I am sorry to hear about your diagnosis. I have never heard of CDPN (I am going to google this!). I can't help you with a support group but I can invite you to come here and post as often as you like. I am thinking that if CDPN is an MS mimic then maybe we share similar symptoms?? You may find some solace venting here. We have great folks here that support one another and you are more than welcome to chat and post with us. Good luck with everything and I hope to hear from you again.
I was researching your disease. I definitely think it warrants a consideration into applying for disability. We have had a few people successfully navigate the nightmare that is applying for disability. If at all possible, you are going to want to look into getting an attorney. I know that that can be expensive but it may pay off in being quailified the first time around. It can be a long drawn out process. I wish you the very best of luck. Continue to let us know how you are doing.
I understand. That is how most of us live. Day to day, month to month. I know it can be so hard. I was wincing as I suggested the lawyer to you as I know the cost. I know it would be a hardship for us right now. Never worry about complaining that is why we are here, so please feel free to "go on and on."
Hang in there and keep us posted.
I came across your post during a search that I did a few days ago "polyneuropathy mimics ms". My current neuro is referring me to a Neurologist that specializes in Periperal Neuropathy. My NCV confirmed sensory motor polyneuropathy. My current neuro says that we have ruled out all the easy stuff now we need to look into neuropathy that "mimics MS". I have done a lot of research I feel that I could be looking at CIDP as well.
No worries, you are not breaking any rules. By advertizing we mean, "Hey I am selling the cure for everything!!! Call me and I will hook you up."
Welcome to the forum. I hope you get some answers real soon. Good luck and feel free to post here for support.