Solumedral IV-Infusion Therapy

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PrayerWorks
New Member


Date Joined Mar 2009
Total Posts : 17
   Posted 4/17/2009 1:50 AM (GMT -6)   
Hello everyone, sorry it has been a while since I posted last. I endured my first infusion with only few side effects that are being managed.  I just had my second infusion done this afternoon.  It appears that I will having these done on a regular monthly basis as part of a maintainence program for my RRMS.
 
I wanted to ask if any of you would like to share your experiences with taking Solumedrol Infusions ( how much/duration) and were there any side effects from it.
 
Also would like to know why - why does getting this treatment make you feel so much worse for a few days before feeling better?
Can anyone explain how & why this happens?
 
My last question for you would be "Did you experience any new symptoms after having an infusion that you have not had before?
 
I hope everyone is doing well.
Just Remember,
PrayerWorks

 

 

*ps* Please forgive me for any typing errors, I'haved to edit this post numerous times. I having cognitive issues with spelling and writing  right now...not to mention the memory lapses


Pray without ceasing. In every thing give thanks: for this is the will of God in Christ Jesus concerning you. 1 Thessalonians 4:17,18
 
Diagnosed RRMS October 2008
ACDF C6/C7 May 2008
ACDF C5/C6 May 2005
 
 

Post Edited (PrayerWorks) : 4/17/2009 1:54:50 AM (GMT-6)


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/17/2009 2:07 AM (GMT -6)   
I am sure our Forum Moderators would be able to answer all your concerns shortly. In so far as I am concerned, my prayers are always for your speedy recovery. I may not be of much help to answer your concerns, but I feel my prayers would definitely get answered in for your good health.
45 years Male Attorney
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
"Faith is the bird that sings when the dawn is still dark."
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracl: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3518
   Posted 4/17/2009 7:27 AM (GMT -6)   

PrayerWorks,

Please don't worry about your typing.  You do very well.  We have some that come on here and type and type without punctuation.  That is much harder to read than misspellings.  Just do your best and we will figure it out.

I don't love the solumedrol.  I don't use it unless I am facing a really awful flare in which I can't take the pain, spasticity or whatever.  I hate the side effects to much.  According to my neurologist, that solumedrol just helps symptoms, she does not feel it is a treatment.  She has left the solumedrol totally up to me. 

I don't know why the solumedrol makes you feel so awful at first.  It is a very good anti-inflammatory but it has really terrible side effects.  I have not heard of doing solumedrol once a month.  I have heard it once every three months.  Please make sure you are monitoring your bone density.  Solumedrol absolutely strips the calcium out of you.  Take an excellent calcium and vitamin d3 supplement........forver. 

Get a bone density test and keep doing them every year. 

I do hope that the solumedrol will make you feel better.  Hang in there and of course you have my prayers.


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


PrayerWorks
New Member


Date Joined Mar 2009
Total Posts : 17
   Posted 4/17/2009 10:06 PM (GMT -6)   
Thank you very much for your responses & prayers. Gretchen thank you for the tips. I've got the Vitadmin D3 but I wil get the calcium and ask my dr about the bone denisty test.

My first solemdedrol treatment was overwhelming, the instant nausea, bad taste, and high blood pressure.....my skin even turned red! I was bedridden by that evening and couldn't do anythingl I was on a cane before treatmen but after treatment I was barely able to use the walker. However, after about the 4th day I actually woke up without pain! I actally washed some laundry and cooked, cleaned, you name it! It was so wonderful but it only lasted about 1 week and a 1/2. I ended up having to get my dr to increase my zanaflax because my spasticiy was worss and nothing was helpping to control it. I've also been expreincing a lot shakiness (this started before my first infusion). I'm having a hard time typing having to think really hard where the keys are and making tons of correctons..

With this second infustion my dose was changed to a full gram of solumedrol in a 100 cc drip. The nausea was much more intense as was the awful taste, and my BP wetn up. Within a couple of hours of this treatment my legs started giving into unrelenting pain again. I still have my shakiness and hard time concentrating. My home health nurse informed me of my dr's new oder to have this treatment every month. I had the most excruitiating pain last night in both feet, heels, toes, and upper shins - I've had pins and needles before but never like that! It literally felt is I was being punctured with hot scolding needles every where and they were so piercing. This lasted for over an hour and I was crying & scared after the first half hour passed. It usually takes a lot for me to cry over pain b/c I have a high pain threshold.

Well, I guess I need to drag my noodle legs self back to my bed to have another uneventful night.
Take care all!

PrayerWorks
Pray without ceasing. In every thing give thanks: for this is the will of God in Christ Jesus concerning you. 1 Thessalonians 4:17,18
 
Diagnosed RRMS October 2008
ACDF C6/C7 May 2008
ACDF C5/C6 May 2005
 
 

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