This is long because I need to explain my situation in order for you to understand my question and where I am coming from. If this is not appropriate I appologise I am just confused an don't know who else to ask or where else to ask...
I was diagnosed with MS on June 22 2008 in an ER visit where Optic Neuritis was found. It had been speculated that I might have MS before but a previous Lumbar Puncture in 2007 and tests were negative (ones done after this were positive). The doctor assigned to my case I saw on July 25th for the first time. I had 3 solumedrol infusions starting on the 22cnd and then on july 4th another 2 since my eyesight got worse again. When I saw the doc I told her all of my symptoms which were pins and needles in hands and feet, burning, extreme pain in hands legs and feet on a scale of 6 to 10 depending on the time of day or exertion, and partial lost visability in my right eye. I also have to go to the bathroom alot. She gave me a pain med and a muscle relaxer and that was it. nothing for symptoms. She did write a prescription for cymbalta but I took it and that night it made me sick and i called and told her the next day she said alright and that was the end of anything for nerve pain. She decided to try to get something approved by the insurance but they denied and she never tried anything else. She had me make an appointment so i could research which injectable med I wanted to use. 3 days after July 25th I had an exacerbation where my lower abdomen began to get numb and my hands were so painful i couldnt write or do anything for myself. I called her office to leave her msgs and they said it was normal if the symptoms got worse to call back. From the first day i called to the 8th of august I called 6 times, finally when the numbness had reached over the tops of my breasts and my hands were where i couldn't use them at all i got a solumedrol treatment which was only because i spoke with the infusionist nurse who prompted the doctor. I had a reaction to it but its not clear if its from my WBC being low but the doc thinks I am allergic and says I cant have it.
I went to see this doctor on Aug 12th and it was the second time i saw her and she said that she can not help me or my condition. My nerve pain and condition is too extreme a case. I asked what I should do if I need to talk or if I have an exacerbation she said ride it out dont call. She gave me another docs name and had me make an appointment with them. I couldnt see them until sept 25th. Even after telling her about my hands she said to ride it out and offered no help for me not even a number to call. I contacted the MS society where they gve me a list of numbers so i can get help because they said since i cant use my hands its debilitating and not normal. The doc also told me at the end of the appointment that i was probably experiencing arthritis and that she thinks I was overexagerating my symptoms saying something along the lines of "I know these things seem like they are very painful but they are probably more bothersome than anything..."
My question is...Should I hold this doctor accountable for not giving me the care I asked for when I needed it? I have been on no meds for my MS symptoms and in the middle of an Exacerbation for 2 weeks with no help...what is your opinion? I also am a receptionist and my hands are my livelyhood so not having them right now is impacting me. What should I do?
This post is for Jareth. I was wondering what synptoms you had in 2007 that prompted a negative result back then and a poitive result in 2008. Did you have a MRI that showed plaque and a negative spinal tap? My MRI last month showed 1 plaque (lesion) in the white matter of my brain and 2 of the 3 spinal tests came back negative. The one that came back positive was the myelin band protein. This protein shows that myelin in my body is breaking down. I have lost the ability to urinate and have had to self catherize since 6/19/08 with symtoms of numness and tingling in my feet and concentration problems. I still don't have an answer yet as my doctor is out of the country and I don't have an appt until 9/22. Any help would be much appreciated and I am sorry you are going through such problems.