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Andrea Jane
New Member


Date Joined Oct 2008
Total Posts : 13
   Posted 10/31/2008 8:17 AM (GMT -6)   
I got my report yesterday from my ENT appt. and it says I have a left beating and up beating nystagmus without fixation. Visual Pursuit test showed uneven eye movements at .2 MHz. Anyone have any clue what this is? When I looked it up it says it could be caused by a tumor or MS. I have had so many MRI's lately and cat scans that they have told me I have no tumor.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 10/31/2008 11:45 PM (GMT -6)   
This can be caused by many things.  This is related to your balance disorder.  There is obviously something going on with your cerebellum.  Google vestibulocerebellar disorders.  Also check nystagmus and visual pursuit.  You can damage this part of your brain through injury, or illness.  It could be MS, it could be a tumor, it also could be many other things.  I know that you have headaches as well; have you considered migraines? 
 
I have a moderately sized lesion on my cerebellum and that small amount of damage has caused so many issues.  The cerebellum is very complicated.  It is responsible for balance and spatial awareness as well as coordination between eyes and limbs.  It also controls eye movement and tracking. 
 
I hope you get some answers and feel better soon.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Andrea Jane
New Member


Date Joined Oct 2008
Total Posts : 13
   Posted 11/1/2008 8:41 AM (GMT -6)   
I would think after all of the mri's and cat scans I have had they would have seen if I had any kind of lesions wouldn't you think.  Can you have the beginning symptons of MS without the lesions? As far as my headache it is pretty much gone as of the past few days the only complaint I have is the constant dizzy feeling I am having.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 11/1/2008 10:33 AM (GMT -6)   
It is extremely rare to have a diagnosis without lesions.  Please read the following link.  Multiple Sclerosis means...........more than one scar.  You seem to be identifying very closely with MS.  Keep in mind there are a whole host of illnesses that can cause dizziness.
 
http://www.mult-sclerosis.org/diagnosingms.html


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.

Post Edited (Gretchen1) : 11/1/2008 1:20:34 PM (GMT-6)


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/1/2008 8:28 PM (GMT -6)   
A tumor would have shown on your MRI I believe.
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
 
New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 11/1/2008 11:48 PM (GMT -6)   

I’m not sure what your specific results mean, but just wanted to add that even something as “benign” as Benign paroxysmal positional vertigo (BPPV) is frequently associated with several forms of nystagmus. Check out this article for more info: http://www.emedicine.com/ent/TOPIC761.HTM

BPPV was my initial diagnosis, in spite of the fact that my vertigo was not positional. Only later, after additional symptoms developed, I had an abnormal MRI, etc etc,  was my vertigo blamed on a lesion in my cerebellum. This lesion was visible on the MRI.

I’m in no way saying you have BPPV, of course, but just wanted to throw another option out there….something that is not as serious, so to speak. Hang in there, and take this diagnosis process one step at a time. I know it’s hard not to stress, but try not to jump to the worst conclusions without proof you need to go there. I do know vertigo is a miserable thing, and hope you feel better very soon!

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