newbie question

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

notinKansasanymore
New Member


Date Joined Aug 2008
Total Posts : 16
   Posted 8/6/2008 5:32 PM (GMT -6)   
confused   I am new here and I have a few questions. I lost two weeks of work last February with extreme muscle pain and weakness. My doctor set up an appointment with a rheumatologist to rule out lupus. After a thorough exam she ruled out lupus, diagnosed fibromyalgia and gave me a letter to give to my dr. suggesting a follow-up with a neuro for possible MS.
 
I have not yet been able to schedule a neuro appt, (too much time off already in Feb.) but I am wondering a few things over the past few months. I can think back to my jr. high years when I started experiencing extreme fatigue, IB, headaches. More recently (within the last 10-12 years) I can recall periods of dizziness, pins and needles sensations from my head to my toes,numbness in arms and face, creepy-crawlie feelings, memory loss, loss of cognative thinking(ie staring at my PC at work wiithout a clue), not completeing sentences because I have "lost" the words...the list goes on and on. Most of these symptoms come and go except for a saucer sized spot on my back that always has pins and needles feeling, and muscle stiffness. I have also developed some muscle cramping in my lower legs and especially my toes. I know that everyone's symptoms are different and that MS is hard to diagnosis but how many of you thought that these things just "happened to everybody", MS or not?
 
I know that I have been putting off trying to get a neuro appt. I keep telling myself that my symptoms aren't that bad(except Feb. was the month from He!!) and that I just can't take any more time off from work.(Used all of my sick days and almost all of my vacation. sad ) Little bit of denial creeps in there too.
 
Anyway, thanks for listening (reading :-) ) I have been reading a great many of these posts and you are all so helpful and supportive.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 8/6/2008 7:12 PM (GMT -6)   

Hey Kansas (cool name by the way)

Well you certainly have a lot going.  You do have symptoms that seem to match some of the usual MS symptoms.  But, as we always point out here, there are many diseases that mimic MS.  Fibro is one of them. 

I would, when you get a chance, see a neurologist who can do a work up for MS.  I don't understand your question, sorry (lol) perhaps my MS brain is a bit tired. 

Please feel free to ask lots of questions and post as much as you would like about what is going on with you.  We have many people who are in limbo and don't have a MS diagnosis.  If you indentify with the symptoms and want to give and receive support than you are welcome.  Good luck and let us know how you are doing.


Gretchen       co-moderator MS board       diagnosed with MS July 2006


notinKansasanymore
New Member


Date Joined Aug 2008
Total Posts : 16
   Posted 8/6/2008 9:08 PM (GMT -6)   
Thanks Gretchen. I do know that Fibro has a lot of symptoms similar to MS. Trying to find what overlaps and what doesn't.

I am sorry about the way I worded the question. What I am trying to say is that I have had a lot of these symptoms for so long that I've just learned to live with it. I didn't realize that everyone doesn't get the pins and needles feelings, the dizziness, the muscle pains, etc.

Is it possible to have MS without experiencing Optic Neuritis? The rheumatologist sent me for an eye exam and that dr. just about ruled out MS because there wasn't any evidence of Optic Neuritis, even without a history of my other symptoms.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 8/6/2008 10:08 PM (GMT -6)   
Aaaahh I got it now.  Yes it is not normal to have pins and needles.  There is a nice and equally confusing answer lol.  If optic neuritis was THE indicator for MS, then it would be real easy to get or rule out a diagnosis.  There are many many people who have MS that do not have optic neuritis.  I did not have it at first.  I eventually had a run in with that but it is not necessary for a dx. 

Gretchen       co-moderator MS board       diagnosed with MS July 2006


Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 8/7/2008 6:36 AM (GMT -6)   
Thursday
 
I also agree...great name!!!!
 
Have you had an MRI yet?
 
Hope you can SOMEHOW get time off to see neuro.
 
Thoughts are with you.
 
John
DX'ed June 21st, 1987
 


notinKansasanymore
New Member


Date Joined Aug 2008
Total Posts : 16
   Posted 8/7/2008 6:00 PM (GMT -6)   
Thanks, John and Gretchen, for your replies.
I took a look at the Fibromyalgia section of this website and couldn't believe all the symptons that would overlap with MS. I thought fibro was only pain and tenderness at the trigger points.
Have a lot to learn about both I guess.
I know the next time I have a real flare up it will force me to the doctor and then on to a neuro. I go to bed every night wondering if tomorrow will be the start of another episode like the one in February. I am saving the last precious few vacation days just in case....
Also, I don't have the greatest insurance and I know that some of the tests for a dx would have to be paid out of pocket. Hmmmm, if I were only indepently wealthy..... :-)

flutterbug
Regular Member


Date Joined Jul 2008
Total Posts : 31
   Posted 9/13/2008 7:21 AM (GMT -6)   
I had my eyes checked and I do not have optic neurititis. My sight  is fine except for blurry vision sometimes but they said I have occular migraines. Anyone else dx'd with occular migraines?

shaun/shan
New Member


Date Joined Sep 2008
Total Posts : 3
   Posted 9/14/2008 10:32 AM (GMT -6)   
MS has so many symptoms, and so many different ways to diagnose it. My husband has 11 people in his family with MS and it took 1 year to diagnos him because they couldn't find his leisions They did the eye exam this shows slowing from the signals that go from your eyes to your brain. There is a balancing test with your ears. There is spinal taps, MRI's, radiograpgy test that shows chemical reactions in the brain. Still, after a year it was the initial eye test compared to a later one that diagnosed him. Keep in mind he was severe, in a wheel chair for 4 months and had every symptom of MS and all his family members with MS and they still hadn't diagnosed him. You have to make sure to get life insurance before being diagnosed because forget it after, you won't die, but you have to be prepared. It is huge on your health insurance, and it will change your life. The most important thing to remember is don't put it off, without the meds you could have permanent damage. My husband has 2 sisters with it and they live normal lives, but sometimes it is a battle getting diagnosed. It seems like they always want to tell you fibromyalgia when it is not apparent, all this means is muscle pain and weakness. Try to find a doctor that will really stick with you and investigate, our doctor was a life savor. You could be bounced around for years without a diagnosis if you don't have the right doctor. I have lupus and I have leisions on my brain, but I don't have MS, now how easy would that be to diagnose me with MS. I have similar symptoms as my husband. Let me know if we can help, good luck
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, October 22, 2017 8:19 PM (GMT -6)
There are a total of 2,885,842 posts in 316,648 threads.
View Active Threads


Who's Online
This forum has 157747 registered members. Please welcome our newest member, SDGDH.
447 Guest(s), 12 Registered Member(s) are currently online.  Details
Meganm84, aphysicalwreck, AndLo, The Dude Abides, Redwing57, Saipan Paradise, Loucath, FLBeachgal, Mark W, MK1965, fighter87


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer