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Meche
Regular Member


Date Joined Nov 2008
Total Posts : 41
   Posted 11/6/2008 5:17 PM (GMT -6)   
Hi all,
 
Just wanted to introduce myself. My Names Meche, I am 27 years old and live in Kilmarnock, in Scotland. I was diagnosed with MS in April of this year,so bit new to all of this.
 
Now I have got to grips with the diagnosis, I am looking to speak with people who are going through the same thing maybe get some ideas on better ways of dealing with every day life.
 
Look forward to getting to know you all!!!
 
Meche
 
 

Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 11/6/2008 5:52 PM (GMT -6)   

Hi Meche, and welcome to the board!

This is a great place to come for support and information, and I hope you’ll enjoy it here. I’m looking forward to getting to know you too. :-)

Sunny


mystery reader
Regular Member


Date Joined Jun 2007
Total Posts : 257
   Posted 11/6/2008 6:56 PM (GMT -6)   
Hi Meche,

It is nice to meet you!
Barb/mystery reader
Diagnosed April 2007
Started betaseron --  May 2007 -- experienced allergic reactions after 2 weeks
Started copaxone -- June 2007 -- stopped after 4 1/2 months;experienced  severe 5 IPIR's
Started tysabri -- December 2007
Stopped tysabri -- April 2008 (developed antibodies/severe reactions)


Lee Umbower
New Member


Date Joined Nov 2008
Total Posts : 6
   Posted 11/7/2008 4:11 AM (GMT -6)   
Hi Meche :) welcome to the forum, I hope you find as much useful information as I did :)

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 11/7/2008 9:50 AM (GMT -6)   
Hey Meche!

Welcome to the board! I too hope u'll find the support and information u'r seeking! I'm so sorry for u'r diagnosis, but really glad u'v decided to seek others who will understand the position u'r in. Please do post as often as u'd like and ask any questions u may have. Are u on any of the progression therapy meds? What symptoms do u deal with on a regular basis and what meds are u using to help with that? Tell us more about u'rself. Again, welcome to the board!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Meche
Regular Member


Date Joined Nov 2008
Total Posts : 41
   Posted 11/9/2008 9:04 AM (GMT -6)   

Hi All,

 

Thank you for welcoming me to the board.

 

I am currently on beta interferon injections called Rebif, I take 1 3 times a week.  I had a small relapse in Feb, then a disabling one in April, which was very frightening, especially as I have 2 young kids, Scott and Emma. I go to a rehab centre in Irvine called the Douglas Grant Unit and they are very helpful especially after intial diagnosis, as I had to attend physio. 

 

The MS I have is relapsing and remitting, since being on the injections, I have been OK, but sysmptoms are rapid eye movement, but not all the time, Fatigue and stiffness in my legs and arms.  As I have only been on the medication for a few months, I still suffer the side effects which are flu like.

I was working full time with a company for the past ten years but was made redundant last Monday, bit dodgey if you ask me but whats the point of being bitter.

 

Since being diagnosed with MS I have realised that there is a lot more to life, my outlook is to live for the moment and take each day as it comes, The way I see it I am quite lucky as my diagnosis could have been a lot worse, I could have been diagnosed with a terminal illness.

My family have been very supportive, and my other half is always on the look out for new research into MS, so its not all bad. 

Not had a very good year in 2008 but being diagnosed with MS has opened new doors for me, I mean if I hadnt been diagnosed with MS, then I would never have joined this site and be meeting new people.

 

Once you all get to know me you will all realise I have a good sense of humour, often quite sick, but never hurtful towards any one, if we didnt laugh we would all cry I suppose.

Thats all I can think of to say just now about how I was diagnosed with MS and what Meds I am on. If there is anything at all anyone would like to ask me, please do so.

 

Look forward to speaking to you all again, and thanks for being so welcoming.

 

M

xxx

 

 


Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 11/9/2008 4:38 PM (GMT -6)   
Sunday p.m.
 
Good evening, Meche:
 
Love your first name----
 
So...2 youngsters, eh?  Are they kickin' your butt??
 
Scotland, eh?  My wife and I watched a t.v. show this afternoon about all the James Bond movies, including her all time fave...Sean Connery!!!
 
 
Welcome to the board....full of very, very nice people!!!
 
John
DX'ed June 21st, 1987
 


Meche
Regular Member


Date Joined Nov 2008
Total Posts : 41
   Posted 11/10/2008 6:02 AM (GMT -6)   

Hiya,

Thanks for the reply, I am already finding out how nice people are on this site,.

Yes from sunny scotland or should I say rainy!!!  My Son and partner are both into James bond and yeah got to agree with your wife Sean Connery is one of the all time best!!

Kids are 9 and 5 so fight like Cat and Dog so they keep me on my toes and keep me busy, but wouldnt change them for the world.

There was a programme on ITV few weeks ago about MS and how Scotland has one of the highest rates, but poor government funding, the presenter went over to Canada and there research into it is amazing, the things I am learning about is MS amazes me as until I was diagnosed with it, even though my grandfather had it, I was quite ignorant towards it.  I also read in one of the Scottish papers that British scientist have a drug which appears to reverse the symptoms of MS.  The treatment has been found to stop the disease on its tracks.  Research also suggests it can reverse the effects of the disease.  That day there was also a news report on it, where a professional golfer had to give up the sport but after being on this drug, he can now play again.

Sorry if you have all heard about this, but think its amazing  the research that is going on, that I didnt know about, although I am still learning. 

 

Meche

 

 


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3521
   Posted 11/10/2008 10:01 AM (GMT -6)   

Hey Meche,

I am late getting on here and welcoming you to Healingwell.  you sound like you have a good and gratifying life.  I loved hearing about your children fighting like cats and dogs!!!  I am glad you have a supportive partner.  That is huge. 

This is a scary disease but you can live with it and still enjoy life.  You will go through many emotions as you adjust to a future with a chronic disease.  We are here to support you as you learn to live with this.  Please ask lots of questions and tell us how you are doing. 

Again, welcome to the board.  We are glad you are here.


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Steph57
Regular Member


Date Joined May 2008
Total Posts : 58
   Posted 11/10/2008 5:50 PM (GMT -6)   
Welcome Meche!
 
I tried to post to you earlier, but it disappeared on me suddenly. I probably hit the wrong key. Anyway, I'll try again tomorrow, but maybe you'll be in the live chat romm (which is supposed to start in 11 minutes)!
Steph57
smilewinkgrin  
 


Meche
Regular Member


Date Joined Nov 2008
Total Posts : 41
   Posted 11/11/2008 12:55 PM (GMT -6)   
Hi Gretchen and Steph,

Thaznk you both for your replies, its lovely chatting to so many people. Sorry I didnt make the live chat but if you let me know when the next one is and also what time I should join in, I will make sure I am available and get a good old chin wag with you all.

Speak to you all soon.

Take care

Meche

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3521
   Posted 11/11/2008 4:50 PM (GMT -6)   
Meche,
 
We chat on Mondays, however, we chat at 6 central time (USA). I am afraid that might be around 11 or 12 at night for you!  I am not sure about the time difference between us.  I am guessing there.  We would love to have you anyway!!  Maybe we can set up another time that works better for you as well. 
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Meche
Regular Member


Date Joined Nov 2008
Total Posts : 41
   Posted 11/12/2008 3:26 AM (GMT -6)   

OMG!!! tongue I totally forgot all about the time difference, DOH!!! confused   (really love these wee icons)

Well not working at the moment, so may be able to get online then.  Although a Monday is the first day I take my injection after the weekend, and I feel quite tired on a Monday.  Ill try and keep awake LOL.

I have being doing some job search last night and today (well it is 9.22am in Scotland and its freezing cold), right November weather!!!

I posted few applications away and my CV so everyone keep their fingers crossed for me I get somewhere.  Never been unemployed so this is all new to me!!  My son informed me this morning that I "need to hurry up and get a job" !! out of the mouths of babes eh!!

Ill let you all know how I get on, hopefully my luck will turn now, 'cos right now if it wasnt for bad luck I would have no luck at all!!!.

 

Meche

xx


Steph57
Regular Member


Date Joined May 2008
Total Posts : 58
   Posted 11/12/2008 10:18 AM (GMT -6)   

Hey Meche! Just me again.

I had tried to post you several days ago but stupidly pressed the wrong key and it disappeared.

Anyway, I also have the recurring/remitting MS and do Copaxone injections daily. It's been working well and doesn't hurt at all! I've had paper cuts that are worse!!!! smhair   My recent check-in with my neurologist indicated no progression, though I do experience fatigue, memory issues, clumsiness, blurry vision, etc. But I believe it could be a lot worse, so TAKE THAT MS!!!

But you sound like you have a positive attitude too. In fact, you sound a lot like me, though I have golf and haggas phobias skull

Gotta love those emoticons!

The chat was fun, though I am an inexperienced internet chatter, so it took getting used to.

Take care lass yeah

Steph57


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 11/12/2008 12:39 PM (GMT -6)   
Fingers crossed on your job situation! I do hope you're able to stop in to chat for a few min sometime. :-)

Meche
Regular Member


Date Joined Nov 2008
Total Posts : 41
   Posted 11/20/2008 4:29 AM (GMT -6)   

Hiya Steph and Sunnycitrus,

Sorry I havent been on for a few days been busy busy looking for a job, went for an interview on Tuesday for a Customer Service adviser for a bank and 3 hours after my interview I was told I had the job, start on 1st Dec and I cant wait, I am really happy and cant believe I got the job, it looks a great place to work, it is massive with loads of people so its something new.

YEah Steph I keep a positive attitude I have MS it doesnt have me!, one of the interview questions was to tell them something that happened in my life which was a negative and tunr to a positive and I replied that when I was diagnosed with MS, I cried and thats been it, as it could have been a lot worse and I wouldnt have met all you lovely people and made new friends, so that keeps me going to.  I agree the injections are not sore, I have an auto injector but als inject manually, get the weekends free!!! so thats something.

Your phobias of Golf and Haggis!!!  MMM  How did that come about? smilewinkgrin   I am not that great at chatting and keep forgetting that I cant use Scottish slang that I would on a text message as no one would understand me, when I read what I have wrote back to myslef, I sound very polite, but the words that I type are nothing like how I would pronounce them so its all fun on my part. 

Sunnycitrus - Thank for the good luck gesture, it obviously paid off LOL, How are you? :-) It is very windy and cold here today, but I like the cold, hate a lot of heat, hence the reason I have never been on a plane or own a passport!!, My mum and sister volunteer in a charity shop on a Thursday, so whilst I am not working I go with them and get to chat to lots of people, which is my favourite hobbie!!! tongue

I keep repying to this topic, does anyone know if I can reply to an individual and if so how do I do it?

speak to you all soon.

 

Love

Meche.

xx

 


Meche xx


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 11/20/2008 8:08 AM (GMT -6)   
Hey Meche!

So good to see u here again! U can't just reply to one person in a thread unless they invite u to email them. At that point, u can click on the member name over to the left of their post and it'll take u to their contact info which may include their email address. U can also start new threads if u'd like to ask questions, even if the question is directed to just one member. Let me know if u need any help. We're always happy to help! Take care!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Steph57
Regular Member


Date Joined May 2008
Total Posts : 58
   Posted 11/20/2008 11:20 AM (GMT -6)   
cool   cool cool cool cool cool cool cool cool cool cool cool cool cool cool cool cool cool cool cool cool cool cool cool cool cool cool cool cool cool cool cool
Hi Meche! And huge congrats on your new job! Awesome. I applied for a job in my town library a few days ago--it sounds right up my alley, but haven't heard back yet. Wish me luck yeah !
 
The heat issue is a big one for those of us LIVING with MS. I'm much more sensitive to heat than I used to be. I was outdoors in 40 (F) degree weather recently, and it felt like 60 (F)!
 
Though I DO have a passport, as my father lives at least half the year in Prague. As I may have mentioned, he is 83 and has Parkinson's. Yet he still trains (works out) for his annual skiing trip in the Alps! yeah And, he plays tennis and does a lot of walking (Prague is a great walking city)! He is my inspiration!!!
 
You can access e-mail on this site by clicking on the screen named and it will give the address, if provided by the member. Try it and see if it works; if not, then ask the moderator.
Take care!
Steph57 turn
 


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 11/21/2008 2:50 PM (GMT -6)   

Hi Meche

Congrats on your job!!! You are welcome to email me if you’d like, my email address is in my profile.

Steph, wishing you luck for your potential job as well! Let us know how things turn out. :-)

Sunny


Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 11/21/2008 4:30 PM (GMT -6)   

Hi there, so I am really slow in saying hello.....but I am a bit of a drifter - here, not here, here again, etc.

I am  impressed with your attitude towards this, as this is a big part of the battle. You can make yourself sicker than you actually are by just dwelling on it, and even during the days when you are not feeling so great, it just somehow helps you cope better.

I was dx last December, and at that time, wow, did I have lots of questions.

And everyone in here were more than eager to help answer them.  After a year of treatment, I do feel a heck of a lot better than I did lets say two years ago - then I just did not feel good at all, and thought that I would never see the day again where I would feel the way I do now. I contribute this to the copaxone that I am taking, knowing when to have a nap, staying cool (out of the heat) and staying as positive as I can. 

Congrats on your new job.....bet you cannot wait for Dec 1st....

Anyhow, said enough for now, and again welcome, and again, good going on your new job...

Gary


Meche
Regular Member


Date Joined Nov 2008
Total Posts : 41
   Posted 12/27/2008 8:52 AM (GMT -6)   
hi all sorry I havent been in touch for a while been busy learning this new job.
 
thank you all for the congratulations been there 4 weeks now and boy does time fly.
Merry Xmas to you all hope you had a good one.
 
just bought a new lap top today so will now hopefully be able to chat more to you all.
 
Hope everyone well, I am loaded with cold and head pounding (thats cos kids have been so bloomin hyper) LOL
 
anyway speak soon
 
Love
 
Meche
xxxx
Meche xx


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3521
   Posted 12/27/2008 9:26 AM (GMT -6)   

Hey Meche,

It was so good to hear from you!!  I am glad to hear that the job it going well.  I am sorry to hear that you have a cold!  Rest, rest and rest.  Do all of those good things to speed recovery......lots of fluids, eat healthy oh and did I mention rest!!!  Good luck and Merry Christmas to  you too.  Keep in touch.


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.

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