Hi Mel, and welcome to the board! I’m glad you’ve found a med that you are able to tolerate better. From reading and talking to people, it seems like some neuros have definite progression med preferences, and some leave it up to the patient. I was on Copaxone for around 9 months. My former neuro chose this med for me, as he thought I would tolerate it the best with my med sensitivities. I think he made the right decision, in this case. However, we are all so individual, and respond to meds differently. I think this is one of the reasons why it is not all that uncommon to start on one med and then need to switch to another, whether due to side effects or continued aggressive progression.
I too am on Rebif, 3 injections a week. at my intial consultation the MS nurse went through different beta interferons with me and I picked the best one for me. I have only been on the injections 6mths, but have found they have helped me dramatically.
I was given a DVD and information pack from REBIF on how to inject, the side effects I could have (this was also discussed with me through the MS nurse). If you would like information on the REBIF, I can certainly email you things from the book, I was also given a book called my mummy has MS, which helped me tell the kids. I have been really lucky in the sense that everyone in the MS field has helped me and given me choices and gave me in depth info, I go to MS clinic every 3 months to get my blood checked and again they review me, I also have the opportunity to ask any questions about things I am not really sure about.
I know how you feel with just being palmed off as before I was diagnosed it was a vicious circle of Docs telling me I had an ear infection and take this and take that or it was all in my head.
I still have side effects and the day after my injection I do feel like I have went 10 rounds with Mike Tyson, but it is easing off.
Take care and speak soon