You should also post on the lyme board. Your mycoplasma infection could be causing your problems. I hope you get some relief soon.
Thanks for posting to let us know how you are. I am so sorry you are so miserable. Please remember this, when you can no longer care for yourself, it is time to go to the ER. What is being done about the seizures? I can't imagine those going untreated. Obviously you are not driving........do you have a plan for getting to the hospital if and when you can't care for yourself? Your description has you right there on the edge of needing to be hospitalized (in my opinion).
Please rant and rave all you want. That is why we are here. I hope you get some answers and feel better real soon.
I still don't understand about the seizures. Why are the doctors not doing anything about those? Who is witnessing those? A seizure is very serious and can be life threatening.
Ok soback to the questions. We chat on Mondays. It is 4 pm pacific, 5 pm mountain, 6 pm standard and 7 pm eastern.
You are welcome to post in any board on HW, but you are not supposed to put the same post all over the place. Try to make your question specific to that board. I am not sure why the rule about duplicate posts but I think it is to keep people from just using up a bunch of space. Sometimes we get cyber-hypochondriacs and they use up a ton of server space for their attention seeking needs.
We don't really have one place that lists everyone's story or background. Just keep reading threads....lol. If you want to know how people were diagnosed just ask.
Everyone has a very different story. MS is so varied that it is usually misdiagnosed for years. It all depends upon what part of the brain is being damaged by the demylenation. For me, I developed vertigo..it continued to worsen until I was wall walking. That that point my husband took me to the hospital. I was admitted. I was misdiagnosed with stroke. I flared again 4 weeks later..........at that point they found multiple lesions. They did the spinal tap, the evoked potentials, blood work, neuro exam by two neurologists and the rest is history.
Have you had an MRI? or just the ct scan? My ct scan showed nothing .........it was the MRI that indicated lesions. If you have an MRI that shows no lesions....then most doctors will not diagnose you with MS. There is a very good chance it is something else.
Good luck on your quest for answers.