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mblake09
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/23/2009 11:03 AM (GMT -6)   
Hi
 
I was diagnosed last week with ms. I lost the sight in my left eye thats how i got mri's and other tests done and found out i have ms.
Im totally shocked, dont know much about ms or if my sight will come back so im just really looking for information from other ms suffers for advice etc...
 
Regards
Mblake

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 2/23/2009 4:01 PM (GMT -6)   
Hey Mblake

Welcome to the board. I"m so sorry to hear of u'r dx, but happy to know it happened so quickly for u. Have u discussed any treatments with u'r doc yet? Please just try to relax and breathe a bit. I know this is so overwhelming, but there IS life after an ms dx. It will be different for sure, but u can find a place where u are ok again. I'm sure that seems so far away right now, but hang on and know u are not alone.

We have live chats on Mondays each week. Take a look at the Chat Reminder thread for today's day and look at the time schedule for u'r area. I hope u'll be able to join us. That is a great way to get real time answers to u'r questions as well as getting some very good input on what u might expect. If u have questions, feel free to bring those and we'll all try to answer them for u.

Take care friend and try not to let this be the end all of everything. It IS shocking and scary and overwhelming, but soon u will begin to see that u will still be ok.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 2/23/2009 9:56 PM (GMT -6)   
Hi mblake,

I am very sorry of your recent diagnosis. Please hang in there. I know this can be a shock. I am sure you have lots of questions. Please ask away. Have you discussed a progression med yet? Take time to get use to this. Do your homework and learn as much about MS as you can.

I wish you the very best of luck. I hope you post often. This is a wonderful site with that can offer friendship and support.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


mblake09
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/24/2009 5:07 AM (GMT -6)   
Thanks for your replys i have an appointment with my neurologist today so will keep you posted!! Thanks again!!

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 2/24/2009 2:34 PM (GMT -6)   
Hey mblake

WOW....good to hear! Please do let us know how that goes when u'r able.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Sweetlydia66
Regular Member


Date Joined Mar 2007
Total Posts : 260
   Posted 2/24/2009 6:45 PM (GMT -6)   
Hello there mblake
Just wanted to chime in and welcome you to the board. Glad to see you found us. This is A great place for info and support. I made some great friends here. Good luck on you appt.
Love
Lynn
Dx MS December, 2006
Started Tysabri March, 2008
Zanaflex as needed
Cymbalta


mblake09
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/25/2009 5:25 AM (GMT -6)   
Hi

I had my visit with my neurologist good news is its only early stages of ms so is very treatable, bad news is they dont know if my sight will come back completly!! I have to go into hospital day ward for 3 days to get steroids on drip to see can they recover my sight so hopefully that works.
Then i have to inject once a week (which im not looking forward too!!) with i think its called interferon??
So im happy enough with what i was told!!

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 2/25/2009 8:15 AM (GMT -6)   
Hi again,

Well that does sound like good news and you are doing so well with this new world you have entered. I have heard that vision issues respond really well to the solumedrol.......that is the IV steroid you are probably going to receive. And then it sounds like you are going to get avonex. That is the once a week interferon. That will be a bit rougher to get used to. You will do best to inject before bed. Most avonex users inject Friday evening or afternoon or on whatever day leads to a couple of days off. Take a dose of ibuprofen an hour or so before you inject. Inject and then you will want bed not too long after that. Put a glass of water and another does of ibuprofen on the bedside table. If you wake up sick, you might want to take more ibuprofen. (make sure you have not taken it too soon). Good luck and keep us posted.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Dave_NC
Regular Member


Date Joined Nov 2008
Total Posts : 87
   Posted 3/12/2009 11:03 AM (GMT -6)   
mblake09 said...
Hi

I had my visit with my neurologist good news is its only early stages of ms so is very treatable, bad news is they dont know if my sight will come back completly!! I have to go into hospital day ward for 3 days to get steroids on drip to see can they recover my sight so hopefully that works.
Then i have to inject once a week (which im not looking forward too!!) with i think its called interferon??
So im happy enough with what i was told!!


My original onset was optic neuritis too (August 2008) and I went through the Solumedral 3 day trip in the hospital too. Please make sure they wean you off the steroids. After being completely blind in that eye I am back to around 95%. I would expect your vision to come back to a pretty high percentage. After doing the research I choose not to go with the drugs and keep my approach natural but I wish you the best in using them.
Learning and living everyday to the fullest. My MS blog http://mylifewms.blogspot.com/

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