More questions-just feeling lost

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king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 10/27/2008 10:44 PM (GMT -6)   
Hi guys. I went to two of my neuros since I found out I have stenosis and compressionof my c spine and both said this is not the cause of all my problems, though my GP thinks it is related to some and he is sending me to NS for an eval. One of the neuros said I have a chemical imbalance, that its anxiety and that I need medication for this. When I asked her about MS she looked at me and said YOU DO NOT HAVE MS, YOU HAVE ANXIETY. I asked if she was 100%sure, and she said YES. The other neuro said he thinks its anxiety too. Now here is my dilema. As in all cases, usually drs will ask if you are under stress. Well, yes...I was when a lot of this started, found out my dad had term pc (he has now passed), so I guess I feel like both are brushing it off onto that. If I told them no, would they have done more tests of given me more insight?
 
The neuros both also said since my MRI was clear (of head and full spine) I do not have MS. However, I have read in many situations people have MS and its not showing on the MRI.
 
I just dont know what to do. For 7 months I have had eye pain pressure which lately seems worse in my right eye--granted that could be from my spine. Outside of that, I literally woke up one day and just had pains jumping all over my body-fingers, toes, ankles-two days after the onset of the pains the vibrating/tingling started on and off in my foot. Now for 2 months EVERY DAY I have non stop muscle fascilations all over my body. The only thing that does not seem to fit MS is extreme joint cracking that I now have.
 
I just dont know where to turn. If I have MS I want to start treatment. I am driving myself crazy and just dont know what to think..if its MS, anxiety or something else. I havent had one day in 5 months where I have felt healthy since I woke up with all of this jumping around my body.
 
Thanks for listening.................
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing, fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
New as of Sept- basel cell skin cancer
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3532
   Posted 10/28/2008 7:10 AM (GMT -6)   

I am sorry you are not feeling well.  Remember, we are not doctors and we can't diagnose you.  You have had more than one doctor now say that you don't have MS.  Why don't you try treating the anxiety and perhaps that along with any treatment you can get from the NS for the stenosis and compression might get you feeling better.  Those two health situations are real and can cause a lot of pain and discomfort.  Again, the clear MRI is a really good sign that you probably don't have MS. 

I am very sorry to hear about your father.  I wish you the very best of luck.


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 10/28/2008 2:14 PM (GMT -6)   
King: Have a test for Lyme disease and go to the lyme disease forum here at healing well. The joint cracking is a symptom EVERYONE has on the lyme forum. And also, the jumping muscles and pain. Check it out, may surprise you when you read it.

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 10/28/2008 2:39 PM (GMT -6)   
Thanks Dowa. I have been and have been tested, came back pos for one band and IND for two-to be dx I guess we need two pos. Also saw a lyme dr who is testing me for co infections.

I hear sometimes people with MS get dx as lyme and its not lyme-visa versa, so I want to be sure I do cover both paths.

I know you are not a dr, but do my symptoms to you sound like MS?  It all seemed to start one week in June where it all just hit me at once-pains jumping all around my body mainly toes, tailbone, ankle, fingers lasting for minutes to hours then moving on. The twitching didnt start till Aug, and now since last night my pointer finger has been numb
 
Just confused and desperate for answers!
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 10/28/2008 4:32 PM (GMT -6)   

Hi King,

As someone with anxiety, and MS I thought I'd throw my two cents in....

With a clear MRI and two neuros adamant that you don't have MS, I'd say you don't have MS.  Your symptoms don't sound like anything I've experienced with MS, except the numb finger, but you have spine issues so I believe that could explain that.

Are you getting any treatment for anxiety right now?  Meds or therapy maybe?  I think this would be so helpful if you aren't.  I can feel the anxiety through your post and I know it stinks so bad!  Something to think about....  if I can help, my email address is on my profile.

Best to you and take a deeeeeeeep breath,

Shar

 


Diagnosed with MS April 2006
 
Started Tysabri Nov. 2007


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 10/28/2008 4:39 PM (GMT -6)   
Thanks so much. I also get vibrating and tingling in my foot. Is it common for MS pains to jump around the body and last anywhere from a minute to hours? Most of my pains all started the first week of June, along with the vibration. It was my ankle for a night, then it was my other foot for 30 minutes, then pains in my tail bone, shins, fingers. This same week I began getting nerve type pains too. The non stop muscle twitches started in Aug which I read can be related to MS as well. The only true constisant thing since this all started and a bit before has been eye pain...which I also read is a sign. All my blood tests (and I have had TONS) have been clear. So I guess my fear is I have MS (without the lesions showing) and that I wont get a dx for awhile, hence no treatment.
 
Thanks for listening to me. I am going to start Paxil on Monday and will see if it helps with any of my pains, or at least calm me down so that I am not obsessing over this.
 
Thanks again for being so kind to respond.
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 10/28/2008 5:08 PM (GMT -6)   
Are you being treated for Lyme co-infections NOW? Any LLMD would know that your symptoms are on the Lyme list. I was NEGATIVE on the wester blot, doesnt mean anything. I would talk to your Lyme doc, serioulsly, and go to the lyme forum and just read....Yes, the symptoms are almost identical which is how I ended up here, reading.  (:

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3532
   Posted 10/28/2008 5:35 PM (GMT -6)   

Dowa,

Thanks for your support here.  I appreciate you information. 


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3532
   Posted 10/28/2008 7:20 PM (GMT -6)   

Shar,

Thanks for your insight here as well.  I also think that anxiety could be the cause of a lot of this.  I appreciate you sharing your experiences with us.  I know it takes courage to talk about your health and anxiety issues.  You have offered a great deal of support here.


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 10/30/2008 3:03 PM (GMT -6)   

Hi Dowa. I am not being treated for co infections however I did just get tested for some.

 

I was having awful pains yesterday that I was almost in tears. My middle finger would get a bone  crushing pain for a minute, go away, then hit hours later, then my knuckle on my opposite hand got this pain for a few seconds, then back to my middle finger. Whatever it is kept hitting my middle finger on and off througout the day. I feel like the pains are getting worse.


----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 

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