I was wondering what you all thought?

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Canamia
Regular Member


Date Joined Dec 2008
Total Posts : 25
   Posted 12/11/2008 5:59 AM (GMT -6)   
Could someone please give me some kind of input? Of whether they think this is a good chance of being MS? I am about losing my mind not knowing what the hell is wrong with me and I feel like im literally going crazy!!  I have (as of right now the earliest waiting on word from my dr) an appointment next tues and I am trying to get as many opnions as possible and how I should go about talking to my dr?
 
Fall 2004- (first most memorable symptom appeared)
Right leg went extremely weak and *wobbly* and I had the worst time walking.

Thoughout the yrs-
Fatigue that never really seemed to improve and over the last month has gotten horrible. I've been able to stay up longer sometimes but I can still wake up to eat what my boyfriend has cooked us and then go right back to sleep when im done eating.

Concentration is poor and has been poor only I thought it was add/adhd...Now im wondering (tho I WAS diagnosedat age 14) since it comes and goes and sometimes get's worse than other times cause when I told a shrink that yrs ago they told me Add/adhd didn't just come and go.

Tingly/Pins n Needles all over my body.
Tingling esp in my fingertips (always assumed that was from panic attack although at the time I wasn't even anxoious until I realized they were tingling then I'd start panicking.)

Restless legs/body that get's really bad while laying down.

My muscles feel like they are jerking on the inside of my body a LOT.

Sometimes my fingers will get *stuck* as I say cause I don't know how to describe it. Thought it was just bad arthritis from cracking my knuckles even though I AM only 25.

Balance is and has been horrible for quite sometime.

Sometimes I get so spaced out I haven't got a clue *where* i am. I mean I know about where I am but not in the sense that I could say for example find the car. It takes me a long time to learn new directions. I have forgotten how to get places in the city I was born and raised in. People can tell me something a few times and it won't sink in. I can be having a conversation with someone and space out so much that I haven't got a clue what they are saying when I get back into the convo. Even writing this is becoming difficult for me cause I can't stay on a thought for very long without losing it.

I've developed this stutter on occasion.

My eye sight has been bad for quite sometime but now it seems like it is getting worse cause I can't even read certain things because they all look bunched together and some what blurry.

Ive had headaches for a long time but now it seems lik i have at least one on a daily basis. I feel that feeling like when your head is upside and the blood rushes to your head every so often for no real reason. I have this pressure type pain at the top of my neck and sometimes my whole head.

I've been having a hard time thnking of words lately like I will point at something and say That or this instead of what t is because I can't think of anything other than that or whatever to say.

Dizziness a lot and every so often I fel like the room is spinning.

There are more I am sure but I can't think of them ..... Oh wait....

If I told a cold floor with my foot even if my foot is in a sock wearing slippers it send a shooting pain through my foot thats incredibly intense kind of feels like a piercing shooting through your foot maybe?

I can't type for crap anymore either im CONSTANTLY messing up and it feels somewhat like my fingers have a stuttering problem lol

I feel incredibly detatched from my body at points as well. Kind of like when I look down at my hands they dont seem like mine. Can't xplain that one much.

Texting has become a nightmare cause I leep screwing up the numbers/letters.

jirish
New Member


Date Joined Dec 2008
Total Posts : 18
   Posted 12/11/2008 8:59 AM (GMT -6)   
Hi! your symptoms are so familiar to me. I have extreme fatigue, trouble concentrating-I will be talking to someone and I can't remember the words I want to use-this happens so frequently. I have numbness and tingling and the feeling that someone is twisting my muscles inside my body. I also sometimes have the feeling of water running down the back of my legs (which is wonderful when you have to ask someone if there is a wet spot on the back of your body). Sometimes it feels like my shoulders are not connected to my body. My hands don't work a lot-this was one of my first symptoms-things would pop out of my hands. I was cooking a beef pie and it popped out of my hand and what a mess. That's when I went to the doctor and started this MS journey. They did do a blood test to determine that it wasn't arthritis. Also, sometimes when I am driving somewhere I will forget where I am going. Write down everything you are feeling and tell your doctor at your appointment. There is no definitive test for MS -though MRI's show if there are lesions and Spinal taps show if there are "markers" (I am not sure if that is the right word). But, I think when I was diagnosed my neurologist said to me at the first appointment "You are not crazy" and that was the best because with all the symptoms you do feel a little crazy. Oh and also I get extreme panic attacks and I don't know if the symptoms cause the panic attacks or the panic attacks cause the symptoms but those are real too! So just write everything down and explain it to your doctor. You are not losing your mind or going crazy. I hope this helps - good luck at your doctor appt.

Canamia
Regular Member


Date Joined Dec 2008
Total Posts : 25
   Posted 12/11/2008 11:44 AM (GMT -6)   
Thank you so much for helping me realize im NOT alone. And I get that water type feeling also. I sometimes check myself to see if I've wet myself. It's so frustrating. I had to just call my dr and the hospital I was t fri night to see about my thyroid tests cause no one was apparently seeing them so Im awaiting the call back and I also told the receptionist I wanted an mri so im hoping to get that going at least. I hate walking all weird and I hate these stupid speech problems and every other symptom. When were you diagnosed if you don't mind me asking?
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