Periventricular White Matter Lesions

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meowese
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 9/19/2008 5:00 PM (GMT -6)   
I have two of them. I was told it doesn't look like demyelineating disease, but I still feel nervous. Is anyone here familiar with how often these lesions are associated with MS?

I have been complaining of forgetfulness and trouble finding words for the last two years. At first I thought it was my medication but now I'm calling it 'brain fog' because I have Crohn's and possibly Lupus. I don't think I have many other MS symptoms, perhaps tingling.

My neurologist was not helpful at all... I have severe migraines and she told me that it's totally normal! Well TO ME, it's NOT normal to have dead spots on my brain... Will I get more, how do I stop them? Am I going to get dumber? I want to be a professor, I can't get dumber! My neuro mentioned something about ischemia and migraines stopping bloodflow to my brain. Crap?

Thanks for your help.
Crohn's (diagnosed in 2006 and currently in remission), severe migraines, Seborrheic Derm., Hemolytic Uremic Syndrome (1994), chronic pain, ulcers/GERD and possibly Lupus. Medications: Nexium, Pentasa, Percocet and Vicodin as needed, Flintstone Vitamins (my favorite part!), calcium and magnesium supplements, vitamin D once weekly. I follow a low fiber, low residue diet.


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 9/19/2008 5:05 PM (GMT -6)   
I can't tell you how often white matter lesions are associated with MS but I can tell you that having lesions does occur in people with migraines.  I hope you don't have MS.  From you signature, I see that your plate is already really full!!!  Good luck.
Gretchen       co-moderator MS board       diagnosed with MS July 2006


meowese
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 9/19/2008 5:17 PM (GMT -6)   
Thanks for your response Gretchen,

Do you know if the lesions are associated with cognitive dysfunction in people with migraines rather than MS? Are there any preventative therapies to stop the lesions from forming?
Crohn's (diagnosed in 2006 and currently in remission), severe migraines, Seborrheic Derm., Hemolytic Uremic Syndrome (1994), chronic pain, ulcers/GERD and possibly Lupus. Medications: Nexium, Pentasa, Percocet and Vicodin as needed, Flintstone Vitamins (my favorite part!), calcium and magnesium supplements, vitamin D once weekly. I follow a low fiber, low residue diet.


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 9/19/2008 6:14 PM (GMT -6)   

Hey Meowese

Gretchen and u'r doc are right. The type of lesions u have can be associated with migraines. I did some research and found some info. I hope this helps.

http://www.neurologyreviews.com/mar04/nr_mar04_migraines.html

 


rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
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AnaSunnyDay
New Member


Date Joined Jul 2009
Total Posts : 2
   Posted 7/22/2009 11:38 PM (GMT -6)   
This is the post I first saw of yours even though I answered your more recent questions first based on what I've learned along the PVM path.

I have found that I get better and worse. although the spots will never go away and you will basically get "slower and dumber" (that's from an online description by Chicago Dizziness and Hearing-- http://inmemoryofmysister.blogspot.com/

When I'm feeling my best, I suppose my brain is using new and different pathways around my dead spots, but if I get a virus or infection or have a lot of stress my latent damage becomes more obvious. Hopefully that who "we only use 10% of our brain" thing is right, and we'll just have to rely on our undamaged other pathways to be used.
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