restarted copaxone today

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mystery reader
Regular Member


Date Joined Jun 2007
Total Posts : 257
   Posted 1/28/2009 4:12 PM (GMT -6)   
Well the manual injection went fine.  The new needle did not hurt at all -- the burning and pain afterwards is another story.  I had forgotten.  I injected in my arm because that is the area that scares me the most.  The nurse they sent was really nice, but knew nothing about copaxone.  She had the book with her, but obviously had not read it in a long time -- if ever.
 
She told me to just inject in my tummy if the other areas bothered me.  She knew nothing about IPIR's.  This was a nurse (through the visiting nurses association) that my neuro had requested rather than one provided by Shared Solutions.  I did not figure that out at the time.  I have a call into my neuro's office to gently suggest to them that this office would not be a good one to use for new patients on copaxone.
 
Shared Solutions asked me if I needed training, and I told them my neuro had put in orders for training.
 
At least I had someone here for the first time in case I did have a reaction.
Barb/mystery reader
Diagnosed April 2007
Started betaseron --  May 2007 -- experienced allergic reactions after 2 weeks
Started copaxone -- June 2007 -- stopped after 4 1/2 months;experienced  severe 5 IPIR's
Started tysabri -- December 2007
Stopped tysabri -- April 2008 (developed antibodies/severe reactions)


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 1/28/2009 5:49 PM (GMT -6)   
Hey Barb!

WOOHOOOOO!!!!! Good for u!!! I'm so happy to hear this for u!!! Keep at it...u can do this! Good idea on the call to the neuro...sounds like that nurse just isn't a good fit for Copaxone users for now.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Sweetlydia66
Regular Member


Date Joined Mar 2007
Total Posts : 260
   Posted 1/28/2009 6:10 PM (GMT -6)   
Hey Barb,
I am so glad you did well with your first injection. And i am wishing you the best with this. You have been through so much with the treatments. I am sure everything will work out for you and you will get this monster stabalized. Good Luck. I miss you. Haven't chatted and laughed with you in quite a while.
Love
Lynn
Dx MS December, 2006
Started Tysabri March, 2008
Zanaflex as needed
Cymbalta


mystery reader
Regular Member


Date Joined Jun 2007
Total Posts : 257
   Posted 1/28/2009 10:06 PM (GMT -6)   
Thanks Lynn! It is good to see you. Hope you are doing well. We have missed you at chat.
Barb/mystery reader
Diagnosed April 2007
Started betaseron --  May 2007 -- experienced allergic reactions after 2 weeks
Started copaxone -- June 2007 -- stopped after 4 1/2 months;experienced  severe 5 IPIR's
Started tysabri -- December 2007
Stopped tysabri -- April 2008 (developed antibodies/severe reactions)

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