What else could it be?

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emalvaca
New Member


Date Joined Dec 2008
Total Posts : 8
   Posted 12/2/2008 8:53 PM (GMT -6)   
Hi!  I'm new here -- both to the board and to MS.
My symptoms, MRI, and spinal tap have all suggested that I probably have MS.  My dr. wants to wait and get one more MRI in Feb. before actually diagnosing me, but he stated that he's pretty sure that's where we're going.  My question is:  What else can inflammation in the spinal tap show?  I know what other diseases share the symptoms and I know other things that can case the lesions in the brain.  But I was actually surprised to hear that the spinal tap showed "inflammation" -- I've been feeling like a hypochondriac up until now.  Any thoughts on what else it might be (I still think it couldn't be MS...)
Thanks in advance!
Valerie

KE08
Regular Member


Date Joined Nov 2008
Total Posts : 92
   Posted 12/2/2008 9:17 PM (GMT -6)   
Hi Val,
Sorry your going through hard times. May I ask what did the MRI show? What symptoms do you have that led to the testing?

I hope all is well and you will get more answers soon. I know it can be frustrating trying to figure it out. Hang in there it will be fine.

((hugs))

emalvaca
New Member


Date Joined Dec 2008
Total Posts : 8
   Posted 12/2/2008 9:28 PM (GMT -6)   
Hi!
I've had symptoms going back about 4 years -- neuralgia around the trunk following a bad experience with Levaquin started it, and after that dizziness, hot patches, cold patches, tingling in arms, twitching, stabbing and shooting pains in arms and legs (a lot down the left arm, a la heart attack, which would not be unusual in my family at my age, but following three cardiac work-ups, they're sure it's not cardiac).  The MRI showed lesions in the brain (spinal cord was fine), but didn't light up the screen like an obvious case of MS might.  Evoked potentials and the one with the needles and electrodes (can't remember the name!) were both fine, but spinal tap showed "inflammation."  Some of my symptoms are fleeting, some recur every few weeks and last for days or weeks, some persist on and off for a month or so and then seem to go away.  I've kind of lost touch with what is normal sensation (everyone gets little pains here and there), so I feel like I'm being a hypochondriac, although my husband is very concerned.  That's why I was so surprised to hear the doctor say "I think we're going to end up with a diagnosis of MS," even though he wants to wait and get a follow-up MRI first.  I'm fine with being conservative -- I had such a bad experience with Levaquin that I don't want to take any medicines unnecessarily.  But I don't know what else inflammation in an MRI might show, except for cancer, which has never even been part of the discussion.
Thanks for helping!
Valerie

KE08
Regular Member


Date Joined Nov 2008
Total Posts : 92
   Posted 12/2/2008 10:52 PM (GMT -6)   
Breathe..thank God your Evoke and Emg was fine..thats good. Maybe it is MS because of the lesions on the brain, my doctor told me that lupus shows on the brain too. If it is MS people can be productive and meds can really help. Now the inflammation could be an auto immune disease or something- lets not jump the gun - stating cancer. I'm waiting on some nerve whacking test results that could reveal a rare disease.. so I understand. But look at the good test results and wait and see what else the doctor and test say.

It could be MS. Or it could be nothing. But if your doctor and the MRI points to MS (which is not the end of your life) try to deal with that. One thing at a time. Don't go looking for cancer or getting yourself worked up. Worry never changes a thing. I know its hard, but you have a husband that is very supportive and you have us too (((hugs))).

Please relax and still calm. It will all be worked out in time. Good Luck and keep us posted. God bless us all!

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3523
   Posted 12/2/2008 10:58 PM (GMT -6)   
Hey Valerie,
 
I am sorry that probable MS brings you here.  Hang in there.  The link I have posted has lots of good information about the diagnostic process of MS.  Please feel free to ask lots of questions and let us know how you are doing.  I am very glad that as of right now, your symptoms seem mild and fleeting.  Let's hope that they stay that way.  For some, this disease moves very slowly.  I know you are concerned about med reactions.  Take that one step at a time.  It seems as if you won't have to really consider meds until February.  Take that time to ask questions and learn as much as you can. 
 
Again, welcome.  We are glad you are here.
 
 
 
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


healing spirit
Regular Member


Date Joined Mar 2008
Total Posts : 177
   Posted 12/3/2008 12:59 PM (GMT -6)   

Hi Valerie,

I was diagnosed with MS in September.  I too am very sensitive to most medicines and was very worried about taking an MS drug.   I am happy to report that I am at full strength on rebif therapy and doing fine.  Please know that we all understand how it is to wait for an actual diagnosis.  Try to relax and take it one day at a time.  The less stress the better.  I know it's easier said than done.  This board is wonderful and very informative.  Everyone has helped me a great deal.  My thoughts are with you.  There are lots of people here to help you along.  Hang in there.

Cindy


reneegravy111
New Member


Date Joined Nov 2008
Total Posts : 3
   Posted 12/4/2008 12:34 PM (GMT -6)   
just my own personal experience....I went back and forth from being diagnosed with lupus to ms for over a year. Apparently lupus can cause neurological damage similar to ms, Doctors really don't like giving the ms diagnosis,,,they resist it like crazy and then after a year and a half its now "hurry hurry and get on the meds" I'm like, why hurry now? it took forever to get appointments and a diagnosis. So to answer your question, maybe its something rheumotological. good luck.

emalvaca
New Member


Date Joined Dec 2008
Total Posts : 8
   Posted 12/4/2008 1:49 PM (GMT -6)   
Thanks so much for these great responses.
I have to say, I'm pretty well in denial about the whole thing, so I'm not really all that nervous (for the most part). But for the past few days, I've been having a lot more of the 'symptoms' that brought me to this point in the first place, so I'm starting to think maybe it's not just hypochondria. But obviously, I'm here, so I can't say I'm completely in denial. I feel very fortunate when I read what some of you all have been experiencing -- if this does turn out to be ms, I know I'll be in some very good and very experienced company here.
Thank you all for making me feel so welcome and comforted! I have more questions, so I'll be picking your brains a lot more!!
Valerie
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