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Jerrehow
New Member


Date Joined Dec 2008
Total Posts : 4
   Posted 12/4/2008 6:25 PM (GMT -6)   
Hello everyone, I have just learned that on the day after my 59th birthday Nov. 24 that I have MS. DR. first thought I had a stroke but after 3 MRI they say it is MS.  Have like needle and pins in my right arm and hand and was having trouble walking the first week but that seems to have gone away.the hand seem to be getting worse.  I can't get into to see my neurologist till Dec. 11 ,can't wait this hand numbness is driving me crazy.  Do you think waiting this long to see the doctor is going to harm me in any way?  Tell you the truth before this I knew nothing about MS, so any help will be great. thank you

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 12/4/2008 7:56 PM (GMT -6)   
Hey Jarrehow

Welcome to the board. I'm so sorry for u'r dx. I know u'r head must be spinning, but hang on friend. Soon u'll get u'r head around this and u'r world will settle a bit. For now just give u'rself time to understand this and remember that u are not alone. No, waiting to see the doc til Dec 11th won't make anything worse. The hand numbness isn't going to be 'fixed' at u'r appt. At most u'r doc may prescribe steroids that may improve the numbness over time....not weeks but possibly months. It's not a guarentee. Steroids are tough on the body...ask lots of questions if they are offered. In the long run, with a harsh flare, they can be quite beneficial, but again, no guarentees. I hope u'll begin to feel better soon. Again, welcome to the board.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 12/4/2008 10:43 PM (GMT -6)   

Hi Jerrehow,

Welcome to the board.  I am sorry to hear of your diagnosis.  I too, was misdiagnosed with a stroke.  Rhonda is correct.  Your numbness will either get better over time or you will get used to it, but it won't be "fixed" at that appointment.  The good news: there is almost never an emergency with MS.  By the time you are feeling the symptoms.....the damage has been done.  Don't worry about your appointment being a few days away.  It is plenty soon enough. 

Please feel free to post often and let us know how you are doing.

 


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Jerrehow
New Member


Date Joined Dec 2008
Total Posts : 4
   Posted 12/5/2008 5:22 AM (GMT -6)   
Thanks Gretchen and Rhonda for getting back with me, it is nice to talk to someone with MS to find out what to expect.  My family doctor put me on prednisone when I was first diagnosed, but it seems to be doing nothing. 

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 12/5/2008 8:17 AM (GMT -6)   

Most people with MS find some relief from the IV steroid, solumedrol.  It is very hight dose (1,000 - 1,200 mg per infusion ).  I have not heard much relief from oral steroids though.  Hang in there, you will feel better.  This flares and then remits.  You are obviously in a flare.  Get as much rest as possible and take very good care of yourself.  Eat really healthy and drink lots of water and rest.  You will give your body the best change at resting and cooling that flare. 

Good luck and keep us posted.


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


bohuck2
Regular Member


Date Joined Dec 2008
Total Posts : 196
   Posted 12/31/2008 11:14 AM (GMT -6)   
Jerrehow,
I have had numbness in my right hand for 4 years now so I have just learned to deal with it. I try to use it only occassionally because I am not sure if I have the strength to carry things in it like I used to. I have told this to my Neurologist many times but he keeps telling me that that's the way it's going to be from here on out because of my MS. Good luck to you and I hope you have a very Happy New Year!
 
 
 
 
                                           Chuck Huckaba
                                    AMWTP Training Instructor
                                          Idaho Falls, Idaho
                                  Diagnosed with PPMS May, 2007
                                   but still working at the present.         
                Tried just about everything there is for MS, including Tysabri
                               Waiting to start Cytoxin Treatments soon.


Conquer MS
New Member


Date Joined Nov 2008
Total Posts : 7
   Posted 1/6/2009 11:07 AM (GMT -6)   

Welcome

Glad to see your on the forum so early in your journey.  Keeping seeking answers, keep looking, and most of all

Don't pity yourself.

Robert


Post Edited By Moderator (rhondab) : 1/6/2009 12:50:33 PM (GMT-7)


Meche
Regular Member


Date Joined Nov 2008
Total Posts : 41
   Posted 1/10/2009 1:11 PM (GMT -6)   
Hi jerrehow.

Just wanted to say hi and welcome. I was diagnosed with MS early this year so I am a "newbie". this site has helped me a lot to cope with it and everyone is so friendly and nice.

I live in the UK (Scotland) I joined this site by accident but glad I did, hope you find the same friends and help as I have .
take care and I am sure we will speak soon.

Love
Meche
xxx
Meche xx


bohuck2
Regular Member


Date Joined Dec 2008
Total Posts : 196
   Posted 1/12/2009 11:48 AM (GMT -6)   
Jerrehow,
Welcome my friend. You have found such a good group who understands what you will be going through in the months ahead. I was diagnosed in June, 2006 with Relapsing/Remitting MS. It was all new to me then too. I read as much as I could on it and I still read up on it. There is so much one can learn about MS. In May, 2007 my Neuro re-diagnosed me with Primary Progressive MS and started me on CellCept Pills. In January of 2008 he took me off of them and sent me to Chicago to see Dr. Stefosky where he gave me 7 Treatments of Cytoxin, which I thought helped a lot. Well, it was only short-term and after 3 months with no treatments, I was started on Tysabri. I got 5 of those Treatments when my Neuro took me off of them in September, 2008. I am still waiting to begin my next treatment which will probably be Cytoxin again. Cytoxin is such a dangerous treatment that my Current Neuro here in Idaho Falls won't deal with it so he will be sending me to someone local who does. I am just waiting for the Treatment directions from Dr. Stefosky. It's a long road that we have ahead of us. You will just have to try and be patient and always, always, lean on the people who know what you are going through for support! Good luck my friend and God Bless. By the way, I have had numbness in my right hand for more than 4 years and I still am able to use it, just not at full strength!


 
 
 
 
                                        Chuck the old man :>)
                                   AMWTP Training Instructor
                                          Idaho Falls, Idaho
                                  Diagnosed with PPMS May, 2006
                                   but still working at the present.         
                Tried just about everything there is for MS, including Tysabri
                               Waiting to start Cytoxin Treatments soon.

Post Edited (bohuck2) : 1/12/2009 10:53:09 AM (GMT-7)

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