Welcome to the board. I too am sorry to hear of u'r ON problems. I have probs with my eye and tho it's been dx'd as early ON, it's also been dx'd as migraines and various other issues. That said, i can tell u i've done my share of research on ON. I'm not aware of any other treatments...legitiment treatments giving proven results. I've done some googling tho and thought i'd share what i found. Best wishes to u and please do let us know how u'r doing. I'm glad u'r here and hope u'll find the support and compassion u may need here.
Well I'm reporting back and pleased with my results.
Under the guidance of my naturopath, we tried some natural solutions which eliminated the pain in my eye and head within about three days. Now, after 2 weeks my vision is almost completely restored. She explained that steroids act as a pain killer and anti inflammatory, so we looked at natural alternatives.
For those who are interested, we used Bromelaine, which is a natural anti inflammatory, and two Homeopathic remedies. The homeopathic remedies are very specific to each person and their symptoms so it is best to talk to a naturopath.
I also visited my chiropractor and had both spinal and cranial adjustments, which also provided relief.
I have to disagree with your information on Optic Neuritis. Most of the time Optic Neuritis is easily seen by an opthalmologist. If the Optic Neuritis is "retrobulbar" in location then it can be more difficult to see. In that case, it can easily be diagnosed by a visual evoked potential along with clinical symptoms.
I am very glad you are feeling better. It is great to hear that you were able to avoid steroids.
Well actually I should probably recind my comment from before. I did more internet research. I was told by my PCP that ON is easly seen, BUT upon more poking around on the internet...........I have found that the "optic nerve disc" that joins the retina shows inflammation from 1/3 to 2/3 of the time. So you can have ON and have it NOT show with the eye exam. However I also found out that when it does not show,.....it supposedly shows up either in the evoked potentials or this pupil dilation exam.
I am very glad you are feeling better. I am a firm believer in anti-inflammatory supplements and foods. I am trying to avoid those pesky steroids in the future.
Thanks again for posting. You have some experience with the alternative treatments and we could use your expertise here.
Post Edited (Gretchen1) : 11/16/2008 10:50:56 AM (GMT-7)
LDN....not licenced for MS or its effects but my boyfriend has taken it since being diagnosed 5 years ago and have only had 1 relapse in that time
He had massive spasticity in his arms and ON - now he is virtually symptom free
If you want more info let me know
Welcome to the board. It was not an uncommon practice to withhold an MS diagnosis from a patient back in the time when there really wasn't anything to help MS. Now that there are a couple of progression therapies and drugs to help with symptoms, most patients need to know as soon as possible. Even those people who choose not to take a progression therapy monitor their disease with MRIs and neuro exams.
Welcome to the board. You should feel better real soon. It took me about five or six days to recover from the steroid crash. I didn't taper either. I hate that crash but I hate taking steroids for even a day longer than I have to. I am so glad you are feeling better. Hang in there.