Let's Introduce Ourselves!!

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rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 10/8/2008 9:03 AM (GMT -6)   
Hey Everyone!
 
We have quite a few new members so I thought it'd be nice if we took some time to introduce ourselves and, if u'd like, tell a little about u'rself outside of MS/limbo. If u like to build doll houses, tell us about it! If u like to read, tell us u'r fav book! Be careful to follow forum rules...tisk tisk tisk nono ....and let's have a little fun!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 10/8/2008 9:11 AM (GMT -6)   
Hey Everyone

I suppose i should start us out since this was my bright idea. (hehe)

I'm a stay at home mom with three girls and a 47 yr old boy. They are Danielle, Sally, Samie and Danny. We live down in southeast Mississippi and my husband is a realtor/appraiser. My girls are mostly good girls, but they do have their days! I've been in limbo for a little over 2 1/2 years. I'm told it's NOT ms, but what it is, we don't know. I have or had many of the ms type symptoms, but for now they are mostly gone. I have felt more like myself in the past 6 months than i have in the last almost 3 years. I do know that there is that chance the symptoms will reappear and that does weigh on me, but for now i'm very well! I love to work! I do lots of 'man' things because i want to see if i can. I CAN!!! EEEEK!!! This summer i put in a brick walkway to my house among other such things. I love living life and plan to continue going at it as hard as i can! I have this AMAZING best friend!!! U would all love her so much!! My husband ...Danny...is fantastic!! He has a great sense of humor and is quite cute. My girls...well they are just perfect with the exception of their imperfections. ;) That's about it!

Have some fun with this friends! Let's all just relax.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Katie7
Regular Member


Date Joined Apr 2008
Total Posts : 114
   Posted 10/8/2008 12:21 PM (GMT -6)   
scool  What a great idea Rhonda, now I can take the glasses off... turn hehehee!
 
I am a very happily married gal of almost 29 years with 2 sons and one daughter-in-law. We live in the country and had horses for years ( they were part of the package when my hubby married me) haha!  We dont have any horses of our own currently, so we let some freinds keep theirs here and we get the bonus of enjoying them and not having to brush hog the pasture:) Plus they do all the fun barn chores that I have done for years.
 
I have had many occupations from the most recent one of teaching aerobics which I gave up this past spring cause of poor balance, but intend to get back into it soon. My main occupation was a surgical assistant years ago but gave it up to be a stay at home mom. I ski patrolled part time in the winters and trained horses and gave lessons and taught at a therapuetic riding center. ( See what I mean, lots of odd and end jobs) I like to be busy and am not afraid of work, like Rhonda, I probably go overboard with it sometimes. Theres always things here that need done, gardens galore, canning....oh and I have a mural business ( how could I forget that,). I am very big on Art and have painted murals for friends for years and just turned it into a LLC this past year. I also do reverse painting and got into my first Juried show this past May which was exciting. Naw, didn't win anything though. I also love to read and one of my very favorite writters is Beverly Lewis, I have all her books and can read them lickity-split!
I found this site back in April of this year when I was told I had possible MS due to pain in my left eye and blurry vision. It has been great all the knowledge people share, and I dont feel so alone with it. Whenever I have a new question about MS I know I can come here and get many answers or suggestions...many which have helped me in knowing what to ask my own Dr.
 
Okay....hows that smhair did I go a bit overboard... rolleyes ....glasses back on everyone, have a great day cool . Hugs~Katie
What you put into the lives of others comes back into your own ; The will of God will never take you where the Grace of God will not protecxt you!
                              Hugs~Katie
                  Diagnosed ~ August 2008


Katie7
Regular Member


Date Joined Apr 2008
Total Posts : 114
   Posted 10/8/2008 12:44 PM (GMT -6)   
OH...One more thing, my spelling mistakes are NOT typos...I am the world worst speller blush   well maybe some typo's) yeah turn   <just love these little guys,so fun~Katie
What you put into the lives of others comes back into your own ; The will of God will never take you where the Grace of God will not protecxt you!
                              Hugs~Katie
                  Diagnosed ~ August 2008


Grace13
New Member


Date Joined Oct 2008
Total Posts : 13
   Posted 10/8/2008 5:58 PM (GMT -6)   
Hi everyone! I just joined. I am wondering about MS - I'll start another post with my inquiry. A little about myself:

I'm a 32 year old preacher's wife. I have a current diagnosis of Fibromyalgia and panic disorder. I was a paralegal until I had to stop working in 2007 due to extreme pain, fatigue and panic attacks.

I enjoy Christian messageboards and writing Bible studies. I used to hike a lot, but I'm unable to now. I love gardening and can't wait till the Spring so I can plant some new flowers! We just moved (hubby's new job) and our yard is pretty bare!

I have two children, one in high school and the other in elementary.

That's the short version of "me" - I look forward to getting to know everyone here!

~Grace

Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 10/8/2008 7:04 PM (GMT -6)   

Great thread Rhonda! Well, let’s see here…I love plants and animals, and spend a lot of time with my flowers and fish and frogs in the garden. I have a long-term boyfriend, and we just added to our family this weekend…a little baby parrotlet (the smallest true parrot). I have been talking baby talk to a tiny parrot all week, and getting excited over things like perfect parrotlet poops! I am in love already!

I’m not able to work right now, but it is one of my greatest wishes to be able to again someday. Other things I enjoyed in the past include dancing and traveling. I have gone round and round with this MS thing over the past few years. I have “had” CIS (one MS attack) then was told I had moved on to MS and started on Copaxone, then undiagnosed, referred to an MS specialist who said, “what else can it be” but at the next appointment was saying it was CIS. At my most recent appointment he was back to calling it MS, but I don’t know whether my official diagnosis is MS or CIS at this point. I am so confused, so I just try and stick to my plants and my critters as much as possible. wink

Sunny


aggiemom
New Member


Date Joined Aug 2008
Total Posts : 7
   Posted 10/8/2008 9:14 PM (GMT -6)   
I am a SAHM with 3 kiddos under the age of five. Two boys and a girl. The boys keep me moving all day, totally exhausting. My husband works for himself and owns his own software company. We live in Texas. I LOVE to read. Will have to check out Beverly Lewis-Katie; I am looking for some good fiction. Francine Rivers is my favorite. She's an amazing writer. I am enrolled in a Children's writing course. I would love to write once my kids all get to school. I love music and ice skating..... last time I went I was off balance and falling wasn't so much fun. I am in limbo. ON in July 08 and LOTS of weird ms-ish things going on. But praise God for clean MRIs!

Elizabeth

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 10/8/2008 10:58 PM (GMT -6)   

Hi everyone,

This is a great thread, Rhonda.  I have been taking a little break from this place.  I am still laying low but I thought I would post to this thread so you wouldn't forget me.  I am married to a great guy, Tim.  We have two sons; Jimmy (14) and Teddy (11).  I teach 5th grade in a public school.  I love all things animal.  I have two staffordshire bull terriers.  One is a retired show dog who also happens to be the breed rep. in the AKC complete dog book.  I have a cat, a horse, a cockatiel and a goldfish.  I enjoy reading (when my eyes are up to tracking correctly).  I love movies.  I am a baseball fan.

I love life even with MS.  I enjoy talking to and supporting others with MS. 


Gretchen       co-moderator MS board       diagnosed with MS July 2006


mystery reader
Regular Member


Date Joined Jun 2007
Total Posts : 257
   Posted 10/9/2008 4:20 PM (GMT -6)   

Hey everyone!  I am a university professor and teach full time.  I teach Political Science so I have been very busy the past few months.  I have to admit that I am also so ready for this election to be over.   I love to read (mysteries, legal thrillers, government thrillers, etc.), and hate to grade papers and tests.  I also enjoy movies.  The weather has been beautiful here for the past few weeks, and the leaves are just starting to change color.  My dream is to one day own a book store in Cape Cod.  I would name it "Rock and Read."  Now I just need to hit the lottery tongue .

I was dx on March 29, 2007. MS is stable (I think) even though I have not been able to tolerate CRAB's or tysabri. 



Barb/mystery reader
Diagnosed April 2007
Started betaseron --  May 2007 -- experienced allergic reactions after 2 weeks
Started copaxone -- June 2007 -- stopped after 4 1/2 months;experienced  severe 5 IPIR's
Started tysabri -- December 2007
Stopped tysabri -- April 2008 (developed antibodies/severe reactions)


colee1979
Veteran Member


Date Joined Jul 2003
Total Posts : 667
   Posted 10/9/2008 11:37 PM (GMT -6)   
Hi all :-)
I am a 29 yr old Mommy with two kids. Emily is 7 and Ryan is 3. I've been married to my high school sweetie for 8.5 yrs. Joe works 50+ hrs a week in a factory that builds oil burners for heaters. Aside from having MS,I have UC(Ulcerative Colitis). I was dx in 2002,and unable to work pass 2003. I was very ill,homebound for 3 yrs. Came close to having the colon removed. I was awarded SSD by a Judge in 2005,and am considered 100% fully disabled. The Judge took into account ALL of my syptoms,because the Dr's knew so much was wrong,but we didnt know everything at that point. I was dx with MS in 2006.
My family and I are crazy! Yes,I said it..LOL..we are each others soul mates,seriously! We have a great bond with our kids and have a nice balance of fun and still being the authority. If I could freeze time right now,this would be the age I froze. I love the ages of the kids and everything awesome they are doing in school. Emily is my smarty pants. What a kid! She is in the 2nd grade this year and begun GATE program for gifted and talented eduation. She is a perfectionist and rarely ever receives a grade lower then a A-. Ryan is my shy little man that is quiet but sly. He doesnt skip a beat,knows everything that goes on,even when you think he isnt paying attention. I think he would hang from the ceiling fan if I let him. As a matter of fact,I caught him on the dining room table today pulling the switches turning on the fan....so I bet he was plotting his plan. shocked
I rarely ever have a quiet house,kids in and out all day long,everyday. This is basically the place everyone comes to to play,mostly because I like to know exactly where my kids are and I know they are safest here. When I do get peace and quiet I enjoy scrapbooking. I am sooooo far behind with pictures. But it's so relaxing to create a page that it doesnt matter how far behind I am,but that I can just do a page. We also love camping as a family. The advanture to sleep in the woods and peek out the screen windows a raccoon eating your left overs..it's just the neatest thing to watch,and even neater to watch the kids expressions. We love taking nature walks in the woods,looking for "dinosaur tracks" or whatever animal it be that day. We also play alot of monopoly and dice with friends..though we love all games
 
~Nichole~
 
Dx with Ulcerative Colitis September 2002
Dx with Multiple Sclerosis August 2006
 
 
 


Sweetlydia66
Regular Member


Date Joined Mar 2007
Total Posts : 260
   Posted 10/11/2008 1:55 PM (GMT -6)   
turn  HEY All,
Cute idea Rhonda. I am 42 years old, I have a daughter named Dana and she is 11 years old. She quite a handful and keeps me on my toes. I live with Greg (Dana's Dad)  the past 13 years. I work full time and like to shop shop shop when i have the energy. Love the beach when we go on vacation and someday would love to live there. Oh, and we have a real bold doggie named Coconut. He real cute, but hes a brat.
Take care
Lynn
Dx MS December, 2006
Started Tysabri March, 2008
Baclofen/Zanaflex Combo,
Cymbalta and Provigil


Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 10/15/2008 9:04 AM (GMT -6)   
Wednesday a.m.
 
Great Idea, Rhonda:
 
My name is John Francis. I live in suburban Detroit MI. I was dx'ed on June 21st, 1987.  When the neuro said my symptoms were because I had Multiple Sclerosis, I did not know what MS was.....but I soon learned.
 
The next year I married my sweetie....who said ".. I do..." despite the fact that I had a disease with no cure.  That is LOVE!!!
 
For the first 15 years of my MS life, you could not tell I was a MS patient.  Needed no walking assistance....
 
But...over the last 5 years....I have progressed from cane..to walker...wheeled  walker...now to electric wheelchair.  As it is.
 
While I do have MS, I have a beyond great wife and immediate familily.  And a wonderful neuro.
 
I hope I did not go on too much.  John
 
 
DX'ed June 21st, 1987
 


bohuck2
Regular Member


Date Joined Dec 2008
Total Posts : 196
   Posted 12/29/2008 2:23 PM (GMT -6)   
Hi everyone, I am Chuck from SE Idaho and I have been diagnosed with PPMS. I was diagnosed with Relapsing-Remitting MS in July, 2006 and in May of 2007 re-diagnosed with Primary Progressive MS.
I am 60 years old and this has really been a big burden on my wife and I. Never really knew what people that had MS went through before but now I have all the respect in the world for it.
Sure glad that I have a great Neurologist here in Idaho Falls. I don't know where I would be without him.

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 12/29/2008 6:10 PM (GMT -6)   
Hey Chuck!

Welcome to the board! I hope u'll be comfortable here and will feel u can ask any questions u may have. I"m so sorry for u'r dx and progression, but glad u'r here with us and reaching out to others who will understand u'r world.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


jirish
New Member


Date Joined Dec 2008
Total Posts : 18
   Posted 12/29/2008 8:28 PM (GMT -6)   
Hi! My name is Jeanne, I am 47 years old and I live in cold! cold! Illinois -near Chicago. I have been married for 25 years and have a 24 year old daughter and a 18 year old son who just finished his first semester at Columbia College in downtown Chicago. I was diagnosed with MS in 2006. I have been on Nueronton and Baclofen and have done self injections of REBIF. I work for a big box store as a sales associate. This is exhausting but need the $ unfortunately-but I have made some wonderful friends there so that is a bright spot. That is my "job" but my real passion is my ebay business which is all handcrafted items. I decoupage, sew, paint and cross-stitch and my dream is to somehow make enough money to stay at home and do this full time. I love to shop at craft stores, antique stores, resale and garage sales!!! I hate to cook-but my favorite tv shows are cooking competitions like "Top Chef" and Iron Chef. I love to read-wish I had more time to do it! My husband Kevin gave me a piano keyboard for Christmas so I plan to teach my self to play in the new year. That's about all-with this disease I like to stay close to home, but I would love to travel more in the future.

bohuck2
Regular Member


Date Joined Dec 2008
Total Posts : 196
   Posted 12/30/2008 7:16 AM (GMT -6)   
Hi Jeanne,
I am orginally from Joliet, Illinois. Wife and I moved to Idaho in May, 2000 after I took an early retirement from ComEd. I know what you mean about cold Illinois as I lived there for almost all my life until I smartened up and moved to the nice, warm temps of SE Idaho (yea right); there's a foot of snow on the ground now and temps get down to the minuses some days and we even have had snow on the 4th of July here. At least we don't have the humidity here like we had in the Chicago area.

bohuck2
Regular Member


Date Joined Dec 2008
Total Posts : 196
   Posted 12/30/2008 12:35 PM (GMT -6)   
Thanks Rhondab, I already feel comfortable here thanks to you and everyone that's here. It's a great place to hang out at.
Chuck Huckaba
AMWTP Training Instructor
Idaho Falls, Idaho


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 12/31/2008 11:57 AM (GMT -6)   

Hi Chuck,

I am late getting on here to welcome you.  I have been out of town visiting another member here, "sunnycitrus".  You have certainly made yourself right at home!! This pleases me of course.  We don't have that many men posting here.  I am so glad you feel comfortable here.  I love that you are posting so often both with questions and support for others.  I would lilke to remind you that we have a live chat on Monday afternoons.  It is at 5pm moutain time which, I believe, is your time.  I do hope you would join us sometime. 


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


bohuck2
Regular Member


Date Joined Dec 2008
Total Posts : 196
   Posted 12/31/2008 2:05 PM (GMT -6)   
Gretchen,
Thank you. I have lived with MS for some time now and the only thing I find aggravating about it is the exhaustion, which many others probably feel the same I am sure. Talk to you later. Have a Happy New year!  Thanks for inviting me to the chats! I will try to make it as much as I can! yeah
 
 
 
 
                                           Chuck Huckaba
                                    AMWTP Training Instructor
                                          Idaho Falls, Idaho
                                  Diagnosed with PPMS May, 2007
                                   but still working at the present.         
                Tried just about everything there is for MS, including Tysabri
                               Waiting to start Cytoxin Treatments soon.

Post Edited (bohuck2) : 12/31/2008 2:37:32 PM (GMT-7)


2Tired
New Member


Date Joined Dec 2008
Total Posts : 17
   Posted 12/31/2008 3:43 PM (GMT -6)   
Hello All, Im a New Member too,So Far I Really Like it here,Everyone is so Friendly & Caring. I was a Preschool teacher for 21 Yrs. Ages - Infants to Schoolers & Everything in between. My Favorite age Group was 3 Yr. Olds,I Really Miss Teaching SO VERY MUCH!!!!! I was also a Singer in a 4 part Harmony Group,3 part Harmony Group & a 2 Part Harmony Group. My MS effects my Throt so I Had to stop Singing to. I use A cane,Walker W/wheels/Seat/storage And an Elevtric Scotter for Long trips or if my Legs are real Weak. I love to Paint,Oil,Acrlic,Water Color,I love making Cards for my friends & for Church members & for anyone I hear needs one,I Paint & declopag cigar box`s for Friends & hopefully Soon to Sell. I love to Read,Watch Ice Skating,Movies & Crime Shows. Bruce Springsteen is My FAVORITE singer/song writer.Purple & Teal are my Favorite Colors. Im a Tree Hugging Hippi/Folk Type. I Also Love Animals.We have 2 cats. We`ve had a Purple Christmas Tree the Past 2 Years & We Just Love It.PEACE & FRIENDSHIP. Have A Very Happy,Safe NEW YEAR. Take Care & Be Safe. purple2

bohuck2
Regular Member


Date Joined Dec 2008
Total Posts : 196
   Posted 12/31/2008 4:20 PM (GMT -6)   
2tired,
If you love to paint then you can come over and paint my house this Spring when the snow melts away ok? tongue
 
 
 
 
                                           Chuck Huckaba
                                    AMWTP Training Instructor
                                          Idaho Falls, Idaho
                                  Diagnosed with PPMS May, 2007
                                   but still working at the present.         
                Tried just about everything there is for MS, including Tysabri
                               Waiting to start Cytoxin Treatments soon.

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