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Hummingbird Lover
Regular Member


Date Joined Dec 2007
Total Posts : 24
   Posted 9/8/2008 1:52 PM (GMT -6)   
HI EVERYONE!
 
PLEASE EXCUSE THE CAPS BUT SOMEONE TOLD ME THAT IT IS EASIER TO READ. I TRIED TO CHANGE THE FONT BUT ENDED UP
 
MAKING IT SO SMALL THAT YOU COULD NOT READ IT!
 
ANY WAY I HAVE BEEN AWAY FOR A LONG TIME BECAUSE I FELT LIKE I WAS JUST COMPLAINING. AS CLERGY, I DO HAVE FAITH BUT,
 
PEOPLE WERE SEEING ME AS WEAK WHEN I ONLY WANTED ANSWERS.
 
PLEASE FORGIVE MY RAMBLING. I AM SO FRUSTRATED RIGHT NOW. MY DOCTOR TRIED BOTOX FOR THE SPASMS IN MY LEGS. IT
 
WORKED FOR AWHILE BUT, CAME BACK. HE CALLED ME TODAY AND, I TOLD HIM A LITTLE OF WHAT IS GOING ON. I SEE HIM NEXT
 
WEEK BUT I JUST WANTED TO TALK TO PEOPLE WHO KNEW WHAT MS "FEELS" LIKE AND NOT JUST SOMEONE WHO LOOKS AT IT IN A
 
MEDICAL SIDE.
 
THE PAST TWO WEEKS I HAVE NOTICED THAT SOMETHING IS DEFINETLY HAPPENING! I AM SO TIRED ALL THE TIME AND IT'S NOT
 
BECAUSE I AM WORKING HARD! I SLEEP AT NIGHT THEN, I GET UP, HAVE COFFEE AND EAT, DO A FEW THINGS AND THEN, SIT DOWN
 
AND FALL ASLEEP! THIS HAPPENS ALL DAY. WAKE UP, DO A FEW THINGS, SIT, SLEEP...OVER AND OVER AGAIN!
 
THE SECOND "S" IS SPASMS EVERYWHERE! I USED TO GET SPASMS MAINLY IN MY LEGS AND AS I SAID, MY DR. TRIED BOTOX. THE
 
SPASMS LEFT FOR about A WEEK AND THEN CAME BACK WITH A VENGENCE! IN THE PAST TWO WEEKS THE SPASMS HAVE NOT
 
ONLY BEEN IN MY LEGS BUT, MY HANDS, MY ARMS, EVERYWHERE! I AM STUMBLING AND WALKING INTO WALLS. IT REALLY SCARING
 
ME!
 
THE THIRD "S" IS MY SIGHT. I WENT TO AN EYE DOCTOR WHERE I LIVE AND TOLD HIM I HAVE MS. I TOLD HIM MY EYES HURT AND I
 
AM HAVING BLURRED VISION THAT MY READING GLASSES DO NOT CLEAR. HE TOLD ME, "IT'S NOT MS" AND BRUSHED ME OFF. WITH
 
EVERYTHING ELSE I NEED TO KNOW IF ANYONE ELSE HAS THIS PROBLEM?
 
I SHOULD HAVE PUT, FOUR "S'S" BECAUSE I AM STUMBLING AND WALKING INTO WALLS! I GO TO GET UP AND IT TAKES FOREVER TO
 
GET MY BALANCE. THEN, WHEN I TRY TO WALK I FIND MYSELF STUMBLING AND OFF BALANCE. ANYONE ELSE GOING THROUGH THIS?
 
ANY SUGGESTIONS?
 
OOPS! THERE ARE FOUR "S'S"! BUT FIVE PROBLEMS. THE FIFTH  IS MY MEMORY! COULD YOU HAVE GUESSED? I THINK OF ALL THE
 
PROBLEMS THIS IS THE MOST FRIGHTENING! I REMEMBER IMPORTANT THINGS SUCH AS SERMON MATERIAL BUT, DON'T ASK ME ALL
 
OF MY GRANDCHILDREN'S NAMES SOME DAYS!  SOME DAYS I WILL GO TO GET SOMETHING AND FORGET WHERE AND WHY AND
 
WHAT I WAS DOING!! mad
 
THANK YOU FOR TAKING THE TIME TO READ THIS LONG POST I REALLY APPRECIATE IT. NOW, IF ANYONE HAS ANY SUGGESTIONS OR
 
IDEAS, PLEASE LET ME KNOW?
 
LOVE AND PRAYERS TO ALL OF YOU!
 
REVVIE

If God brings you to it, He will bring you through it!"
Rev. Adelle


casinokid80
Regular Member


Date Joined Mar 2007
Total Posts : 46
   Posted 9/8/2008 2:22 PM (GMT -6)   
hi hummingbird. sorry to hear about all your problems.  Theres meds for fatigue, i take provigil, it helps alot.  Also theres supplements/vitamins for your memory.    The most important thing besides your memory, is your vision.  Is your neuro sure if its not optic neuritis, or any other sort of optic inflammation?  This can associated with MS, but a different thing all together.  I would suggest seeing a optomologist or some vision expert.  The problem with ON is that there no cure, steroids speed up the healing process. It will usually go away in a month.
 
Goodluck with everything, hope ya feel better soon.

Hummingbird Lover
Regular Member


Date Joined Dec 2007
Total Posts : 24
   Posted 9/8/2008 4:37 PM (GMT -6)   
THANK YOU VERY MUCH "CASINOKID!" I HAVE TRIED PROVIGIL,MY DOCTOR GAVE ME SAMPLES. i FELT SO MUCH BETTER BUT, MEDICARE
 
WON'T APPROVE IT! I AM SO FRUSTRATED THAT THE MEDS THAT CAN HELP HAVE TO BE FOUGHT FOR! I SEE MY DR. NEXT WEEK AND
 
HE WILL GIVE ME MORE. I RAN OUT about THREE MONTHS AGO. AS FAR AS THE EYES GO, I DEFINETLY WILL GET IT CHECKED.
If God brings you to it, He will bring you through it!"
Rev. Adelle

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