Relapsing/Remitting MS

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

bohuck2
Regular Member


Date Joined Dec 2008
Total Posts : 196
   Posted 4/16/2009 3:53 PM (GMT -6)   
After being diagnosed with Primary Progressive MS and spending the last 20 Months being exhausted almost every day I must say to all of you that have Relapsing/Remitting MS
 
that you are really lucky you don't have PPMS. I really hope that none of you get it either because it isn't fun to have to go through the things that I go through with this awful
 
disease. For years I used to do anything I wanted to do, like going out after work with my friends or getting in the car for rides into the beautiful country that Idaho offers or
 
going hunting or fishing on my days off but now when I am off work all I look forward to is staying at home and getting as much rest as I can so I can last another week at work.
 
God Bless you all and please keep taking the treatments that your doctor has prescribed to you as my neurologist says that I have had MS for some time before he diagnosed me
 
with it but he can't say when.  If I would have been diagnosed earlier then there just might have been some help for me instead of trying this or trying that and not finding
 
anything that works. To say I am frustrated with this terrible disease is an understatement! It has taken years off of my life but I don't need to tell you guys of that.
 
Well, enough venting from me, I hope eveyone has a great evening and a better weekend, if that's possible when you have this darn condition we have, right?

 
 
 
 
                                        Chuck the old man :>)
                                   AMWTP Training Instructor
                                          Idaho Falls, Idaho
                                  Diagnosed with PPMS May, 2006
                                   but still working at the present.         
                Tried just about everything there is for MS, including Tysabri
                               Just recently had Treatments of Cytoxin
                                        Liked to kicked my butt!


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3523
   Posted 4/16/2009 5:03 PM (GMT -6)   
I can understand your frustration, Chuck........but please don't tell me I am lucky for having RRMS.  I don't feel lucky at all.  Many would say you are lucky to still be working.  I know many would give their right arms to be able to work.  EVERYONE suffers from this disease where ever they are with it.

We have so many here that are completely disabled and they have RRMS. 



Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.

Post Edited (Gretchen1) : 4/16/2009 6:11:09 PM (GMT-6)


bohuck2
Regular Member


Date Joined Dec 2008
Total Posts : 196
   Posted 4/17/2009 2:25 PM (GMT -6)   
Gretchen,
I am sorry you took it that way. I didn't mean that anyone that has RRMS is lucky, I meant that they were lucky that they don't have PPMS. I don't think anyone that has any of the types of MS are lucky by no means. Forgive me?
 
 
 
 
                                        Chuck the old man :>)
                                   AMWTP Training Instructor
                                          Idaho Falls, Idaho
                                  Diagnosed with PPMS May, 2006
                                   but still working at the present.         
                Tried just about everything there is for MS, including Tysabri
                               Just recently had Treatments of Cytoxin
                                        Liked to kicked my butt!

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, August 21, 2017 4:29 AM (GMT -6)
There are a total of 2,858,095 posts in 313,681 threads.
View Active Threads


Who's Online
This forum has 155192 registered members. Please welcome our newest member, fatema mernissi.
270 Guest(s), 6 Registered Member(s) are currently online.  Details
wwwvvvvvvv11, RedLabel, rthyrtcbgfbgf02, godfred, halbert, SFSFR


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer