Provigil rules! huhhuh uhhhuh huhhuh

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casinokid80
Regular Member


Date Joined Mar 2007
Total Posts : 46
   Posted 8/13/2008 3:56 PM (GMT -6)   
This stuff is great!  Regained all my energy again, and it helps me think more clear and precise.  I definately needed it as i was horribly fatigued again, especially during the day.  I definately dont need depression meds on this.
Anybody else on this?  I want some feedback from others.

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 8/13/2008 6:49 PM (GMT -6)   
Hey CasinoKid!

WOOHOOOO!!!! Good for u!!! I'm so glad to hear u'r doing great on this med! Many here, including myself, have tried Provigil and had much success. I'm sure u'll hear from others on thier experiences soon. Take care friend and be sure not to overdo things with all that feeling strong again. ;)
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 8/14/2008 9:27 PM (GMT -6)   
Absolutely agree, Casinokid! Provigil is my personal godsend! I wouldn't and couldn't go without it without feeling like molasses on a freezing day! Awful slow, Provigil makes up for all of the exhaustion MS robs me of!
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


casinokid80
Regular Member


Date Joined Mar 2007
Total Posts : 46
   Posted 8/14/2008 9:31 PM (GMT -6)   
i kept begging my neauro for more steroids lol. They gave me this to shut me up. Im very satisfied.

D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 8/14/2008 9:50 PM (GMT -6)   
Ah, Kid, run from the steroids while you can because eventually the steroids will rob your ability to run (I know the MS already did that probably at least for running per se) but Steroids will change moods, make you feel good when you don't because they mask and they're wonderful for those crisis times... but they rob muscles of their strength and mass...they are the double edged swords of the medication world.

Just had to do a super dose myself to avoid pneumonia and so hated it but man, it's the only thing that would give me my lungs back!

But, provigil, now that's the best! Energy... created for the military for fighter pilots on long missions and later found to be the medical fields best friend for third shift drs and nurses who had to keep working! Now it's my best friend!
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


casinokid80
Regular Member


Date Joined Mar 2007
Total Posts : 46
   Posted 8/15/2008 2:22 AM (GMT -6)   
i understand about the steroids. I know they are bad and used long term only for progressive MS. Also i realize its horrible for the liver and bones. (my liver probably already has taken a beating). Till i started taking this id rather risk living to 55-60 taking steriods, then not really living and crawling to over 80. Now im glad they refused me the steroids, i didnt think there was any other cure for my fatigue and depression.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3521
   Posted 8/15/2008 10:53 PM (GMT -6)   
Wow! Kid,
This is great to hear.  I would avoid the steroids as well.  When you think about the fact that the solumedrol is like 1200 mg per infusion, that is a crazy-high dose.  It just has to be doing other rough things to your body.  I am so glad to hear that the provigil is helping.
Gretchen       co-moderator MS board       diagnosed with MS July 2006


Tertle
Regular Member


Date Joined Jul 2007
Total Posts : 108
   Posted 8/24/2008 3:50 PM (GMT -6)   
Hey CasinoKid,

I was on Provigil but kept getting really bad headaches. My doc thought this was from the Provigil so he switched me to Amantadine(not sure how to spell off hand) but this is different from Pro, it just takes away the fatigue symptoms, which I don't feel it is doing. I'm going to ask my doc if I can get back on Provigil. I still have a full bottle in the cabinet........How may mg's do you take, I was on 200mg a day. I think my doc said that was about max. Good luck and do your best to stay up.
-Tertle


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 8/25/2008 6:17 AM (GMT -6)   
Hey Tertle, I'm at 200mg daily right now in the morning and some of the fatigue still sets in late in the day, but that's ok, because then I can sleep and wind down at night. But I understand some folks can be up to 400mg daily.
 
With headaches, I'd ask about topomax help for that... low dose (50-100mg) daily sometimes helps maintain them. The provigil may have amplified them just because it heightens the bodies energy. I have atypical migraines due to a pituitary issue (daily without the T-max) so it's my saviour on that front. That's something you and your neuro may need to discuss.
 
Sometimes the radiologists will mention it in the report but becos it's not a major issue, the neuro doesn't mention it to you til something shows up symptom wise... ask just out of curiosity how your Pituitary looked on your bran scan if you've had one... and then ask abut your labs for Cortisol etc that are affected by the pituitary function. My indicators a little askew which match the Thyroid issues and the suspicious spot on the pituitary that we're monitoring.
 
And those run separately of rest of the MS symptoms he's monitored
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~

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