getting ready to start LDN -- time for dosage? fatigue?

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theshultzgang
Regular Member


Date Joined Jan 2009
Total Posts : 38
   Posted 1/19/2009 9:23 PM (GMT -6)   
hello there! I am so thankful I found this site...it is wonderful.

I am obviously new and hoping to find information about what time to take the LDN. My prescription is on its way, but I am concerned about losing sleep. I don't need anymore help in the fatigue department, so sleep is crucial. Does anyone set an alarm and take it later around 1 a.m. or there about?

And has anyone had good results for fatigue using LDN? I'm very hopeful and think this may be the final kick my body needs to work it's super healing powers!!

Thanks for your time!
Andrea

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3518
   Posted 1/19/2009 10:00 PM (GMT -6)   

Hey Andrea,

Hi and welcome to the board.  I am very glad you are here and hope you find support and help here.  I can tell you that we currently don't have any MS members taking LDN.  I am sorry!!  Please stay and be our experienced voice in this.  We do, I believe, have a few members on the crohn's board that take it.  You could always post this question there as well.  Everyone is pretty nice here and they would be able to tell you even with the disease being different.

We have lots of interest in diet and supplements both with and without traditional medication therapies. 


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


theshultzgang
Regular Member


Date Joined Jan 2009
Total Posts : 38
   Posted 1/20/2009 12:31 PM (GMT -6)   
Hi Gretchen,

Thank you for your warm welcome!! I am very excited to find a nice, opened minded support group. Good call about the crohn's board and LDN...I'll try and remember to post there later.

I look forward to talking with you :)
Andrea
Envision a health and your body will follow!
Diagnosed 11/2001
Andrea :)


bohuck2
Regular Member


Date Joined Dec 2008
Total Posts : 196
   Posted 1/20/2009 3:44 PM (GMT -6)   
Andrea,

Hi and welcome to the MS Forum here. I am Chuck, known as the Old Man here with our forum moderators who are really great ladies. Please keep us, especially me, updated on your progress of using LDN. I would be very interseted in hearing how you feel it does for your fatigue because I am always exhausted every day and it does get old.

Thanks and good luck to you using it. 


 
 
 
 
                                        Chuck the old man :>)
                                   AMWTP Training Instructor
                                          Idaho Falls, Idaho
                                  Diagnosed with PPMS May, 2006
                                   but still working at the present.         
                Tried just about everything there is for MS, including Tysabri
                               Waiting to start Cytoxin Treatments soon.


theshultzgang
Regular Member


Date Joined Jan 2009
Total Posts : 38
   Posted 1/20/2009 6:03 PM (GMT -6)   
Hi Chuck,

I've been looking in on this site for a while and have noticed your nice positive comments to everyone. Thanks for chiming in on my question too!

I noticed in your signature that you have "tried everything" and I think I have too. I had only one treatment with Tysabri before they yanked it off the market way back when, and I did three rounds of Cytoxin (I think?!? foggy on exact number, but that seems right). I felt like a super star on Tysabri. How about you? I guess if you're switching to Cytoxin Tysabri is not helping. I will say that I am impressed you are still working with PPMS, so you must be doing something right.

I will chime in about the LDN when I start it. I'm anxiously awaiting for my package from the compounding pharmacy!
Envision health and your body will follow!
Diagnosed 11/2001
Healing more and more every day
Andrea :)


JSparrow81
New Member


Date Joined Jan 2009
Total Posts : 7
   Posted 1/20/2009 8:51 PM (GMT -6)   
This is really weird. My parents have a family friend who was dx with MS 18 years ago. For as long as I can remember she has been in a wheelchair and sometime with a relapse bedridden. My parents had not seen Mary for a couple of years and last week her and her husband visited my mom and Mary walked into her house...yes walked into her house. She was using a walker but she was no longer in a wheelchair. She is taking this medication and said that it is a miracle drug.  
 
When my mom called to tell me about her I immeditly started to cry, this is wonderful. After 18 years of being in a wheelchair, she is walking. She claims now that she can feel pain in her legs, pain that she couldn't feel before because she coldn't feel anything. She said she was willing to trade to be able to walk for some pain.
 
She see's a doctor named Emily Riser (sp) which is who I made my appointment with to see what we can do. I don't think my MS is as progressed as hers to be on this medication but it has been a miracle to her.
 
O by the way, this is an oral medication, not an injection.
Jacklin


theshultzgang
Regular Member


Date Joined Jan 2009
Total Posts : 38
   Posted 1/20/2009 9:09 PM (GMT -6)   
This is good news to hear! I've read mostly amazing success stories with MS & LDN -- it seems like a super healing / immune system restart pill. We'll see! I'll keep you posted and please do the same.
Envision health and your body will follow!
Diagnosed with RR MS 11/2001
Healing more and more every day
Andrea :)

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