with RLS & IBS. Much like my MS,... the RLS & IBS seem to have flares as well. Mainly STRESS for me. That has been my experience. Our brain is the control center,.. & because of the lesions, I have ALOT of problems. I was on Rebif in 07' & appear to have not done well on that I know. I'll NEVER forget the doctor from the Rebif Manufacturer asking me if I had RLS & suicidal thoughts (both of which I had). That's when I knew the effects that have been reported while on these powerful drugs that they do not know alot about. Interestingly, a friend with MS recently sent me a study they did,.. stating there are 2 types of MS. One that responds well to interferons & one that does not. That explained to me why I do so well on Copaxone & he does so well on Rebif (I also had a VERY bad reaction to Beteseron in 09' & have also been on Tysabri). Notice how the doctors are quick to take everyone off of their injections when they seem to not be doing so well?  I get mad & tell my boyfriend: I see the BEST MS neurologist in NY. What a joke. How can someone be a "SPECIALIST" in a field like MS that has no cure & they do not know what is causing it. I am just 38 years old & have suffered this dreaded disease for over 12 years. I'm not gonna color it rosy like everyone else does,.. because IT IS NOT. I am suffering MS from an adverse reaction I had to the hepatitis B vaccination in 1998 when I worked at a State University Hospital. To prove my point, I won my case with the Federal Vaccination Compensation Act. My medical records proved that fact. Sorry if I sound bitter. Perhaps I am.

Nolivas
New Member


Date Joined Aug 2014
Total Posts : 1
   Posted 8/10/2014 5:32 PM (GMT -6)   
D'awesome said...
Welcome Dennis you've found a great place for info and support.

I do have IBS and MS. I was dx'd with the IBS back in '96 just about the time the MS symptoms cropped up however it's really hard to tell if it's just not part of the mix except sometimes nothing else except that is going on. For me, it's like a cycle every month (which since age 34 I haven't had the other cycle due to being precancerous). So now it's the IBS and like clockwork, I go thru the gamut from top to bottom, pain and all.

The only thing I've found that does seem to ease some of it so it's not as severe, and it doesn't last as long as it used to, is a supplement regimen that benefits MS that I found in the book: MS A Self Help Guide to Its Management by Judy Graham It's on Amazon, cheap used. But the Evening Primrose, Fish Oil/Borage Oil/Lecithin combinations help alot with the bowel health and spasms for me. The rest is more bearable now.

However in the midst of a flare, there's just no mercy. It's all MS then. At least this is my experience so far.


What does the flares up feel like with MS? I have been feeling those last year, my back and back of neck gets real hot, it use to react whenever I would consume something but now it only flares up when I am stressed out. But I have been getting bloatness most of the time after eating, and I change everything, I mean everything, I eat homemade chicken soup I make, chicken, broccolli,a nd potatoes.

LSE123
New Member


Date Joined May 2015
Total Posts : 1
   Posted 5/15/2015 5:08 PM (GMT -6)   
I've been told I most likely have IBS and I have MS as well. However, since I am pregnant at the moment my GI is unable to rule out any IBD. I've had MS for many years previous to experiencing IBS issues. However, I don't have constipation at all. I actually seem to have the opposite to the point were I keep fiber intake at a minimal. I eat less then a cup of fruit/veggies a day unless I want to spend my life in the bathroom or worse end up with abdominal cramps. Legumes, lactose, nuts and whole grain wheat products are also something I avoid. When, I asked my neuro if my digestive issues were MS related he said he seriously doubted it, and my GI also agreed.

Now whether this is truly the case I have no idea. However assuming everything is MS is a dangerous path to take. Sometimes you can have other things wrong, and should take the time to figure it out. It's super easy to just say oh it's MS, but sometimes it's more complicated. I Ignored my digestive issues for months before I was pregnant because I assumed it was MS. If I'd just went to the doctor I would by this point know exactly what's wrong (whether it's IBS or something else), but now I'm pregnant and have to wait. Obviously, my situation isn't common, but its still important to get to the bottom of things.

ozarker
Regular Member


Date Joined Nov 2013
Total Posts : 88
   Posted 5/16/2015 3:23 PM (GMT -6)   
I can't remember if I responded to this question. I have a laundry list of illnesses that begins with MS, Fibromyalgia, IBS, Gastritis, Graves Disease, Osteoporosis and Osteoarthritis, Degenerative Disc Disease, Dry eyes and mouth which led to Periodontal disease ( a gift from the MS ) and a few odd ball things from the MS.

It's a real balancing act to try to keep everything under control. It's especially hard when the IBS and the Gastritis are attacking at the same time.

Good luck.
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, October 21, 2017 3:42 PM (GMT -6)
There are a total of 2,885,275 posts in 316,582 threads.
View Active Threads


Who's Online
This forum has 157700 registered members. Please welcome our newest member, PixelKind.
388 Guest(s), 10 Registered Member(s) are currently online.  Details
Nolan1654, Georgia Hunter, imagardener2, Lapis_29, Wishtobewell, dacarte3, Wisco woman, PA_grandma, MacroMan, Gram


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer