Heading towards a MS diagnosis?

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MikeRules88
New Member


Date Joined Sep 2008
Total Posts : 2
   Posted 9/28/2008 3:15 AM (GMT -6)   
Hi all! I’m a 20 year old college student who has become increasingly nervous about symptoms I’ve been having. I hope someone can help me find out if this sounds like MS. Sorry for the long post, I tried to summarize the major parts of my story. Any suggestions would be greatly appreciated.

It was close to beginning of the year when I remember waking up and thinking I saw my arm tremor. I went back to bed thinking it was more of a dream and I was going nuts. Next night it happened again. I still didn’t think anything of it.

As time went by I began noticing more and more…odd symptoms. They have never been debilitating but more like annoyances. Besides this odd tremor, I remember reading a book and seeing the text slowly shift back and forth. I closed my book and opened it again, it still was doing it. It stopped after a few minutes.

Towards the beginning of summer I started having a multitude of symptoms. I had this eye pain and shooting ear pain. I had no idea what it was. So I went to see a doc and she thought I had a nose infection….I knew I didn’t but just accepted it. Couple weeks passed and no luck. It was around this time when I really started becoming nervous. For 2 reasons, 1) My fingers have begun to tremor more often but also I would have the weird single finger tremor. 2) Around this time it would happen before I’d fall asleep but entire body would feel like a tremor/tingling feeling. It happens right before I fall asleep every time.

I then later saw an eye specialist and an ear and nose specialist. Both of them said I was normal but the Ear guy thought I had some panic attack problem. I have a lot of hate for any of these words (panic, stress, anxiety) because it’s like they are forcing a diagnosis that isn’t there. I’ve t never been nervous about much.
One morning I woke up and noticed that my eye lid felt a little thicker and it kind of got stuck when trying to open. I slept with a dark shirt over my eyes that night so I assumed that was the problem. Looking into the mirror I could tell my eye lid was lower. I drove to school and it got better but on the way home my eyes became cloudy. It took literally like 2 minutes for it to go away. I still don’t know if this was just my shirt or not. Mainly because of all the random symptoms I’ve been having.

So the ear guy gave me Prozac told me to see a psychiatrist and told me he thinks its panic attacks. This was about three months ago. I requested for a MRI. He gave it to me. And I took it to a nero. Apparently he’s supposed to be really good.

I told him the story above and he thought it was stress. He looked at the MRI and said it was normal. He also ordered blood texts that were also normal. He had me squeeze his fingers and close my eyes and touch my nose. Gave me Lexapro…didn’t work. Gave me some other anxiety drug….didnt work.
I was working on the computer one day and my thighs started to twitch. Nothing much, but annoying. Along with being itchy all over my body. The twitching and itching happens anywhere now. Even may neck… I also had real bad eye pain. No lost of sight just eye pain. I seem to have blood shot eyes now.

I went back and this time I got nervous. He said typically these symptoms should have been gone by now. He said he was nervous about my symptoms. I was sssoooooooooooo thrown off by this comment. When I first met him, he was sure I had nothing serious. This comment still gives me shivers. I told him about my eye pain the night before, her checked them. Said they were normal. I guess if it was ON, he would have seen it. He seems also in limbo, not exactly knowing what I have. So he gave me another stress drug. I think he’s hoping by chance it works. I just finished taking proaxema (I think that’s how its spelt, don’t feel like checking) again…it didn’t work.

I feel completely in limbo and it sucks. My fingers are typically always shaky. And now my body muscles always seem like to twitch anywhere at any time of day. My body also itches…a lot. These four characteristics always seem to have stuck around…muscle twitches, tremor fingers, tingle body (nose and around eyes a lot), and itchy skin.

I go to bed now and it’s like my body is an orchestra. My jaw loves to tremor during this sleep phase. All these elements seem to love to show up RIGHT before I sleep. But much worse. My head will have this tendency to have this jump action before sleep. It will jolt to the left or right uncontrollably. It’s not a shake; it’s like this one shot thing. It will happen and then I just reset. My arm does this jolt thing too sometime. I get toes tremors now, the list goes on. I’ve also had these interesting dreams where right before something comes at me I will just jolt awake. Last time it was a football. I’m guessing this is a nightmare thanks to me always trying to figure out what’s wrong.

What really has become irritating is being told its stress or anxiety. You know what stresses me out? Being told I have some type of anxiety problem when I know I don’t. It’s annoying because my family thinks it’s all in my head now and has taken the doctors talking points.

So I have taken 4 different stress pills. None did any good. I actually have to give the doctor a call later today to tell him how I am. I was thinking of maybe working out and eating really healthy for a month to see if that does anything.

What I’m asking is does this sound like MS? I’ll be honest; I’ll be really pissed if I do end up having it. Having a disease in the prime of life would kinda suck.

What continues to keep in limbo though is that I don’t seem to have the same symptoms a lot of you guys do. I never have bad fatigue, never have muscle weakness, besides some eye pain I haven’t had double vision or have gone partly blind. My head MRI looks good and blood tests look good. I’m also under my families insurance and well…these tests are expensive, so are the drugs.

I also hear about these flashes people go through. Like they are hit with one of their symptoms and are knocked out for 24 hours. I’ve never had that. I just sort of have this constant continuation.

The doctor didn’t think I had anything serious when I first met him. I’m not so sure now. I’m also not sure what I should do. I’ve been dealing with this for almost a year now and it’s irritating not figuring out what’s wrong. In a way, I want to figure it out but I sometimes feel the unknown will be much better than the soon to be known.

Thanks for taking the time to read this! Thoughts are great!

Post Edited (MikeRules88) : 9/28/2008 3:54:35 AM (GMT-6)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3523
   Posted 9/28/2008 9:09 AM (GMT -6)   
I am sorry you are having these experiences.  Unfortunately we are not doctors and we cannot diagnose you.  Good luck and I hope you are feeling better soon.

Gretchen       co-moderator MS board       diagnosed with MS July 2006


flutterbug
Regular Member


Date Joined Jul 2008
Total Posts : 31
   Posted 9/29/2008 8:24 AM (GMT -6)   
I too am in limbo, and also have been accused of being stressed. All I can say is do what I am doing and keep a daily journal of your symptoms. Keep it as breif but truthful as you can so you don't get the anxiety diagnosis again. Keep going to your doctor from time to time and show him the journal. With MS, the symptoms tend to come and go. You may have a period of time when you feel fine or have less symptoms then you get hit all at once and feel bad for awhile.
Check out other disease forums to see if your symptoms are similar.
 
Best of Luck.

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 9/29/2008 8:48 AM (GMT -6)   
Hey Mike

Limbo here as well friend. Hang on. I know it's so frustrating, but eventually if it's ms it'll show up. I like to hold on to the hope of being in limbo tho. I know that sounds silly, but it's not. At least i KNOW right now i don't have ms. There is that hope that it'll never be dx'd as ms and i am happy about that. Yes, like u and flutterbug and many others here, something is going on, but for now there is that bit of good in knowing it isn't ms. Hang on and lean on us as u need to. We all understand and will be her to support u.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


MikeRules88
New Member


Date Joined Sep 2008
Total Posts : 2
   Posted 9/30/2008 5:45 AM (GMT -6)   
Thanks SO much for your responses!

I talked to the Doc and he thought it would be a good idea to do this work out/ eating healthy thing for a month. God I hope it works, I have this odd feeling that it wont. But you gatta keep hoping right? The journal does sound like a good idea.

Just out of curiosity, what keeps the Doc from diagnosing you guys with MS? I think mine doesn't because I don't have one of the MAJOR symptoms of MS. Like ON, weakness, fatigue, or just muscles not working.

Also this may sound completely idiotic. But what are the chances for a cure with this disease? Everything I've read makes this disease sound like a living hell to deal with. I'm surprised that it isn't very focused upon much in a mainstream perspective. Would stem cell research be a gateway to finding a cure quickly?
Just looking for a injection of hope with this thing. lol.

flutterbug
Regular Member


Date Joined Jul 2008
Total Posts : 31
   Posted 9/30/2008 9:08 AM (GMT -6)   
My brain MRI came back "good", so did EEG and EMG showed "nothing picked up on my right hand". (Severe carpal tunnel, but no pain). I was diagnosed with occular migraines because of the blurry vision, mostly in left eye, vision is fine. Also balance problems on and off. Bad concentration on and off. Feet and leg falls asleep or I get the sensation of spots of numbness on legs or arm. But I don't have MS. I just have c.t.s. and occular migraines. I guess I'm making the rest up.

Maluman
New Member


Date Joined Jun 2012
Total Posts : 1
   Posted 6/14/2012 10:22 PM (GMT -6)   
Hey MikeRules88,

My symptoms match yours very very closely. COuld you please tell me what you ended up being diagnosed with, and if your symptoms are much worse now then they were before. I am 23 years old, and am freaking out by my current symptoms. Please let me know you situation, and hope your are doing well

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3523
   Posted 6/15/2012 12:13 PM (GMT -6)   
Maluman,

The thread you posted to is a couple years old. Don't feel bad if you don't get a response. I'm sorry to hear you are having symptoms that are scaring you. I hope you get answers real soon.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

cakelady11
New Member


Date Joined Aug 2011
Total Posts : 2
   Posted 6/16/2012 5:51 PM (GMT -6)   
When I was 35 years old I started having MS symptoms, just some dizziness and tingling. I had an MS work up that showed basically nothing out of the ordinary. Over the years I continued to show signs of "something". I had already long forgotten about my previous MS symptoms from years ago, you see, I'm overweight by at least 75 lbs and everything was blamed on that or my bad back (another story for another forum).  In June 2011 I got hit hard with multiple MS symptoms and when I started slurring whole sentences I went back to the doc. It has taken a year for a DX, I am 52 years old.

nikki1980
Regular Member


Date Joined Jan 2012
Total Posts : 32
   Posted 6/20/2012 11:21 PM (GMT -6)   
So did you get diagnosed cakelady? I got hit with the MS dx very quickly. My situation is different from everyone elses I've heard. I just woke up totally blind in my left eye, got put in the hospital, they did the mri and said I have over 80 lesions. My vision came back after IV steroids in the hospital, and I got started on Copaxone (MS treatment). Doing good now, I do have a shaky left hand but I can deal with that. I am 32 yrs. old, female with 2 kids. No one else in my family has MS and sometimes I'll rack my brain trying to figure out what I did that caused this. Waste of time, I know. No one seems to know for sure what causes MS, its all theories and speculation. The MS affects every person differently, so the future is uncertain. I guess everyones is anyway, MS or not. But I am thankful that they caught this and got me on treatment quickly. People with MS can lead normal lives so if you do get that diagnosis just get started on treatment as quickly as possible. I hope that the Dr.'s figure this out soon. Have faith that they will.
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