Injection's (Copaxone)

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Tertle
Regular Member


Date Joined Jul 2007
Total Posts : 108
   Posted 9/12/2008 1:16 PM (GMT -6)   
I have been on Copaxone now for about 6 months after a switch from Betaseron.

My question and concern is that I am getting pretty much sick of shooting myself up everyday that I have purposely stopped taken it for a about a week straight at times. I know this is not good by any means but I really don't like doing this anymore.

Is there anyone out there that is feeling the same?

Can't wait for pill forms to come out!!
-Tertle


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3530
   Posted 9/12/2008 6:12 PM (GMT -6)   
TELL YOUR DOCTOR!!!!!!  Obviously if it is supposed to be injected eveyday, then skipping a week is not a good thing.  I have been on Copaxone for just about two years now.  I have only missed a day here or there and that is only when I have forgotten.  I find copaxone so so so easy. 
 
What is it that bothers you?  I think you should start there.  Is it the site pain?  Could you try a tylenol and or maybe the ice or heat strategies that shared solution is always talking about.  Is it the "I have one more thing to do and my days are really full" kind of thing?  I think of this like brushing my teeth or taking a shower.  It is just one of those things you need to go.  Or is it that everytime you take a shot you are faced with the reality that you are fighting an incurable disease - the slap in the face that wakes you up from happy denial land?
 
I shuddered when you typed that you are skipping treatment for a week.  Please try to think this through so that you can find a way to make everyday shot more tolerable.  I am worried about your progression.   
Gretchen       co-moderator MS board       diagnosed with MS July 2006


Tertle
Regular Member


Date Joined Jul 2007
Total Posts : 108
   Posted 9/12/2008 8:44 PM (GMT -6)   
Thanks Gretchen

I'm not quite sure what the reason is, maybe a combination of a few. I know that the slap in the face thought is one of them. Maybe I also think that it is a inconvenience? Whatever it is I need to overcome it, My Blackberry is set to give me a reminder every night at 9pm.

I am going to think of something that will keep me on a steady path with this, Thanks again!!
-Tertle


Tertle
Regular Member


Date Joined Jul 2007
Total Posts : 108
   Posted 9/12/2008 8:50 PM (GMT -6)   
I just took my shot Gretchen!!!!!!! That's a start.
-Tertle


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3530
   Posted 9/12/2008 9:01 PM (GMT -6)   

Tertle,

For a while I was really resenting my shots. I kept at them but I found them to be a huge slap in the face.  Every single night I had to push a needle into my skin to try to prevent this (censored) disease that is going to get me anyway.  That is where I was anyway.  I am better now.  I know that there is no predicting this disease but I want the very best chance I can at having minimal disabilities.  I am proud of you Tertle.  You are doing just fine......keep thinking and working things out.  It takes a ton of time but it does get better. Keep posting.  We are here to support you.


Gretchen       co-moderator MS board       diagnosed with MS July 2006


Tertle
Regular Member


Date Joined Jul 2007
Total Posts : 108
   Posted 9/13/2008 8:29 AM (GMT -6)   
Gretchen,

How long did it take you get over that slap in the face? I think another slap is when I take all my pills in the morning. That is actually a big one for me, I take about 5 prescriptions and a bunch of vitamins. For some reason that really bothers me everyday, it only takes a minute to take them all, but it is alot and I always have to make sure I take them with food and make sure I'm stocked up on them all.

Anyways back to the shots, I agree with you when you said that you find Copxone very east to take, it really is, compared to Betaseron, where I had to mix the stuff before I injected it. I have to be strong and your support is going to help me, thanks a ton!!!
-Tertle


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3530
   Posted 9/13/2008 9:44 AM (GMT -6)   

Ok so you are where I was.  I do the same.  I have a couple of perscriptions I take everyday and like you I take a load of vitamins and I found that everything I did reminded me of the fact that I have MS.  I am glad you are taking the time to really think about all this.  It really helped me.  I read a book that said when you find out you have a chronic illness (esp. one that is incurable) you grieve the loss of your healthy body very similarly to the loss of a loved one.  Shock, denial, anger, bargaining, depression, acceptance.  They are all pretty self explanatory.  It seems that you are maybe stuck in the anger phase?  It sort of seems like you are rebelling by not taking your meds or you resent it..........that seems like anger.  So know that what you are feeling is totally normal. 

I started copaxone very quickly after being diagnosed.  I have been diagnosed for not quite two and a half years.  I am just to the acceptance phase.  I spent my longest phase in depression.  BUT heres the thing.......you don't necessarily go through the phases chronologically and you may find yourself re-visiting a phase at anytime.  I still get angry, I still get depressed and I still try to bargain.  But for the most part I am doing ok.  You will get there too. 

You need to be open to a couple of options.  You may need help getting to acceptance part.  You may need a self help book, or some therapy or a support group or something like that.  You are doing some of that here.  Check with your MS Society and see if they offer anything.  I know they can be scattered about but see what they have.  Mine offers short term counseling and you never know, you could get that via phone if the distance is too great.  If you have insurance, you can ask for therapy or counseling.  I would look for someone with either experience with MS or chronic illness. 

I also love the book MS and your feelings by Allison Shadday. 

Sheeesh sorry this is so long.  You may have entered another phase in the time it took to read all this..........the "shut up, I will take by shot phase already"  wink


Gretchen       co-moderator MS board       diagnosed with MS July 2006


Tertle
Regular Member


Date Joined Jul 2007
Total Posts : 108
   Posted 9/14/2008 3:19 AM (GMT -6)   
Gretchen,

That wasn't to long, you had a lot of good stuff in there. I agree, I should probably get into some kind of therapy, One big thing that I should tell you is that my father passed away from Cancer in October 06' and I started having symptoms three months later at the start of the new year, then dx'd in April 07'. They have to be tied together somehow. It was really weird how it happened. Probably the stress and everything else I was feeling dealing with his death. That time of year is coming around here real soon and I always have a hard time. I need to stat strong and keep my mind focused.

I am on here pretty late tonight, (or this morning) however you want to look at it. I don't really sleep very well anymore. But I did do my shot again last night. My blackberry is set now for two times to go off and remind me, once around 8 and then I set another for 10 which I think will help.
Well I should try and get some sleep, it's my son's birthday today so I need to be in good shape. Talk to you later. Thanks for the advice and support.
-Tertle(Andy)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3530
   Posted 9/14/2008 8:29 AM (GMT -6)   
Hey Andy,
 
Kiss the kid happy birthday for me!!!  Stress is a HUGE trigger for MS. You had MS lurking there somewhere and the stress of your father's death probably allowed you to flare and that began the diagnositic journey for you.  Hang in there and keep posting. 
Gretchen       co-moderator MS board       diagnosed with MS July 2006


Tertle
Regular Member


Date Joined Jul 2007
Total Posts : 108
   Posted 9/14/2008 8:30 PM (GMT -6)   
Gretchen,

The party went good, pretty hectic for awhile, we had quite a few people here. Also about 10 little kids so you can imagine. Overall it went good, my son made out well, "spoiled rotten" should be his new nickname. Lots of Cars stuff(the movie). He loves that movie. My mother bought him a Lightning Mcqueen bed, the ones shaped like a car, its pretty cool..............

Anyway I think you hit the nail on the head, my fathers death was a big time stress magnet, very tough time. Which is approaching real soon, Oct 8, so I have to really buck down and get my crap straight. Talk to you later!
-Tertle(Andy)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3530
   Posted 9/14/2008 9:32 PM (GMT -6)   

Andy,

Don't worry about getting it all straight.  Just be aware of what you are feeling.  That is all.  Just feel it and know it is ok.  I call it "wallowing".  I get in a good mood, bad mood, anxious, mad, sad, short tempered whatever, I just notice it and try not to brush it under the table.  I talk about it if I feel like it, or not.  You are not expected to have this all perfected.......sheeesh that would not be fair.  I would not like you anymore.......I am not even close to having my crap straight.  Just try to think about how you are feeling everyday and take it one day at a time.  Find a way to release stress everyday too.

I am so glad the "spoiled brat" had such a great party.  I have big spoiled brats and they love the movie.  I like 'mater.  He is so cool. 


Gretchen       co-moderator MS board       diagnosed with MS July 2006


Tertle
Regular Member


Date Joined Jul 2007
Total Posts : 108
   Posted Today 1:45 PM (GMT -6)   
Gretchen

Hey, I got some good news and some bad, the good news is that I've been taking my shot everyday since I last talked to you. The bad news is that I started having a flare during this time too. I have always been battling right leg problems, but now my left leg started to have really bad pains and very weak. I could barely walk come last Monday. My doc got me in right away for Steroids and now I'm feeling the wonderful side effects from them.

I told my wife that I wasn't taking my shots during that time, and she is a little upset and thinks that is why I am having a flare. So do I. which also makes me feel like total crap. Who knows if 4 days off a treatment can cause a flare but if it does, I am not gonna miss a shot again. Now I'm feeling depressed as welll as sick. which isn't a good combo. The weather is perfect at about 80 and not a cloud in the sky, and here I am barley getting around the house, the kids want to go outside and play and I just feel to weak and down to do anything, I really need to come around and get out of this. My luck I will start to feel good when the snow flies and then there's nothing to do but be trapped in the house. Well gonna stop now.. Thanks for listening.
-Tertle(Andy)


mystery reader
Regular Member


Date Joined Jun 2007
Total Posts : 257
   Posted Today 3:33 PM (GMT -6)   
Andy, Don't beat yourself up too badly about missing those 4 days. Just don't miss anymore!!! Seriously, they say it takes about several months for it to even to start working if you are a responder. Most doctors do not order a new MRI until you have been on copaxone for one year. Have you or your neuro considered tysabri? Even though I had problems with it, it was much easier than the injections. Most people do not seem to experience serious problems with it, and lots are reporting that it has helped them.

I have not been on any of the CRAB's or tysabri since March. I worry about it, but since the neuro's have decided I cannot tolerate any of them I am not ready to try chemo.
Barb/mystery reader
Diagnosed April 2007
Started betaseron --  May 2007 -- experienced allergic reactions after 2 weeks
Started copaxone -- June 2007 -- stopped after 4 1/2 months;experienced  severe 5 IPIR's
Started tysabri -- December 2007
Stopped tysabri -- April 2008 (developed antibodies/severe reactions)


nursekatb
Regular Member


Date Joined Apr 2008
Total Posts : 43
   Posted Today 7:38 PM (GMT -6)   
Hey Andy,
Just wanted to let you know that you aren't alone. I have been on Avonex (in the muscle once a week) for about 6 months and although I have diligently taken my shots every week, I think and seriously consider not taking it every week. If it wasn't for my husband I probably would have already stopped it completely or at least missed a few. Sometimes I just find myself wanting to "take my chances". I know that doesn't sound reasonable but that's where I am. I am not sure what stage I am in grieving. I think it changes from day to day! Anyways, I felt for you...having to face it and deal with it every day. I can at least try to forget about it all week until Friday rolls around again.

Thinking of you...hope things get better!

Kathy
Diagnosed with MS March 2008
Avonex         


Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 9/25/2008 11:57 AM (GMT -6)   

Hi there, I have not posted for some time now, just been off doing things I guess and forget to come in here to chat...

Copaxone.....I am on it too, and have been now for almost a year. At first yes, it was a pain inthe you know what, and between that and the fear of inecting myself, well, I figured I was in for a life of torment. Plus the darn injections hurt if u do not do it right. But after awhile, and a short while at that, it then became second nature.  Ive learned some techniques that helped alot, most of them self taught, but I must say that the support that you get from Shared solutions has been very good to me.

I don't look at this as being an isolated method of treament for MS, there are other disorders where daily injections are required....like a diabetic, for example, are on a daily injection program for life. So we are not alone.

But so far I have not missed a day (watch tonight Ill forget to do it)!!!! It takes time to adjust to something like this, but yo will, the more u do it, the easier it becomes, and the next thing you know, it is just part of your daily routine......and when u geet good at it.....it really is not a nuisance at all, heck I can be in and out in about 20 seconds......you will too, after you become adjused to your new, but small adjustment you have to make in your life....

Good luck on this, you'll do fine. Do you use the auto - injector?  I do...if I can help wtih any questions about the injections, I will try to help. dont forget about Shared Solutions!!!

Gary

 


odettesmom
Regular Member


Date Joined Aug 2004
Total Posts : 274
   Posted 9/26/2008 8:31 AM (GMT -6)   
was on copaxone when first dx, then rebif. had a lot of pain with both, making me want to skip the injections. i, too, felt i was giving myself pain for something that might not make ms go away. my neuro had suggested trying ivig drips, but i continued to fight it. finally gave in ... started with a two-day drip once a month. was increased to twice a month. did get a port implanted to avoid my veins collapsing. as it turns out, no new lesions and one active area has subsided per last mri. it is very very expensive, but my insurance does cover it. really is a lot more bearable than that daily stick. there is a lot of info on ivig on the internet and ms sights. linda
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