I am new to this site, but would like to learn more about MS. My mom was diagnosed 6 yrs ago, after working 30 years as a nurse she finally decided to have an MRI after admitting to us that she believed she had MS. Since then, she has become depressed and in many ways appears to have given up. I am extremely worried about all aspects of her health and treatment. She has severe kidney problems as well. Due to kidney stones and sepsis she nearly died last year. I would like to talk to someone about how as a family we can encourage her to not give up on having quality life. Her symptoms have progressed tremendiously since the diagnosis. She is very obviously depressed, and refuses to seek treatment beyond pain meds and ritilian for fatigue. I know there must be more meds out there to treat the disease itself, right?? Any insight, advice, or shared experiences would be greatly appreaciated...I pray that my daughter will grow up to love and respect me as much as I love my mom today. My heart is compassionate and if she doesn't have to give up and stay in her recliner for the rest of her days, then i want to do all i can to help her realize that her life isn't over NOW...please share your stories, your treatment, help me relay the hope that my mom so despartely needs.
You can read a little bit about me below. I start LDN soon, and the FDA won't approve it for Crohn's for a very long time, because no private interests are backing the research. I'm not being pessimistic, that's just how things operate these days. There's a larger study going on at Penn St, but you won't be reimbursed for the travel.
I'm excited about the good stories I hear. Remicade has lost efectiveness for me, so it's back to a lot of blood in the stool and a little bit of dizziness when doing anything more strenuous than breathing. Like right now, I see two keyboards I'm typing on. Interestingly, I've mainitained my weight, but that won't last.
In a strange way, I think the econmy will help Crohn's patients in the long run. As deductibles climb and pocketbooks shrink, many docs are going to be forced to work with smaller budgets (from there patients). There's going to be a lot of researching alternatives, and not just taking the advice of the Pharmacuetical Rep. I will DEFINITELY keep everyone posted on my LDN and Chlorella (with a possible five day Master's cleanse, the lemon maple syrup cayenne pepper thing, all with my docs supervision-they say minimum ten days, but I travel for work). God Bless everyone, this economy doesn't scare Him a bit.