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momofltlbrat
Regular Member


Date Joined Apr 2007
Total Posts : 164
   Posted 11/1/2008 5:03 PM (GMT -6)   
Hi all,
 
I know it has been a long time.  I have been lurking, and following with the neurologist and rheumatologist.  Still frustrated.  They haven't given up on me, so that keeps me trucking along.  On November 18th I am scheduled for a nerve biopsy as my next test.  In doing my research I learned they can find damage to the myelin sheath this way.  So I assume that it will rule in or out MS.  My inflammation rate is through the roof and I'm tired of being in pain.  If it is proven to be lupus the rheumotologist said we will have to try chemo drugs that will make me immunosuppressed and lose my hair, so thankfully she wants a definite diagnosis before we go that way.  I was just wondering if anyone here has experienced a nerve biopsy that would share advise.  I know it will be about 5 inch incision on back of my calf, stitches for two weeks, and permanent numbness in that area.  Oh yeah.
 
On a happier note the girls and I moved into our new house on October 10th and finally have the new start I've been waiting for since the divorce.  I have many boxes still to unpack, but the majority of what we need is out, now I get to shop for pictures and the other fun things that will make it a home.  The paint colors all turned out great and I got new furniture for the kitchen and living room.
 
Hope everyone else is doing well.
Love,
Debbie

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/1/2008 8:27 PM (GMT -6)   
What is a nerve biopsy? Do you mean a nerve conduction where they zap the muscles to see if the nerves are working, think its called an EMG?

----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
 
New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


momofltlbrat
Regular Member


Date Joined Apr 2007
Total Posts : 164
   Posted 11/1/2008 9:51 PM (GMT -6)   

I had the nerve conduction test and that came back slightly abnormal.  The nerve biopsy actually removes part of the nerve for testing, ie permanent numbness.

Debbie


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/1/2008 9:54 PM (GMT -6)   

Of wow, very interesting

 

If one has a good EMG does that help rule out MS


----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
 
New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 11/1/2008 11:19 PM (GMT -6)   
(((Debbie))) sending good thoughts your way.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3531
   Posted 11/2/2008 12:09 AM (GMT -6)   

Hey Deb,

It is so good to hear from you again.  I miss you!!! Come to chat soon ok? Give ltlbrat and bigbrat pinches from me.  Kiss the dog.  I don't have any info for you.  I just wanted to show my support.  I want to wish the best of luck and let you know I am thinking of you.  You have my thoughts and prayers.  Take good good care and let us know what you find out when you get your results.

 


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.

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