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Tá mé breá
Regular Member


Date Joined Aug 2008
Total Posts : 140
   Posted 10/15/2008 8:01 PM (GMT -6)   
I have a question. I have had this tight and tingly feeling across my back, but not all the way around my body, but now I am having the sensation that someone is holding my upper arms and thighs tightly. not all of them at the same time though. would this be associated with the hug, or something else altogether? has anyone else experienced this? confused
Marie-43 yr old mother of 6 grandmother of 1 going on 2!
dx 2008 - myelofibrosis - possibly autoimmune, osteoarthritis in spine, testing for possible MS or CNS lupus / vasculitis. family history - mother RA/Lupus maternal gma - lupus.
rx-cymbalta, propranolol, clonazapam, prednisone, progesterone cream, b6, b12, flaxseed oil, C.

"All we have to decide, is what to do with the time we are given" ~ Gandalf


Katie7
Regular Member


Date Joined Apr 2008
Total Posts : 114
   Posted 10/16/2008 8:18 AM (GMT -6)   

Hi Marie,

I was not sure but asked my Dr.....I have had the MS hug. He confirmed it for me. Mine was like a a tightening in my chest very severe nearly took away my breath. It even traveled into my jaw and I thought I was having a heart attack, got sick to my stomach and sweaty too. Can't say I felt it in legs at all, but it did go all the way around to my upper back. You should ask your Doctor about it just to be on the safe side. Good luck with this, I am only sharing what I experianced, others may have had it differently. Mine happened a year or so ago and it has happened twice before that. I had to even go through a heart cath twice, which was normal both times. I do know Acid reflux, which I also have can feel like that ( what I felt) at times. 

Hope you find out whats going on, Keep us posted. Hugs Katie


What you put into the lives of others comes back into your own ; The will of God will never take you where the Grace of God will not protecxt you!
                              Hugs~Katie
                  Diagnosed ~ August 2008


survivor2sweet
New Member


Date Joined Jun 2008
Total Posts : 7
   Posted 10/16/2008 10:04 AM (GMT -6)   
hey Marie, I have some tightening in my right side of my stomach and back. My right leg the upper part and lower will feel like a tight band is squeezing my leg. The Right side of my body is really numb and weird feeling all the time. I was DX in April 2008 with MS my symptoms started in Feb 2008. It was not until June 2008 that i started having this weird pain in the right side of my back then it wrapped around to my right side stomach. It is still with me but sometimes it is not as bad as others. For awhile i had sharp stabbing pains in my right stomache but that has went away. I seen a Ms specialist and he never told me what that was exactly. I have alot of symptoms and i definetly have ms. i have 5 lesions on my spine so far none on the brain. I take betaseron since June and Provigil for tiredness i have only been taken this for a 2 weeks. I have heard there are medicines for the tingling but not really sure about them. My story is long but i do know what you are talking about with the weird tightening. Sometimes i feel like i am crazy because some of my symptoms are just plain strange and very hard to explain to people. take care and i hope you get better. 


Tá mé breá
Regular Member


Date Joined Aug 2008
Total Posts : 140
   Posted 10/16/2008 3:07 PM (GMT -6)   
Thank you both for your responses. I added this to my long list of symptoms to discuss at next visit. ;>
Marie-43 yr old mother of 6 grandmother of 1 going on 2!
dx 2008 - myelofibrosis - possibly autoimmune, osteoarthritis in spine, testing for possible MS or CNS lupus / vasculitis. family history - mother RA/Lupus maternal gma - lupus.
rx-cymbalta, propranolol, clonazapam, prednisone, progesterone cream, b6, b12, flaxseed oil, C.

"All we have to decide, is what to do with the time we are given" ~ Gandalf

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