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TiBoBi
Regular Member


Date Joined Mar 2008
Total Posts : 89
   Posted 8/25/2008 3:36 PM (GMT -6)   
Hi,
 
I am from the Lupus board as that is what I am being treated for, even though I was technically undiagnosed from the lab work. Anyway, after year of meds I was feeling pretty good and my numbers seemed to be much better, so I went off the prednisone about 3 months ago and all was fine. I did this under the direction of my doc of course.
 
Now..I am experiencing the following new symptoms:
 
Shooting pains in my breast.. not always the same one. Doesn't hurt per se, but like an electrical shock.
 
Numbness in my hands and feet.. tingling.. not completely numb.
 
Slurring.. not all the time but once in awhile. I give presentations regularly and it is causing me a bit of distress right now.
 
Muscle spasms in my hands. More like "twitching" that lasts for several hours if not a day.
 
My lupus diagnosis began with muscle weakness in my arms, a drag to my right foot when walking, loss of balance, etc.
 
I have completely lost the swelling and it has not come back even off the Pred. Since you are all familiar with MS, what do you make of what I just shared here. I am going to talk to my Rheumy when I see him of course but should I make a special appt? I don't see him until October since I was doing so well at my last appt.
 
 
Diagnosed with Lupus in January 2008.
Currently taking Hydroxychloroquine (Plaquinel), Lisinopril and Hydrochlorothiazide.
 

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 8/25/2008 4:46 PM (GMT -6)   
Hey TiBoBi

Welcome to the ms board! I'm so sorry for the position u'r in. Being unsure of u'r dx is prob as bad as knowing i'd suspect. Some of u'r symptoms can be ms symptoms, but as i'm sure u'r aware, can be symptoms of many other things as well. Since u'r concerned and don't have an appt til Oct, i'd prob call for a sooner visit or at least phone consult. This doc should know u pretty well and maybe just an update on the new stuff will suffice if u can't get in any sooner. At the very least u should be able to get some meds to help with the spasms and twitching. Take care and please let us know how u are and how this proceeds with u'r Rheumy.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


TiBoBi
Regular Member


Date Joined Mar 2008
Total Posts : 89
   Posted 8/25/2008 5:09 PM (GMT -6)   
Thank you! Sometimes it just takes another person to give you that little nudge.

Diagnosed with Lupus in January 2008.
Currently taking Hydroxychloroquine (Plaquinel), Lisinopril and Hydrochlorothiazide.
 
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