questions about meds

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EBullins
Regular Member


Date Joined Feb 2009
Total Posts : 63
   Posted 2/25/2009 10:25 AM (GMT -6)   
Hey guys,
I read all the posts concerning Baclofen and everyone seems to be doing well with it. I have extreme allergic reactions and am concerned about trying it but the spasticity has gotten unbearable. Anybody have any negative info on Baclofen or helpful suggestions about spasticity? confused

Peace,
Elizabeth

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 2/25/2009 11:29 AM (GMT -6)   
Hey Elizabeth

Most do very well with Bacflocan, as u've seen, but some do have issue with it. Have u discussed the possibility of Physical Therapy with your doctor?? Many times this is very beneficial for people with ms. Don't just start stretching on u'r own. There are ways that need to be taught to be sure u don't damage any of those muscles involved in the spasticity. A PT can show u how to move properly and from there u can take those exercises and continue them on u'r own at home. Maybe give your doc a call and see if an appt can be set for u. Take care and let us know if u get to see a PT and how it works for u.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
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EBullins
Regular Member


Date Joined Feb 2009
Total Posts : 63
   Posted 2/26/2009 12:12 PM (GMT -6)   
Rhonda - Thanks for the info, I appreciate your help. Been there done that with the physical therapy many many times throughout the years. I have an MS oriented yoga and Tai Chi program that I have been doing for over ten years that really helps me with the spasticity and pain but am just having a really hard time bouncing back after this last horrific flare up. I am sure things will calm down soon. I am searching for other options as my tried and true routines of the past seem to be getting their butt kicked! :-)

popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 2/26/2009 8:42 PM (GMT -6)   
Hey Elizabeth,

Just thought I would say that the baclofen pump is recommended for people who are very allergic/sensitive because the dose is much much less because it is being delivered where you need it (into the spinal cord). The pain clinic told me that I am getting 1/360 of the normal oral dose. Apparently when you take meds orally they flood the whole body which can cause the allergic reaction. I was virtually allergic to everything & have had 3 anaphalactic shock reactions, one to synthetic Vit C & amino acids in chelation therapy, one to an antibiotic & one to a herbal tea. There is a clinic here that is awesome (uses advanced kineaseology) & desensed me to aneasthetics, baclofen, synthetics, & even food before the operation. So eventhough I spent 1 week in hospital getting the pump implanted I had no allergic reactions whatsoever. Hang in there I believe you will find a solution :-)
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995. Baclofen pump since 2008.
Row, row, row your boat gently down the stream
Merrily , merrily, merrily, life is but a dream

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