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sickboy516
New Member


Date Joined Dec 2008
Total Posts : 3
   Posted 12/19/2008 5:54 PM (GMT -6)   
I know M.S. has different symptoms for everyone but I was wondering if any one else has a hard time with just looking up or lifting their head up? I have a young son and am worried I won't be able to do simple things like play catch with him when he gets older.

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 12/19/2008 6:08 PM (GMT -6)   
Hey Sickboy

Welcome to the board. Yes, dizziness, or vertigo, is quite common with MS. For some it can remain as a permanent symptom and at any degree of intensity and for others it can eventually go away. There are meds to help with the nausea that can come with it, but really there is nothing that stops it or makes it better. U CAN begin to find ways that help u balance out u'r needs a bit. Not that the vertigo will go with these methods, but that u can manage it better by finding ways to accomodate in relation to u'r needs. I hope this improves for u in time. Take care and, again, welcome to the board.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 12/19/2008 10:13 PM (GMT -6)   
Hi there. I am sorry to here of your diagnosis and also sorry that you have the dreaded dizzies as a symptom.  It is a bad one to be sure.  Try to remember that sometimes these things get better.  Also remember that children are incredibly resilient and adaptable.  We should be as flexible as they are.  My boys were 9 and 12 when I was diagnosed.  They have been incredible about it. Try and hang in there and know that you will always be able to connect with your son. 

Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


sickboy516
New Member


Date Joined Dec 2008
Total Posts : 3
   Posted 12/20/2008 9:32 AM (GMT -6)   
I was diagnosed about 4 1/2 yrs ago but have only had the problem with the dizziness for about 3 yrs or so. So I wonder if it is something that may go away. I don't know anyone who has M.S. that I can share stories with or get advice from, so I'm hoping this site may help. Thank you both for reading my blog and responding!

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 12/20/2008 10:06 AM (GMT -6)   

Sickboy,

I was diagnosed with MS in July of 2006 and vertigo was my presenting symptom.  I have had it ever since.  I have not had a day without being dizzy, off-balance and woozy.  I have to watch every step as it is like living drunk (but without the delightful cognitive buzz that goes with it).  It is something I have gotten used to.  I can even walk most days without a cane.  I work full time and lead a very full life all with vertigo.  I walk into door jams and take stutter steps all the time but for the most part I do ok.  I just assume that because of the size and location of the lesion causing my vertigo that my vertigo is permanent.  I hope you don't have this permanently, but if you do, you will adapt and learn to live with it.  Good luck!!  Keep posting.


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 12/20/2008 10:28 PM (GMT -6)   
Hi sickboy,
I really feel for you - that vertigo is horrid. I went to the neuro because I had such terrible vertigo - raising my head would cause me to fall into the cupboard or against the supermarket shelves - and he suggested I try Brandt-Daroff Exercises (type it into the internet and there is a utube video of how to do them. They did help me though it took about 2 weeks. Perhaps they could help you. Hope so.
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995.
Row, row, row your boat gently down the stream
Merrily , merrily, merrily, life is but a dream


Heather H.
Veteran Member


Date Joined Mar 2005
Total Posts : 756
   Posted 12/22/2008 8:37 PM (GMT -6)   
Sickboy,

Have you seen ENT doctor? My neuro told me that I should have my veritgo checked by a different doctor to make sure that it wasn't something else that could be causing it instead of blaming everything on MS. He felt that not all of my problems are just the MS cuz I also have Fibro and Inflamation of the Eighth Cranial Nerve of the Inner Ear. That is something that I have had for almost all of my life come to find out. I was never able to learn to ride a two wheel bike as a child cuz my balance was always off. The best part is...no matter how hard I try, I can't pass a road side sobriaty test.

Heather
Love many, trust few, always paddle your own canoe!
 
dx's:  Fibro, 8th cranial nerve inflamation, MS.
 
meds.:  none at this time
 
 


sickboy516
New Member


Date Joined Dec 2008
Total Posts : 3
   Posted 12/27/2008 8:29 PM (GMT -6)   
Thank you to everyone who replied to my query. I will see another ENT and see if he has any suggestions. I went to youtube and watched the video on the Brandt-Daroff Exercises and I'll definitely try it. Thanx for the suggestion.
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