treatment/cytoxan

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momofltlbrat
Regular Member


Date Joined Apr 2007
Total Posts : 164
   Posted 12/15/2008 2:49 PM (GMT -6)   
Hi everybody,
 
My first IV infusion of cytoxan is this Thursday.  I started my prednisone and antibiotic yesterday.  The antibiotic is to ward off a common type of pneumonia during the treatment and hopefully I can wean off the prednisone quickly.  It is hard to find info on vasculitis, Sunny was very helpful.  I also went on another message board and looked for messages on cytoxan under immune conditions.
 
I learned to pack what some refer to as a chemo bag - a small makeup bag with sugarfree mints, biotene mouthwash, purell, advil and tylenol, chapstick, a digital thermometer.  It is suggested to have that bag handy when you go to treatment or out of the house in case anything is needed.
 
What I haven't found out yet, other than the suggestion of bland foods, is what foods help with the naseaus feeling.  I have zonfran to take, but as a single mom, I am trying to have everything here.
 
I don't know if many on this board have gone for any chemo treatments, but maybe they have family that has.  Everyone here has always been so helpful.  I have bonded with some wonderful angels.  thanks for all your support and encouragement.
 
Debbie

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3518
   Posted 12/15/2008 5:17 PM (GMT -6)   
Oh Debbie!!! Hugs and kisses to you!  I am thinking of you and saying lots of prayers.  You might want to try some ginger candy....that helps some with nausea.  Good luck and please let us know how you do on Thursday.

Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


mystery reader
Regular Member


Date Joined Jun 2007
Total Posts : 257
   Posted 12/16/2008 9:42 AM (GMT -6)   
Debbie, I know that there is some type of injection that you can receive if you are on ongoing chemo. I am not sure if it would relate to your situation. Have ginger ale and soda crackers stocked at home.
good luck!


Barb/mystery reader
Diagnosed April 2007
Started betaseron --  May 2007 -- experienced allergic reactions after 2 weeks
Started copaxone -- June 2007 -- stopped after 4 1/2 months;experienced  severe 5 IPIR's
Started tysabri -- December 2007
Stopped tysabri -- April 2008 (developed antibodies/severe reactions)


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 12/17/2008 11:08 PM (GMT -6)   

(((Debbie))) Just wanted to let you know I’m thinking about you and wishing you the best for tomorrow.

Sunny


momofltlbrat
Regular Member


Date Joined Apr 2007
Total Posts : 164
   Posted 12/18/2008 2:44 PM (GMT -6)   
hI everybody,
 
quick update, then I am going to bed.  The first treatment is over.  A little nauseas, and gained this great metal taste in my mouth. Yuck!! They say from past patient experiences the first three days after treatment are the worst.  I'll try to keep everyone posted, so far, not too bad.  Let's hope it stays like this.
 
Thank you for all the thoughts and prayers.
Debbie

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 12/18/2008 4:43 PM (GMT -6)   
Hey Debbie

I'm so glad the first one is over and that it's ok so far. I hope that u'r going to do just fine and won't have any issues beyond the nausea. Hang tight friend. We are here in u'r corner. Call on us all u need.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3518
   Posted 12/19/2008 8:19 AM (GMT -6)   

Hey Deb,

I thought of you all day yesterday.  I was so glad to see your post.  Hang in there and know we are praying for you.

Much love,


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 12/19/2008 12:33 PM (GMT -6)   

Hi Debbie,

Thank you for the update…I hope you were able to sleep off the worst of the nausea, and are feeling much better today! Please know that we are here for you.

Sunny  

momofltlbrat
Regular Member


Date Joined Apr 2007
Total Posts : 164
   Posted 12/19/2008 3:36 PM (GMT -6)   
Hi all,
 
It helps to feel the love and support of all of you.  thank you for being here for me.
 
It has been a tough day.  I woke at 5am with a headache so bad my teeth hurt and my stomach keeps cramping.  I think it is complaining about the poisens in there.  Becca has been an angel.  I'd be lost without her.
 
When reality hits, it hits hard.  the nurse was so covered up with a waterproof gown, gloves, googles, and put the same on me.  I said to her it seems strange being so cautious yet that stuff is going in my vein.  I just hope it calms things down.  She gave me paperwork explaining all the possible side effects, and even gave me a great paper explaining what micropolyangiitis is in laymans terms.
 
Going back to bed.  I'll update as I can.  the nurse said the first three days are the hardest.
 
Love,
Debbie

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3518
   Posted 12/22/2008 1:18 PM (GMT -6)   

Hey Deb,

Let us know how you are doing. I have been thinking about you and hoping you are feeling better. 


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


momofltlbrat
Regular Member


Date Joined Apr 2007
Total Posts : 164
   Posted 12/22/2008 2:32 PM (GMT -6)   
Hi all,
 
Just an update.  I'm back on my feet.  still a little drained, but feeling much better.  Hoping to get on chat tonight.
 
Debbie

Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 12/22/2008 4:29 PM (GMT -6)   
I'm so glad you're feeling better! :-)

bohuck2
Regular Member


Date Joined Dec 2008
Total Posts : 196
   Posted 12/29/2008 1:48 PM (GMT -6)   
Debbie, or whoever can answer this for me,
I am going to start on Cytoxan Treatments real soon and I was wondering how long the treatments will take and if I have to be off of work how long will that also be? Any answers for me? Thanks.
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