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CatKing
New Member


Date Joined Sep 2008
Total Posts : 2
   Posted 9/16/2008 2:31 PM (GMT -6)   
Hello all.  I'm new to the site, but not new to MS.  about 5 years ago, my mom was diagnosed with the disease.  She now is in a walker and on disability.  about one year later, I started getting severe vertigo.  They did an MRI that apperently came back normal, but did a VNG that came back abnormal.  My left ear's balance center was completely gone and the right one was 30-40% gone.  At that time they stated it was severe vertigo that could last up to 4 weeks.  I was falling over!!!  Well, since then, it has come and gone several times but not to that extent...until 2 months ago.  I went back to the ENT and was advised that I may have Meniere's Disease.  Was put on medication for it and found out that I'm allergic to it.  He sent me to the specialist and THAT doctor suspects that it may NOT be Meniere's.  Now I get to go in and have a series of tests done on October 6th including another MRI with contrast this time, another VNG and an ECochG.  Since seeing the specialist, other 'symptoms' have popped up.  Like numbness and tingling of the neck and shoulders.  Vision disturbances.  Memory problems.  Shakiness/jerkiness.  With all of these combined, some online research and the fact that Mom has MS, I called the doc and asked if he wanted to test for that, too.  He said that that was one of the things he'll be looking for in the MRI.  Anyway, that's why I'm here.  Looking to find out what meds/treatment is out there for MS and how many people are still working full time or even part time jobs while still affected...
 
Thanks for listening! sad

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 9/16/2008 3:57 PM (GMT -6)   
Hey CatKing

First let me say try to relax and take a deep breath. This is scary and u've been thru a lot, but in time u'll get answers and get some help on all this. U are NOT alone here friend. There are meds avail for ms that try to help slow progression. Is u'r mom on any med?? They are commonly referred to as CRABs. Copaxone, Rebif, Avonex and Betaseron. All are injections. There are also meds avail for treatment of symptoms. These are meds for things like spasticity. On the work issue, yes, many, many people with ms DO work. More than u may think carry on normal lives with full time jobs and some very demanding jobs. My best friend is a school teacher. She stands for several hours a day and has a VERY full classroom. She has ms and she has daily symptoms to deal with, but she is being very proactive in her diet and healthcare and she is flourishing! There IS hope and there IS help. Try not to jump the gun on the ms dx just yet. I know with u'r mom's history there may be that natural worry that u too are affected, but there is no solid evidence that ms is or isn't hereditary. Let u'r doc get these tests done and wait as calmly as u can to get the results. In the meantime feel free to come here and ask questions and vent all u'd like. We'll be here to support u thru this.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 9/16/2008 5:37 PM (GMT -6)   

Hi there Catking,

I am sorry to hear about all your troubles.  I have constant vertigo.  It is not a fun symptom.  I hope you are feeling some relief soon.  Was your mom not offered any progression therapy?  Is she not taking anything? 

Most people don't progress as fast as your mom did.  Many people never lose the ability to walk.  Try not to lose hope; I know it is very scary to be facing this diagnosis. 

Keep us posted as to what the doc says.
Gretchen       co-moderator MS board       diagnosed with MS July 2006


CatKing
New Member


Date Joined Sep 2008
Total Posts : 2
   Posted 9/19/2008 5:15 AM (GMT -6)   
I find out for sure on the 10th...that's when I get the results of all the tests on the 6th...will keep you posted. Oh and the chiropractor has them including the upper cervical portion of the spinal collumn...possible spinal occlusion...anyway..will keep you posted. Thank you for the feed back.
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