Clean MRI, suspected MS... Should I just wait?

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flutterbug
Regular Member


Date Joined Jul 2008
Total Posts : 31
   Posted 9/21/2008 5:34 PM (GMT -6)   
My neuro agrees that I shows signs of MS but test came out fine except for "severe carpel tunnel" on EMG test. He doesn't seem too concerned although he can't explain or didn't offer any treatment for unbalance and vertigo. He didn't even want to follow-up in 6 months or whatever. I'm not going back to him because he hasn't given me any answers. But my question is, because my symptoms tend to come and go, (and I have had new symptoms in the last year) should I just wait about six months to a year to see where this goes?
Is it common to not have lesions when first showing signs of MS? To sum it up, it's been 5 and half years since all this began.
 
Alot of questions, I know. confused

Capa
New Member


Date Joined Sep 2008
Total Posts : 18
   Posted 9/21/2008 6:51 PM (GMT -6)   
I have not been diagnosed and also have a lot of dizziness and unbalance. My MRI (of my brain) came back normal but my Doctor still said that he thinks I have MS and is sending me to a neurologist who specializes in MS.

If I were you I would get a 2nd opinion to seek out answers. Hope you are feeling better soon!

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 9/21/2008 8:06 PM (GMT -6)   
Hey Flutterbug

Yes, i think u should give it time and go back at it. The second is a great idea unless u've JUST gone thru these tests. Reason being, u had clear results...why would u have anything but clear results if u do it all over again now? In time if it's ms then it WILL show up. Yes, it's common to have a long wait between finding symptoms and beginning u'r visits to the neuro and getting a definite dx. My own docs tell me they can't rule ms in or out, but right now i don't have ms. That can mean i really don't have ms or it can mean i don't have the qualifying signs...not symptoms...to dx ms. Simply put, the wait and watch game is very common in ms and u seem to be there...maybe again since it's been five years. U may just have to give it time. Definitly do consider the second opinion, but likely u'r doc is aware that this could go on and on and most likely will tell u to contact him if another flare or episode such as u had to begin with happens. Take care friend. This limbo land is VERY frustrating, but eventually u will get a dx for whatever this is.


rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
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Post Edited (rhondab) : 9/21/2008 8:52:29 PM (GMT-6)


flutterbug
Regular Member


Date Joined Jul 2008
Total Posts : 31
   Posted 9/22/2008 3:05 AM (GMT -6)   
smilewinkgrin  Thanks, I feel reassured. Yes, it's soooo frustrating and I feel like, at this point it's better to know I've got xyz syndrome and get treatment then to wonder. That's the worse part. So if a neuro does say I have MS eventually, I may not blink, but rather be releived to finally have an answer.
 
Bless you, my friends!
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