well, i finally got registered here and i probably wont know how to get back to see your answers. so will somebody email me to tell me how? Im not diagnosed but truly believe i have ms and have believed it for over 25 years. when I was 23 i had a little numbe place on my left eye. just had a baby and they gave me an MRI. found something and told me it was a tumor and that i needed to get my affairs in order. I freaked!!!!!!!!!!!!!!!! when i got to the neuro , he told my husband that it had to come out. I refused. I went for a second opinion. He said that it was not a tumor , but a cyst and that it had b een there for ever. from conception.
So after my husband divorced me because he had an affair, because he could not deal with me dying. I took my 2 babies and went on with life. I went to age 33 before i started getting really tired and could not lift anything without bringing on numbness in my upper extremeties and a headache and blurred vision. If i would set out it goes immed away. They did a LP at 23 y/o and found nothing along with every other test for ms. So just someone saying it i believe i have it.
no Dr. has ever dx with it because i walk, talk, and work. I have an MRI every year to follow the cyst. Wouldnt they see something on that? Im a nurse and have went over my symptoms until im sick. Now if i lay down, when i wake up my left arm is dead, if i sit up it comes back immediatly. i have twitches in muscles, weakness, dry eye, and when i lay down i have shocks in my neck that feels like current. If i fall to sleep with my head down in a chair everything becomes numb , until i get up. If i tilt my head to the left it goes dead.
Anyone else ahve positional numbess?
Im sorry to post here when I have not been dx. but i am scared. I have 6 kids. from 25 to 3 and im really scared here.
Go to neuro next friday.
(Mod Note: I've removed your email for your protection. I will email you help on getting back on, but please place your email in your profile once you return.)
Post Edited By Moderator (rhondab) : 8/23/2008 2:43:09 PM (GMT-6)