Hi everybody! This looks like a great resource.
Here is my brief history.
about 10 years ago I had double vision, confirmed weakness on one side and unexplained crying spells which was not normal for me. I'm a very happy person. They checked for MS with MRI and evoked responses etc etc. Got the all clear and everything was blamed on a possible virus.
Fast forward....about a year or two ago my middle toes start going numb for no reason. It lasts hours to days. Totally random. I just basically ignore it. When it happens I can't feel them at all.
6 months ago I experienced a wicked case of vertigo for 2 weeks, the room would completely spin as if I drank a keg of beer all by myself. It left as quickly as it came. Never happened before and has not happened again. Did not get treated.
4 weeks ago I start getting the same numb sensations in both my hands but mostly left. Dropped several things. This scared me so I went to the doctor. I felt like *something* was spreading. There have been times, at night, that my left hand/ forearm has been so numb that when I roll over it doesn't come with me. Also after walking short distances my thighs twitch for about an hour. Lots of little twitches that feel deep. Like somebody is tapping their fingers all over my muscles. I'm an avid hiker, been known to hike 15-20 miles in a single day. This twitiching is VERY unsusual for me.
My physician said "You have the classic symptoms of MS" and ordered another MRI which I had yesterday. It was an open MRI without contrast. After googling for the last few days I now see that it should have been closed and with contrast. I get the results in a few days.
Here are some other misc symptoms/conditions that I have had over 10 years. Pityriasis, very temporary loss of vision when I get hot, Terrifying hallucinations upon awakening, inability to move any part of my body but totally aware of surroundings. This happens several times in a row and goes away. It's been years since the last episode. Ruptured disc which has been ruled out as a reason for causing my numbness.
Anyway, back to my original question. I KNOW these things aren't normal. But I feel like the MRI will come back normal again especially since they didn't do the best kind. Since my symptoms aren't really debilitating I don't think I'm willing to push for a dx. I went through so many tests (10 years ago) last time only to be told that they didn't really know what was going on. I'm not sure if I want to go through all of that again. It brings me down.
Is there a real benefit of finding out sooner rather than later whats going on? Does early treatment help? Do you think that my attitude is just a defense mechanism because knowing the unknown can be scary? I just want to ignore it but I don't want to hurt myself in the process. I see so many people doing whatever it takes to find out whats wrong with them and right now I feel the exact opposite. Is there anyone out there like me?