Confusing Symptoms

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Jazzman48
New Member


Date Joined Sep 2008
Total Posts : 4
   Posted 10/14/2008 10:54 PM (GMT -6)   
Hi, I'm new to the forum and I've been kicking MS's butt for 11 years +. I've been dealing with spasticity in my left leg for about five years now. However, in the last year and a half, the spasticity seems to extend all the way up to my lower left jaw/face. The worst part of this symptom is that it creates a terrible pain in my chest that feels like heartburn x3. My neurologist has never heard of this problem before and she prescribed 300mg of Lyrica and about 80mg of Elavil after I told her I took these two medicines out of desperation. It seemed to work but now it has returned. Does anyone have experience with this type of symptom?
I write down everything I want to remember. That way, instead of spending a lot of time trying to remember what it is I wrote down, I spend the time looking for the paper I wrote it down on.
-Beryl Pfizer- Diagnosed ~ August 97'


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3532
   Posted 10/15/2008 7:52 AM (GMT -6)   

Hi Jazzman,

Welcome to the forum.  I am so glad to hear that you have been kicking butt!!  I love that! 

I am have not experienced your symptoms but I was wondering what you are taking for the spasticity?  You have lyrica; that is for nerve pain.  You have elavil; that is for depression.  Have you tired baclofen or flexeril or one of the other meds to reduce muscle spams? 

I to have some spasticity also in my left leg.  I have had good results with baclofen.  Talk to your doctor about trying that. 

Good luck and I hope you are feeling better soon.  Let us know.


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Jazzman48
New Member


Date Joined Sep 2008
Total Posts : 4
   Posted 10/15/2008 4:18 PM (GMT -6)   
Yes I do take Baclofen, but it doesn't do anythong for the pain in my chest. I've also had most of the heart tests. I forgot to say that when I'm sitting in a way that puts any pressure on the under side of my left thigh, I get the pains through my chest; and then sometimes I don't. It's very frustrating and sometimes I may only get 2 or 3 hours of sleep.
I write down everything I want to remember. That way, instead of spending a lot of time trying to remember what it is I wrote down, I spend the time looking for the paper I wrote it down on.
-Beryl Pfizer- Diagnosed ~ August 97'


Tá mé breá
Regular Member


Date Joined Aug 2008
Total Posts : 140
   Posted 10/19/2008 12:17 AM (GMT -6)   
I'm sorry that I do not have any advice for you. I just wanted to tell you I love the quote in your signature! it made me smile.
Marie-43 yr old mother of 6 grandmother of 1 going on 2!
dx 2008 - myelofibrosis - possibly autoimmune, osteoarthritis in spine, testing for possible MS or CNS lupus / vasculitis. family history - mother RA/Lupus maternal gma - lupus.
rx-cymbalta, propranolol, clonazapam, prednisone, progesterone cream, b6, b12, flaxseed oil, C.

"All we have to decide, is what to do with the time we are given" ~ Gandalf


popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 10/23/2008 11:07 PM (GMT -6)   
Jazzman,
In my experience spasticity and pain definitely went together. I had spasticity in left leg and extending up spine reaching to shoulders. I was allergic to baclofen at low dose so drs suggested pump as this way I get 1/300 of dose delivered where it is needed. Since I got baclofen in pump all spasticity up the spine is gone and leg is much improved. If I increase quantity of baclofen I get more flexibility in leg but I also get more unstable so I keep some spasticity. Pain followed the spasticity up the leg and back (10/10 spasms & then skin pain beyond 10/10) and that also has gone with the pump. However, I have always had a lot of pain, dull aches in buttocks, thighs, shoulders 7/10 (which gradually improve with Reiki but did not respond to baclofen) & also flares of intense nerve pain (which also decreased dramatically after pump). I stopped breathing automatically for a period (this too improved with reiki) but have only had chest pain with an anaphalatic shock reaction to a drug. Dont know if any of this is helpful. Wish you all the best, popsie :-)

Jazzman48
New Member


Date Joined Sep 2008
Total Posts : 4
   Posted 11/2/2008 3:09 PM (GMT -6)   
Thank you for the information, I'll talk to my neuro about it.
"Come then, affliction, if my Father wills, and be my frowning friend.
A friend that frowns is better than a smiling enemy." -anonymous-
Diagnosed ~ August 97'


Lee Umbower
New Member


Date Joined Nov 2008
Total Posts : 6
   Posted 11/7/2008 4:39 AM (GMT -6)   
I have issues with chest pain from spasticity also, The way my DR expalined it it is because the spacsticity is occuring in my chest wall. Sometimes it hurts so much it feels like I am having a heart attack. It's kind of a trial and error game until you find the right medication to ease it. I just hope you find the right one soon so that you won't have to suffer with it anymore :)

Jazzman48
New Member


Date Joined Sep 2008
Total Posts : 4
   Posted 11/7/2008 10:00 AM (GMT -6)   
Thank you for the information. You are the first person, other than myself, that has this symptom. How long did it take you to find the right medication? idea
"Come then, affliction, if my Father wills, and be my frowning friend.
A friend that frowns is better than a smiling enemy." -anonymous-
Diagnosed ~ August 97'


notinKansasanymore
New Member


Date Joined Aug 2008
Total Posts : 16
   Posted 11/10/2008 5:24 PM (GMT -6)   
Thanks so much for this thread. I also have this pain in my chest. about 8 years ago I had my gall bladder removed because I was experiencing these same symptoms. Within the last few years though I have gotten these pains again. Had a stress test with no apparent heart problems. Another clue in the long line of symptoms that may point to as MS diagnosis. Will have to let the doc in on this one. :-)
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