Post Edited (rhondab) : 9/5/2008 9:38:57 PM (GMT-6)
What part of Pa are you from? There is a very good neuro in Pittsburgh, Pa. Her name is Susan Basser, she practices out of Allegheny General. She also has offices that are located in different areas in the suburbs. My gram went to her for her MS. She also specializes in Parkinsons/movement disorders. Its so hard when you know your own body and you know that something is definenty wrong. Been there, done that. I hope you get some answers soon.
Take care, Jennifer
Hi, Wow hon, you are in my prayers. Another thing I would do if I were you would be to contact the National MS Society in your State. They can give you names of Neuro Docs in your area that specialize in MS ( if thats what might be going on in your case). I recently contacted them and a woman called me back in 2 days. She was so nice. She talked to me about an hour and we talked about all kinds of things and she even mentioned there is phone line support.
You will find everyone in this forum is so very nice and supportive. I have gotten such good advise that I am researching since recently being diagnosed.
Don't give up, we are here for you. Even if what you have is not MS, we care. Hang in there. Both of our moderators really helped me with tons of advise, as well as others who log into here. It is hard for others to understand how we feel when we don't understand ourselves. Blessings to you and hugs~Katie
Wow you have a lot on your plate. You have gotten some good advice here. I am sorry to get on this thread so late. I would definitely get a second opinion from an MS specialist/neurologist. You need to get some testing. You mentioned that you have only had exams but no tests. I would push hard for those. Most of us have had a brain MRI, some of us go on to also have cervical and thorasic spine MRIs, lumbar puncture and evoked potentials, you will need blood work with your lumbar puncture and then there is the very thorough neuro exam. You will get a lot more answers from these tests than a doctor just looking at you and saying you are fine (sheeeesh can you tell that made me mad?? )
You have our support here - we can all relate to what you are going through. MS is one of those diseases that has caused many of us to go through the whole doctor looking at us like we are hypochondriacs. Good luck and let us know how you are doing in your quest for answers.
Hi there girl....are you Gemini? or is Gemini6 someone different. Ok, I am in Juniata County in Central Pennsylvania. I don't know where you are located but, if you are close to Harrisburg I have a fantastic neurologist. My visits are not quick and abrupt. She sits and talks with me like she is a neuro/psyc. If you want to have someone go in with you for your visit she has no qualms about it. She listens to you and doesn't pass things off. Actually one time I fell down the steps and had nasty pain in my thigh. I went to her for my usual visit nd just told her about the pain in my leg. She ask me a bunch of questions and sent me to another Dr. that exact same day and I found out what the pain was. I have a pinched nerve in my groin. I found that amazing. I hope you are feeling better.